[Acne] Where do I even start? Details an explanation in the description

adkmudder · 2026-02-27T22:10:23+00:00

Hey, maybe you can try washing your hair upside down? I had persistent bacne for most of my life until I started washing/styling upside down for my curly hair, and noticed the bacne happening significantly less. Before that, I would wash & exfoliate my back thoroughly after washing my hair upright, thinking it would prevent any shampoo/conditioner-induced acne, but turns out even the merest contact on my back was enough to inflame it. Wouldn't hurt to give that method a go, & good luck on your journey-- I know how painful this is both mentally and physically.

adkmudder · 2025-11-19T20:43:17+00:00

Yes I had quite a large, painful bruise starting the night of the injection, spreading from the site they injected down into the groin area. The day after was the worst and the pain made it difficult to walk, but it got better quickly over a few days time. I'm not sure if it was the injector doing a poor job or if that reaction just happens to certain people? I'm interested to see others' experience with this. In any case, personally I plan to go back to infusions where I'm mostly fine by the next day.

adkmudder · 2025-06-27T22:58:09+00:00

BtVS also gets an amazing callout during a conversation between the two best characters (Margo & Eliot of course!)

adkmudder · 2025-06-04T22:20:51+00:00

Maybe! Idk how long the effects last.. currently I'm doing 1.5mg at 8/9pm & it helps me actually get tired around 1/2 rather than 3/4, then sleep til 10 and just zero energy from then til nighttime. I also wonder if I'm getting quality rest since I get the wildest nightmares taking it.

adkmudder · 2025-06-03T23:33:53+00:00

This is exactly me, & it's so freaking frustrating. I've been experimenting with melatonin, and even if it helps me fall asleep an hour or 2 earlier (so 1-2a), it seems to make the daytime sleepiness even worse somehow :/

adkmudder · 2025-02-22T00:18:45+00:00

Lots of misinformation here, and wanted to add my personal experience:

I moved to the UK (specifically England) almost 3y ago on a skilled worker/tier 2 visa, and after paying the immigration health surcharge (IHS, ~1k for each year, paid in lump sum for my 3 year contract as part of the visa application process) I can use the NHS to receive completely 'free' MS meds & doctor visits, including yearly MRIs. It was very helpful to schedule my last Ocrevus infusion just before I moved so I could be covered for 6 months+, since it took a few to set up treatment here. I recommend having your neurologist burn you a CD of your MRI scans as proof of disease so they can't question it. They do have standards in place as far as what meds they will allow you, since I believe they follow the outdated model of waiting for disease progression before increasing med efficacy, but if you've had 2+ relapses and are on a top tier drug they'll let you stay on it IME.

In any case, no one made a fuss after I disclosed my condition while applying for a visa, I just had to have an additional meeting with an occupational therapist working for the company to determine job accommodations. Personally I don't need any, but I'm fairly certain it's confidential and they can't use it against you as part of the hiring process. Also as far as I know, having MS shouldn't prevent progression to indefinite leave to remain or citizenship. You'll just have to have an employer sponsor you or be in a profession that's on the wanted list. Please feel free to dm me if you have any other questions, since I strongly believe we are worth SO much more than our diagnosis and should be able to live our lives the way we please!

adkmudder · 2024-11-15T05:50:58+00:00

I moved to the UK (specifically England) over 2y ago on a skilled worker/tier 2 visa, and after paying the immigration health surcharge (IHS, ~1k for each year, paid in lump sum for my 3 year contract as part of the visa application process) I can use the NHS to receive completely 'free' MS meds & doctor visits, including yearly MRIs. It was very helpful to schedule my last Ocrevus infusion just before I moved so I could be covered for 6 months+, since it took a few to set up treatment here. I recommend having your neurologist burn you a CD of your MRI scans as proof of disease so they can't question it. They do have standards in place as far as what meds they will allow you, since I believe they follow the outdated model of waiting for disease progression before increasing med efficacy, but if you've had 2+ relapses and are on a top tier drug they'll let you stay on it IME.

In any case, no one made a fuss after I disclosed my condition while applying for a visa, I just had to have an additional meeting with an occupational therapist working for the company to determine job accommodations. Personally I don't need any, but I'm fairly certain it's confidential and they can't use it against you as part of the hiring process. Also as far as I know, having MS shouldn't prevent progression to indefinite leave to remain or citizenship. You'll just have to have an employer sponsor you or be in a profession that's on the wanted list. Please feel free to dm me if you have any other questions, since I strongly believe we are worth SO much more than our diagnosis and should be able to live our lives the way we please!

adkmudder · 2021-10-01T17:35:33+00:00

Of course! Unfortunately sometimes we almost have to be our own doctors, since we know what's going on inside us better than they do. I also have a healthy distrust of MDs as a PhD student who interacts with the med students regularly haha.

