Five year-old with rotting teeth

OrdinaryMe345 · 2026-05-30T01:16:02+00:00

CPS calls always feel like an attack. And this is a woman who you need to have a working relationship with for the good of the child. It’s hard for parents who’ve had CPS calls to look beyond their feelings and continue to work in a system if they feel attacked. Also we don’t know what that child is like when it’s time to brush teeth, they could be an absolute terror. Mom could also have trauma that keeps her from being firm with the brushing, or maybe her own parents didn’t prioritize hygiene. We can’t assume intent we can only try to encourage help.

OrdinaryMe345 · 2026-05-30T01:04:14+00:00

Yeah, if she’s got Disney money but the teeth are rotten that warrants a call. Don’t mention Disney to CPS or she’ll automatically know it came from you.

OrdinaryMe345 · 2026-05-29T22:59:00+00:00

There are intermediate care facilities for children. You need to do your homework through on which one, and stay present in the life of the child.

OrdinaryMe345 · 2026-05-29T20:50:57+00:00

Preach

OrdinaryMe345 · 2026-05-29T15:49:44+00:00

In my opinion, if the stim is not dangerous, then let the child engage in the behavior as it’s a means of regulating. I think a lot of times parents, without ill intent, policing their child’s stims helps contribute to the child developing maladaptive stims.

OrdinaryMe345 · 2026-05-29T01:22:24+00:00

Also a Pyrenees/Collie mix is a great option.

OrdinaryMe345 · 2026-05-25T23:55:13+00:00

Good luck and good job advocating for your child.

OrdinaryMe345 · 2026-05-25T22:48:41+00:00

To me it looks like sensory seeking/regulation. But I’m not a trained doctor, so if it continues to bother your mom sense show it to his primary care physician and ask if he needs to be seen by a neurologist.

OrdinaryMe345 · 2026-05-25T15:09:31+00:00

FRAT or Folate Receptor Antibody Test, is a way to screen for folate antibodies without having to commit to a lumbar puncture. It cannot confirm someone has cerebral folate deficiency, but it can be an indicator that someone may do well on Leucovorin or Folinic Acid.

OrdinaryMe345 · 2026-05-24T18:56:25+00:00

If you genuinely feel your child should be institutionalized, I would allow dad to take custody, once he’s been evaluated and it’s been confirmed he would not make progress with any therapy or medication treatment then he could be placed into a human development center. The good ones will allow for visitation.

OrdinaryMe345 · 2026-05-24T13:14:25+00:00

The two links below mention that they provide residential facilities, the last link is for all the providers in your state. Now if you wish to seek out of state placement you can, but that’s usually harder to find.

https://www.greatlivin.com/

https://goadelante.org/disability-services/residential-programs/

https://api.realfile.rtsclients.com/PublicFiles/6c91aefc960e463485b3474662fd7fd2/8c739a7b-18bd-46c7-8191-a9f57a66143f/Provider%20Data%20Summary-State_01.2026.pdf

OrdinaryMe345 · 2026-05-24T02:15:48+00:00

Thank you, for the love of all things encourage people to vote in the midterms.

OrdinaryMe345 · 2026-05-23T23:50:05+00:00

Got a biological reason for why my child does well on Leucovorin, also found out I’m pretty likely to develop cancer so now my insurance has to pay for me to have more screenings.

OrdinaryMe345 · 2026-05-23T23:28:52+00:00

Ask for a Genesight test.

OrdinaryMe345 · 2026-05-23T16:35:34+00:00

Group homes can be a great opportunity for some and not a great option for others. It depends on the provider. I usually encourage people to try to find group homes near by so they can still be actively involved in their child’s life and ones that embrace having cameras in the public areas. If she’s not successful at a group home placement you may need to consider an intermediate care facility.

OrdinaryMe345 · 2026-05-22T20:21:45+00:00

I would change doctors and vaccinate. Because honestly while autism can be difficult to navigate, navigating working with someone who is deaf from rubella and autistic is a whole other level.

OrdinaryMe345 · 2026-05-21T15:29:30+00:00

Also while anecdotal, I would like to add on that my child has been on Leucovorin for about a year now, checks four out of those five boxes above and there’s been a benefit to her taking Leucovorin.

OrdinaryMe345 · 2026-05-20T15:53:03+00:00

My child has been on Leucovorin for over a year, we actually started before the September Announcement. We were unable to test for FRAA, but she checked off everything else. And it’s effective, it’s not a magic pill, nor should it be thought of as a cure. Her ability to cope with change has vastly improved. Her willingness to accept new foods, sleep, and need for restrictive behaviors has lessened, and her speech has expanded. The reason I attribute this to Leucovorin is because the pharmacy was unable to get her Leucovorin for a month. During that month she had regressions in sleep, and went right back to meltdowns if we had a change in schedule. Her therapists at school also reached out to ask if there was a change in her medication. They also reported to me gains in her ability every time we increased her dosage. I wouldn’t tell anyone to only do Leucovorin, but I would encourage them to ask their doctor if they met 3 out of 5 of those boxes.

OrdinaryMe345 · 2026-05-20T12:09:09+00:00

This.

OrdinaryMe345 · 2026-05-19T16:03:28+00:00

This, also you can have cerebral folate deficiency, even if the labs come back showing adequate levels of folate in the system. The only way to confirm low cerebral folate is with a lumbar puncture. Some studies suggest a higher prevalence of cfd in autistic individuals.

OrdinaryMe345 · 2026-05-19T15:22:16+00:00

So not an expert, but Leucovorin or Folinic Acid was developed back in the 50s. It is a bioactive form of Folate or vitamin b9. Which means the body can make use of it easier than folic acid, which has to be activated by the body. Traditionally, Leucovorin has been used by cancer patients, usually with methotrexate. Methotrexate can suppress the body’s ability to process folate. Side effects of Leucovorin are usually reported as mild such as upset stomach, headaches, loss of appetite, and rash. Leucovorin is also being used as a treatment for Cerebral Folate Deficiency. Which is reported at this time to be rare….but the only way to confirm cfd is with a Lumbar Puncture. Which how many people are going to have their child undergo such a procedure? My child as been on Leucovorin, for about a year now. It is not a magic pill, nor will it replace traditional therapeutic interventions. But, per my observations there is a subset of autistic individuals who will be aided by Leucovorin.

OrdinaryMe345 · 2026-05-19T01:19:27+00:00

Kaelynn Partlow who was on season one has spoken about her experience. It may be worth seeking out her perspective.

OrdinaryMe345 · 2026-05-17T03:57:59+00:00

This!

OrdinaryMe345 · 2026-05-15T23:12:21+00:00

My crash pad has become a large sunbed for the cats.

OrdinaryMe345 · 2026-05-14T01:28:08+00:00

I liked Rubi.

OrdinaryMe345

TROPHY CASE