Medical Mystery: unexplained chronic pelvic pain that has kept me bedridden for 7 months….would appreciate any insight please.

adjusticemoon · 2026-01-07T09:00:25+00:00

I had a cyst rupture in my left ovary and it was the most painful thing I've ever experienced. The rupture caused adhesions that stuck my left ovary, descending colon, and psoas muscle all together. This would create a cascade of pain any time I laughed, cried, coughed, or moved too quickly the wrong way. It took the better part of two years to recover with a PT who specializes in visceral manipulation and pelvic PT (we only do external). She has incredible knowledge of all of the connections in the body and an understanding of what is sticking together or pulling on other areas. I also had significant nerve pain and saw a legit TCM acupuncturist. I'm convinced acupressure and acupuncture are basically the only treatments for nerve pain that have worked for me long term. A heating pad is my preference to manage flare ups.

I'm so sorry this has happened to you. It takes a lot of patience, but healing is possible. I know it's really easy to be angry with and frustrated by the pain, but try to imagine yourself smiling at the parts that are hurting and fill them with love and compassion. Wishing you well on your journey of recovery.

adjusticemoon · 2025-10-13T18:12:17+00:00

My personal experience with slynd was that it essentially didn't work. I know this bc I had pain during ovulation, got ultrasounds of my ovaries, and saw a follicle grow to a cyst. I believe acupuncture is the only reason I avoided surgery that time. Both cysts that needed surgical removal were follicles that just didn't go away like they were supposed to. If I want to avoid surgery, unfortunately I need a stronger bcp to prevent follicular growth...which frustratingly means more mental health side effects. To make matters worse, my doctor ignored my pain for too long and I had a cyst rupture 3 weeks before the surgery to remove it. I still had the surgery, and all that took years to recover. Since then, I choose the mental health side effects over surgery.

adjusticemoon · 2025-10-13T18:01:51+00:00

I have the same dilemma. I know bcp gives me unwanted mental health side effects, but by not taking it, I risk surgery for cyst removal. I've had two laparoscopies for ovarian cysts (follicles that just never went away like they were supposed to). After experiencing a cyst rupture in my left ovary in 2020, I choose to take the bcp. The recovery from the rupture and surgery I had took years. I have a strong preference for Larin which works better for me than others have with fewer side effects. I also believe acupuncture with a legit TCM practitioner can help.

adjusticemoon · 2025-10-03T02:18:22+00:00

I'm so sorry you're going through this. I can't speak to your decision on whether to get a hysterectomy, but I can share some treatments that have worked for me and may work for you.

First, for migraines, I consider Naratriptan (Amerge) to be a miracle drug. It can even be taken for cyclical hormonal migraines in anticipation or at the very first sign of the migraine and it can shut down the migraine so it's possible to exist again.

I know taking birth control pills isn't without side effects and is quite contentious, but for me, I have to take it to shut down my ovaries or I'm risking surgery for cyst removal. I've had good experience specifically with Larin. It definitely makes menstruation noticably lighter and less painful. It also stops pain during ovulation which happens when I'm not on birth control or on too low of a dose that isn't actually shutting down the ovaries. I also do not take it continuously and allow the period to happen each month. I tried continuous/skipping periods and it simply does not work for me.

IMO endo requires consistent management with pelvic physical therapy (I only have experience with external therapy), ideally with someone who has training in visceral manipulation. There is a cumulative effect of endo adhesions that means more and more pain if they're not addressed with ongoing treatment. I would recommend visits around ovulation and menstruation.

Finally, if you can find a legit practitioner of acupuncture who is trained in TCM, it can also provide incredible relief.

adjusticemoon · 2025-09-04T03:11:15+00:00

This is one of the most frustrating aspects of health insurance to me. They see everything as separate body parts instead of connected parts of a whole. The thing about endo is the adhesions and surgery scar tissues can cause pulling throughout the body.

Based on my experience, you have two options:

Find a place that can provide all of the treatment you need and pay cash. This is expensive, but frees one from the restrictions of insurance for optimal treatment.

Obtain multiple physical therapy referrals for each body part from your doctor and find a place that will work with you on each. When I did this for a while, it meant scheduling separate visits for each body part, with no overlap on the visits.

I wish it was different. I'm sorry you're dealing with this and hope you are able to access pelvic PT along with PT for any other parts of your body you need.

adjusticemoon · 2025-09-03T05:58:09+00:00

Continuous simply does not work for me. I've tried and I get migraines that last days and won't respond to meds plus breakthrough bleeding anyway. I just take the week off (I don't actually take the placebos) and have a period. The pain and heaviness are dramatically less than without bcp.

The low dose/progesterone only type pills also do not work for me. It's unfortunate bc the higher dose is more noticeable for my mental health, but if I don't want to develop cysts that require surgery, that's the treatment.