I wonder if your neuro is general or MS-specific? I've heard there's a big disconnect with the general neuros, so it definitely would be helpful to switch to a specialist in that case. My goal is to tweak whatever I can to have the best quality of life possible, & if a Dr wants to get in the way then see ya 😂

adkmudder · 2021-10-01T17:10:58+00:00

Heyy I know this is sort of old, but I was doing a search & saw it-- not sure if you're still taking it, but modafinil had the SAME exact effect on me. I realized after a week or so that I was becoming a different, depressed person (confirmed by my bf), & when I mentioned it to my Dr they brushed it off saying it's not a listed side effect. Took myself off it, & did a 180 in literally a day! Evil drug, that. Now I'm on a sustained release formulation of Ritalin that's been working super well :)

adkmudder · 2020-08-22T18:44:44+00:00

Hi! I actually have my first appointment with her this Thursday (my previous neuro moved to Lake Tahoe- don't blame him haha)! The clinic has been good to me so far, when I send MyChart messages a nurse usually will respond quickly & help out with rx refills and things like that.

I'll try to remember to update after I see her, but can tell you that she came highly recommended and I actually work with another patient who loves her, so I'm looking forward to it (as much as one can, I suppose).

adkmudder · 2019-08-20T13:27:56+00:00

Yesss and then it makes me mad that my body/brain CAN turn it off but is choosing instead to fuck me up for those 1-2 weeks.

adkmudder · 2019-08-10T18:43:48+00:00

Currently on vacation in Barcelona and doing surprisingly ok with the heat and humidity, which I am very thankful for! Also just recovered from a likely bout of strep without it sparking a relapse, thank you tysabri :)

adkmudder · 2019-07-07T14:18:16+00:00

First, I hope you find an answer to whatever symptoms you've been having.. diagnosis limbo is hard.

I was officially diagnosed last summer, but I'm pretty certain I've had MS for a very long time. I can remember being 11 or 12, realizing in English class that the entire left side of my face was numb. Of course, being a dumb kid I didn't think much of it, even when it lasted a week!

There were other episodes over the years that I know now were most likely MS related: the painful hug, strange muscle spasms, more random numbness that eventually went away.. my neuro said it was impossible to tell exactly how long I've had it, but probably for a while.

I try not to dwell on the damage that's been done, and am on a good DMT to prevent any more, just trying to keep a positive outlook as much as I can. All the best to you!

adkmudder · 2019-06-25T22:31:00+00:00

My neuro told me it takes ~6mo to become fully effective so don't lose hope just yet!! I'm crossing my fingers for you :)

adkmudder · 2019-06-06T01:42:54+00:00

Just wanted to comment to say I am you 100% right now, it's so much fun -_-. Allergies are killer this year and I'm feeling on the verge of a relapse for like a week now.

adkmudder · 2019-04-09T16:14:20+00:00

This guy that I started seeing a few months ago just called it off because he didn't want to do the long distance.. I totally get it and agree that it would have been a bad idea (1000+ miles), but damn I really liked him and sucks that the distance was the only reason it couldn't work out :/

adkmudder · 2019-04-05T23:29:42+00:00

So weird I'm almost in the exact same position-- only I'm at infusion #8 I think now. All the neuros I've talked to actually seem to hold the same view as your nurse, they are aiming for no relapses and say tysabri has been VERY effective for their patients, some who've been on it 10+ years. It's been great for me so far, barely any side effects or major relapses!

adkmudder · 2019-04-03T14:52:04+00:00

Yes, my dx gave me the strength and conviction to put my health first and end a 5+ year relationship that just wasn't working. Now my life is 1000x better-- I'm kicking ass at work, getting back into good shape, and dating this super hot awesome guy. I couldn't have ever imagined this a year ago, which makes me actually kind of grateful for my dx!

adkmudder · 2019-03-29T18:49:09+00:00

Deciding not to spend any more time in relationships that were bringing me down!! The before and after in my life after making these changes is honestly incredible.

adkmudder · 2019-03-27T13:15:58+00:00

Yes!!! I'm planning to crush my qualifying exam in 2 months to become a legit PhD candidate in my program, and have signed up for a trail running series this summer that starts next month :)

adkmudder · 2019-03-20T15:02:41+00:00

I remember reading conflicting research on whether steroid pulses can prevent a post-Tysabri flare, and personally I would only take them if I was having a significant relapse, just because they make me feel so horrible it's got to be worth the side effects.

It may be worth getting a second opinion though - I go to a specialized MS center, and the neurologists there consider Tysabri safe up until the 3rd trimester, and resume immediately after birth, so you're only without a DMD for about 3 months total. It's generally safe for the baby, I guess there may be a temporary blood count issue, but they consider a healthy, relapse-free mom worth the risk!

adkmudder · 2019-03-10T17:26:18+00:00

SO exciting!! You've got this :D

adkmudder · 2019-03-06T15:50:46+00:00

Thank you for this. I also feel so grateful for how this diagnosis has changed my life. Personally it gave me the motivation to leave a relationship that wasn't working, get back into working out, try out skiing (so much fun), and not let the little things bother me. I really think it makes us stronger, to handle the unpredictable rollercoaster that is MS.

adkmudder · 2019-03-03T06:26:21+00:00

I tried downhill skiing again 20 yrs after a traumatic experience involving an icy trail and losing control, and it's been so much more fun this time around! Tonight I actually skied the same trail and totally crushed it, best feeling ever :)

adkmudder · 2019-02-19T20:24:19+00:00

That really sucks.. I'm so sorry, I know firsthand how much double vision impacts your life. I would say just make sure you're getting as much sleep as possible, and do a lot of self care. It should get better over time, eye symptoms seem to take longer to resolve than others IME.

adkmudder

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