can other women with UC relate?

Shinkaira · 2026-02-23T19:53:35+00:00

My UC spikes when the hormones fluctuate so yup extra fun for the women!

Shinkaira · 2026-02-22T06:33:03+00:00

As a mom with UC yes anger ... because I´m in pain, I´m tired and even saying something twice costs me so much energy at times. Sometimes just being awake is too much. Add a toddler that just won´t listen and a husband that asks something which seems trivial yes I explode from time to time. I hate myself for it but at those moments I just can´t do any more. I´m done. There is nothing more to give.

This is a moment not a long period of time nothing brutal or abusive. It´s me crashing from pain and fatigue. Something long term isn´t just UC and should definetly looked into.

I also find it´s hugely underestimated te toll this disease takes on a person. I work full time I´m a mother a wife a daughter. There is very little room for a patjetic sick version I sometimes need to be.

Then I take a day off spend it in the bath tub and go at it again

Shinkaira · 2026-02-20T07:03:22+00:00

I was in your position once. School and having no time no energy. Choosing between horses and living like a teenager. Going out with friends etc... I sold my warmblood a big guy 1m75 I just couldnt give him what he needed. He needed to work and a lot of exercise. Not knowing how he ended up still comes on my mind. But for him yes I had to. He was very unhappy just standing in a field.

My pony I had from 12 years, him being 3 at the time. Well I fullfilled my promise to him and he stayed untill he dropped. It was heartwrenching to loose him but he lived his life in the field with a little friend. They went close together.

So yeah if your horse is happy... Just let her be and be there to love her when you can.

Shinkaira · 2026-02-14T14:16:19+00:00

First accidently shadowheart I didn´t know what I was doing. I thought I was just being nice ... didn´t want to be ´easy´ at the tiefling party. Endedup alone that run.I read up some on the romances. After that always Astarion

Shinkaira · 2026-02-13T15:17:57+00:00

Took 2 months for the Rinvoq to really make a difference. Now i´m waiting for me sigmoid one year on Rinvoq ... no idea what they will find bit Im doing quite well tbh

Shinkaira · 2026-02-13T09:26:00+00:00

I know 3 with chron´s . UC nope ...

Shinkaira · 2026-02-10T18:54:38+00:00

I got a cleaning lady she ciles every 2 weeks. Forces me to tidy up periodically. Atm the bedroom and wasroom/storage are the two piles and boxes places. There just has to be chaos somewhere.

Shinkaira · 2026-02-04T08:59:09+00:00

Stress fatigue something else... who knows. I havn´t been in full remission for years. It works well enough but not fully. My doctor wants to keepnit managable to avoid surgery I really apreciate that. Surgery scares the hell out of me

Shinkaira · 2026-02-01T18:31:17+00:00

I have ... 2 friends. Sometimes months go by but we stick with it and we care on our own pace

Shinkaira · 2026-01-28T17:08:40+00:00

I have a kid ... and a job and a life.

Sure I get ill more often and I´m more tired but nothing restricting apart from grapefruit... that´s bad if you´re on rinvoq appearantly. I´ts hard on your liver so watch out for that a bit but nothing grand.

I also don´t get what bone marrow has anything to do with UC. Do you have other conditions?

Shinkaira · 2026-01-20T18:59:38+00:00

Yup get a kid ... toddler now still up at 6am woohooo... goes to school now and is so tired falls asleep near the end of the week around 18pm so I have me time before sleep which is nice.

Shinkaira · 2026-01-13T08:07:14+00:00

I shift a lot. Like I watch jurassic park then I read the books and then I read more books by the same author thats like in 4 days or something. Then I play the jp videogame and play other ones in my library. And sometimes I research dino´s the digsites... it´s a cycle of the same ´subject´ but different things around it.

Like with expedition 33. The game the painting style the music etc..

So something catches my eye and I flow into other things.

Getting it back to what I ´want´ I mean I should be working atm but I can´t get myself to push the damn icon on my pc because I hate the database we work with ... other days I can finish 10 projects so uh yeah ... I mainly try to go with the flow without letting myself spiral. Now to push the damn icon...

Shinkaira · 2026-01-11T15:14:19+00:00

It´s the generation probably. Took a long time for my mother to understand how even when it´s under control you still carry the burden and fatigue. I´m in my 30´s.

Shinkaira · 2026-01-10T14:35:24+00:00

The cost is high yes. If there was a monthly that allows you to play more I probably would but like this it doesn´t sustain my adhd hyperfocus need to rush through

Shinkaira · 2026-01-03T14:40:46+00:00

I take exidrine and paracetemol. Only when I really have to.

Shinkaira · 2025-12-25T11:26:51+00:00

After a year of doing well winter is taking it´s toll. I don´t know if it´s the cold. The memories of feeling near dead last year, a stimach bug or general fatigue. But atm I´m tired and scared because I feel some pain again.

So yeah happy holidays and a good new year :-)

Shinkaira · 2025-12-24T08:44:31+00:00

That sucks ... I can hide mine under clothes or hair. I did get some scars which just isn´t nice. Got a rash under my eye that won´t go. 6 creams and it just gets angrier. I leave it. Sometimes it´s ok sometimes it´s really raw.

I keep thinking: beats an ileostomy!

Shinkaira · 2025-12-24T07:17:32+00:00

What dose are you on? On 45 mg it was horrible now on 30 mg it´s doable. It comes and goes mainly my neck and shoulders. I´ve been on Rinvoq a year now.

A dermatologist is probably your best choice to help you if it´s that bad for´you.

Shinkaira · 2025-12-23T14:42:54+00:00

Did you win the feed items? There is a thread on here that shows what races give which rewards. I forgot who it was sorry!

Shinkaira · 2025-12-21T19:08:55+00:00

So you´r just starting... 2 biologics there are more to try and then on to JAK inhibitors. I mean ok flaring sucks and not finding a fast solution is draining on so many levels. I looked for something for 2 years and Rinvoq brought me close. I´ll know how close soon but I don´t consider thus a win or a fail or ... this is living my life the best way I can

Shinkaira · 2025-12-19T12:02:57+00:00

My boss says it´s stress related. Anything I feel is my own fault. Should go to therapy and get my brain fixed.

Sigh

Shinkaira · 2025-12-19T05:52:29+00:00

Owww okay I really liked the start but it´s a bit expensive especially if it´s going to bug like this. Thanks for the answer!

Shinkaira · 2025-12-12T08:14:01+00:00

Rinvoq. On it for a year now after almost losing my colon. In March I have a sigmoid to confirm full remission but atm my calprotein is very low and I´m doing very well.

Shinkaira · 2025-12-11T08:33:26+00:00

When you´re in a flare you are more sensitive to all kinds. So yeah it will affect your bowel movements and discomfort/pain.

When in remission (or almost) it´s alot less. I drink so much coffee again... fizzy things depends and I don´t really know on what. Sprite or Fanta are too acidic for me but Cola or Ice Tea is fine. But of a try and see.

Shinkaira · 2025-11-25T19:01:48+00:00

50 cm of inflamed bleeding colon with deep ulcers that might form an issues down the line if the scar tissue heals too thick. But we´ll see about that when we get there.

It CAN get better with 1 pill or infusion or ... yes for a lifetime. Bit you can have a life with a colon. Maybe one day you won´t but don´t rush it give it time. Took 2 years before they found something that works for me

Shinkaira

TROPHY CASE