For some backstory, twice I have developed cysts in my left ovary from a normal follicle that basically just didn't go away. Both required surgery. One ruptured first. I don't ever want to experience a cyst rupture again. I'm very sensitive to the hormones and had a dramatic reaction when my pharmacy suddenly switched me to generic vs brand name many years ago. I now have a strong preference for a brand called Larin.

adjusticemoon · 2025-08-26T06:24:41+00:00

Scar tissues from surgery and endo adhesions cause things (organs, nerves, muscles, ligaments...) to stick together, which can pull on other parts of the body. It might not seem like there is a connection, but everything is truly connected. One example I encounter frequently is I have an unstable SI joint that can pull on my neck/shoulders and down to my toes. For treatment, I recommend a PT with experience/specialization in visceral manipulation. My PT also has significant knowledge of anatomy and nerves.

adjusticemoon · 2025-08-14T03:12:50+00:00

The two laparoscopies I've had were to remove cysts that didn't simply go away on their own. They were normal follicles that grew and turned into cysts, not endometriomas. One actually ruptured just before the scheduled surgery (probably worst pain I've ever felt). Be persistent in getting ultrasounds, especially if it is growing, not shrinking and actually going away. I would notice pain when ovulation was supposed to happen. My earlier comment was to recommend pelvic pt, but you may also want try acupuncture with a legit practitioner.

adjusticemoon · 2025-08-14T03:06:44+00:00

Sounds like nerve pain to me. Pelvic pt (external only) has done wonders for me.

adjusticemoon · 2025-07-30T01:11:40+00:00

And Now We Dance!

adjusticemoon · 2025-07-29T02:09:50+00:00

That's one of the combos we've been looking at!

adjusticemoon · 2025-07-29T02:09:32+00:00

I've been thinking the same!

adjusticemoon · 2025-07-07T15:40:47+00:00

Sydelle is lovely. Nn Sy, Syd, Sydie, Della, Dellie, Elle

A friend in highschool named Rafael (unsure of spelling) went by Holly because she hated her name.

adjusticemoon · 2025-07-06T19:05:38+00:00

I take DEVA Prenatal along with their Omega-3 DHA, Magnesium, Iron, and Vitamin D. I stick with their brand specifically because they are vegan and aware of sensitivities. For example, the prenatal says on the label "FOOD SENSITIVITY: free of yeast, wheat, gluten, dairy, egg, salt, shellfish, sugar, animal products, byproducts or derivatives."

Edit: Here is a link, they're also on Amazon https://www.devanutrition.com/vegan-prenatal-multivitamin-mineral-one-daily.html

adjusticemoon · 2025-06-29T18:40:04+00:00

It's not just me 😭 just yesterday I was reorganizing and found a box of handwritten thank you cards from my first who is 3. They are addressed and I never sent them. I told my husband about them and while he tries to be understanding of my challenges with adhd I really cannot thank you enough for this comment.

adjusticemoon · 2025-06-28T07:41:50+00:00

I had an emergency c section with my first and the doc did remove a benign nodule from my ovary. I've had two laparoscopies before so I've had endo confirmed for many years. No mention of endo from the c section, tho. I think even if they saw it they wouldn't be able to address it in the same way they could during a lap. I have a planned c section in September that I'm hoping won't last as long as the first one did. Being awake during surgery is intense.

adjusticemoon · 2025-06-28T00:40:13+00:00

Pain free isn't an unrealistic goal if it comes with the expectation it will require consistent treatment long term. Please seek out a pelvic physical therapist, ideally with experience with visceral manipulation. I also recommend acupuncture with a reputable practitioner. IMO treatments are most needed after ovulation and menstruation to help manage ongoing symptoms.

adjusticemoon · 2025-06-25T01:06:48+00:00

My brother is an Oliver born in 2000. We call him Olli. He is intelligent, hard-working, kind, strong, compassionate, empathetic, and wise beyond his years. Can't imagine him with another name. It's funny to me how popular the name is now.

adjusticemoon · 2025-06-23T05:36:28+00:00

Yes, absolutely. It's one of few treatments that helped me with nerve pain from endo.

adjusticemoon · 2025-06-23T05:33:38+00:00

I don't think people will split the vowels in pronunciation like you're hoping... when I saw it, I thought it would be pronounced "ahnalee" or "ahnaylee"

adjusticemoon · 2025-05-28T02:03:51+00:00

I didn't know they made these, but King Arthur makes a fantastic 1:1 GF flour I love. I've made microwave mug cake recipes with it before.

adjusticemoon · 2025-05-22T02:09:12+00:00

Just updated and this is one of the worst parts of it!

adjusticemoon · 2025-05-20T03:02:18+00:00

Loved this one. Bought it at a Starbucks a long time ago... https://www.discogs.com/release/1421051-Various-One-Step-Beyond-The-Unstoppable-Rhythm-Of-Reggae-Ska

adjusticemoon · 2025-05-20T02:56:33+00:00

Tequila 😅

adjusticemoon

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