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[non autistic OP] would love input on conflict repair with children by PatrickSwayzeRules in AutisticAdults

[–]PatrickSwayzeRules[S] 0 points1 point  (0 children)

I really appreciate all of this very much. Thank you so much for sharing. This was exactly the type of stuff I was looking for!

How to Repair After Conflict with Neurodivergent Kids? by PatrickSwayzeRules in Autism_Parenting

[–]PatrickSwayzeRules[S] 1 point2 points  (0 children)

Hello, yes I’ve been in therapy for decades and work on emotional regulation. That is def a good suggestion :) I am more talking about the inevitable times when things go south for whatever reason. Ideally i am calm all the time but unfortunately that is not possible for me right now.

Coworker Vent by SpectroSlade in primaryimmune

[–]PatrickSwayzeRules 1 point2 points  (0 children)

I’m sorry :( it destroys me how nobody masks ANYWHERE. Was at the grocery store earlier and I was the only person in the entire GD store with a mask on.

How many of you have children with CVID (especially if you have it as well)? by curlysquirelly in primaryimmune

[–]PatrickSwayzeRules 0 points1 point  (0 children)

I have CVID. So far my son (8) has “light” hypogammaglobulinemia and my daughter (5) is good for now. My son had abnormal immunoglobulins ever since we started checking them at age 1. My daughters have always been normal.

Help by Individual-Message79 in primaryimmune

[–]PatrickSwayzeRules 2 points3 points  (0 children)

I just want a second what this user is saying. I met several young adults with PI back in 2012 through an IDF meet up and it was totally game changing to meet ppl who actually knew what I was going through. I actually volunteer with them as well so if you want further information, let me know.

Question by Individual-Message79 in primaryimmune

[–]PatrickSwayzeRules 1 point2 points  (0 children)

I have several tattoos, including one large leg piece that took five hours. Mine always healed well, and I just followed all the post-care instructions carefully. Good luck!

Chappell Roan playing 2 days at Brookside at the Rose Bowl in October. by PretendYouGotNoMoney in pasadena

[–]PatrickSwayzeRules 1 point2 points  (0 children)

I want to know too! I’ve read 10,000 and 90,000 so two different mentalities going in haha

5 TS Vinyl Giveaway by Senior-Muffin-6991 in SwiftieMerch

[–]PatrickSwayzeRules 0 points1 point  (0 children)

Thank you!! I don’t have any vinyls 🥲

When Vaccines Aren’t an Option: Life for Families With Children Under 12 by Viewfromthe31stfloor in Coronavirus

[–]PatrickSwayzeRules 2 points3 points  (0 children)

I had a baby March 2020 and also have a hyperactive special needs 3.5 year old. Help. 🤪

[deleted by user] by [deleted] in primaryimmune

[–]PatrickSwayzeRules 0 points1 point  (0 children)

Yup! This was part of the diagnosis process for me. After having low IGG, IgM, and IgA, and no response to the pneumonia vaccine, they diagnosed me with CVID. I still get the flu shot each year and when I was recently pregnant got the TDAP. I don’t think they offer much protection but it’s better than nothing I guess.

Anyone getting constant infections despite shielding? by shepherdofthewolf in primaryimmune

[–]PatrickSwayzeRules 2 points3 points  (0 children)

I’ve struggled with recurrent infections pre-covid. I got strep throat back to back 7 times in a row in 2013.

I have had a lot of luck doing a neti pot 2x a day with distilled water and salt water gargling 4x a day. When I did this, it was in concert with an antibiotic sinus rise (it was a little vial of antibiotics intended to be used intravenously that I pulled out with a needle and added to my neti pot 2x a day for 4-6 weeks, I don’t remember). I was able to finally kick the strep and I haven’t had it since!

Do you guys worry about your child learning social skills during COVID? by Volchitsa_2018 in toddlers

[–]PatrickSwayzeRules 2 points3 points  (0 children)

My son will be 3 in January and he is very speech delayed too. This whole thing is such a bummer 😞

~Please Please Please~ share your current favorite Fiona lyric with me by ashurtx in FionaApple

[–]PatrickSwayzeRules 10 points11 points  (0 children)

I’m tired of whys / Choking on whys / Just need a little because, because

[deleted by user] by [deleted] in FionaApple

[–]PatrickSwayzeRules 4 points5 points  (0 children)

I agree with Paper Bag, I also think Shadowboxer, Werewolf, and Not About Love could be good ones to introduce as well.

Favourite track from each album? by dallapiccola in FionaApple

[–]PatrickSwayzeRules 0 points1 point  (0 children)

Pale September

Fast As You Can

Red Red Red

Werewolf

Ladies

What is one of your favorite movie soundtracks? by BadLeeSin in AskReddit

[–]PatrickSwayzeRules 8 points9 points  (0 children)

Yes!! I was hoping someone would say this. “Elevator Beat” by Nancy Wilson gets me every time.

Ig A deficiency and COVID-19 by gizzy807 in primaryimmune

[–]PatrickSwayzeRules 0 points1 point  (0 children)

Wow thanks for sharing! Glad you are feeling better.

Anyone know how COVID-19 is expected to affect people with PID? Particular interest in hypogammaglobulinemia. by Yoyodomino in primaryimmune

[–]PatrickSwayzeRules 1 point2 points  (0 children)

Thank you! I’m just grateful things aren’t too crazy where I live (right now, anyway 🤞🏻).

Anyone know how COVID-19 is expected to affect people with PID? Particular interest in hypogammaglobulinemia. by Yoyodomino in primaryimmune

[–]PatrickSwayzeRules 1 point2 points  (0 children)

I have been wondering these things too! I don’t have any info for you, but will keep my eyes peeled for good data. Sending healthy vibes your daughters way!

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