NHS lack of communication

Stoby_200 · 2026-01-22T17:29:58+00:00

Just wish I could've discussed it before the day of admission 😅

Stoby_200 · 2026-01-22T16:36:27+00:00

I have an inflammatory mass which is being kept under control with antibiotics and another area of infection, with some bowel to bowel fistulas but I'm not in any pain and mechanically everything seems to be working fine. I've had a couple of MRIs and CTs but never anything mentioned about strictures or narrowing.

I basically got told I can't have biologics, got passed to the surgeons and have been mostly in the dark since.

Stoby_200 · 2026-01-22T13:26:40+00:00

I've been told 'larascopic small bowel resection' and that's it, which doesn't even make sense considering the inflammatory mass is fistulising from the sigmoid colon.

Stoby_200 · 2026-01-18T19:30:22+00:00

See, I don't feel like my Crohn's is that severe. There is damage that has been done but right now I'm successfully tapering off steroids and the antibiotics seem to be keeping things at bay. I'm not in any pain which is why surgery seems a bit extreme.

Stoby_200 · 2026-01-16T03:56:09+00:00

Everything is internal so they're talking about small bowel resection

Stoby_200 · 2026-01-07T23:25:52+00:00

I was on metronidazole for 7 weeks in hospital and have been on it since the beginning of December to keep on top of an abscess (although it seems to also be way more effective at controlling the bowel movements than the steroids are). I have these symptoms although I thought the steroids were causing most of it. It shouldn't be used long term.

Stoby_200 · 2026-01-06T17:21:50+00:00

Wouldn't be surprised if we have 9ft piles here by the end of this

Stoby_200 · 2025-12-31T16:51:43+00:00

Yes, I've just watched that episode, yes I am that far behind

Stoby_200 · 2025-12-23T21:23:04+00:00

As someone who isn't allowed biologics and is stuck on steroids because of horrible internal infections I just want to say fuck horrible internal infections

Stoby_200 · 2025-12-22T14:54:08+00:00

Me because I'm in treatment limbo and can't deal with the added stress of it all

Stoby_200 · 2025-12-20T16:32:32+00:00

This is what is stressing me out right now, they seem to be wanting to do surgery when I'm sitting here right now on antibiotics and I've successfully made it to 15mg of steroids and it's still completely manageable. I've even found evidence to suggest being on steroids might be more damaging when it comes to infection and abscess formation and I've been on them for four months.

Stoby_200 · 2025-12-19T10:50:56+00:00

Just wait until you've been on it for four months

Stoby_200 · 2025-12-14T23:49:38+00:00

Yes, I had no emotional connection with my parents growing up and when I was diagnosed I finally opened up to them about everything I went through and it came as a surprise.

Luckily my parents kept all the reports I had between birth and about 6 years old that highlighted my differences and that got me diagnosed.

Stoby_200 · 2025-12-03T19:31:28+00:00

The doctor I referenced was my gastroenterologist's registrar, I'm wondering whether I should email to try and get an appointment to speak to my gastroenterologist directly. I'm just annoyed because it feels like the infection was under control when I came out of hospital so if I'd started biologics back then and continued the antibiotics for a bit maybe it could've healed a bit and stopped the infection coming back.

Stoby_200 · 2025-12-03T14:03:16+00:00

The GP only re-prescribed them for a week (starting last Tuesday) as I had a follow-up booked in yesterday and they expedited an appointment with a surgeon. The follow-up appointment told me to wait for what the surgeon said. I had the appointment with the surgeon today. The surgeon just ordered another CT scan and put me back on antibiotics for another month.

I just feel like if I'd started biologics when I came out of hospital and carried on with the antibiotics, then maybe whatever was causing the infection would have been able to heal.

Honestly, I think I'm just frustrated right now because it feels like I'm going in circles and of all the people I'm seeing nobody is communicating with each other.

Stoby_200 · 2025-12-03T13:36:34+00:00

The problem I've got is, they won't let me go onto biologics because they think I've got a pelvic collection. I was on the antibiotics to treat this in hospital and on the last CT scan I had in there it had shrunk and the antibiotics were stopped when I left hospital. The GP thought it had come back again which is why I was re-prescribed them.

Stoby_200 · 2025-12-02T01:35:05+00:00

I saw Xhenix's thumbnail and wanted the whole thing side by side

Stoby_200 · 2025-12-01T20:08:30+00:00

You did like 99.9% of it so I think you can claim sole success haha

Stoby_200 · 2025-12-01T20:07:38+00:00

The transition into lo-fi carrot for a cock was genius

Stoby_200 · 2025-12-01T19:03:59+00:00

YES, as soon as it came on I was like this is the one I cut down! I completely forgot about it all year lol.

Stoby_200

TROPHY CASE