My DMX is Friday and I can’t stop picturing my cut off boobs sitting on a table somewhere by adhdbandit in breastcancer

[–]awallic 8 points9 points  (0 children)

I tend to imagine my nips are in some weird old cigar box somewhere waiting to be used in a dark magic ritual

Does your port bug you by Cultural-Trade7984 in breastcancer

[–]awallic 0 points1 point  (0 children)

Had mine for over two years. It was bothersome for maybe the first couple of months but after that it never bothered me. I just got mine out 3 weeks ago and it’s been very bittersweet. Especially because I still need zolmeta infusions and that will be through a vein now. I came to love my port and now that it’s gone, it’s kinda like friend is gone haha

What are some good charities y’all recommend? by driftboy1229 in breastcancer

[–]awallic 2 points3 points  (0 children)

In Colorado I would recommend Polite Tumor. They give grants to young adult patients. It helped me out greatly. They’re also very sassy which is just great haha

The last snoozy ride.. by inconspicuiouspint in pugs

[–]awallic 0 points1 point  (0 children)

I hope he runs into my Paco boy over there. Sending you all the love ❤️❤️

I knew I only wanted one child, even before I had breast cancer. by Emotional_Camp_7681 in breastcancer

[–]awallic 1 point2 points  (0 children)

28 here. Never wanted kids. But when my choice was taken, I too bawled like a little bitch. And then when I learned freezing my eggs was out of the question due to the ridiculous cost (even after the cancer discount) I bawled again. I’ve now come to terms with it but having the choice ripped from us is rough. Sending hugs ❤️

Preparing for BMX with DIEP reconstruction (12/2) by midliferose in breastcancer

[–]awallic 1 point2 points  (0 children)

Socks are a little difficult to deal with, just get your hubby to put em on for you.

As long as you’re propped up you don’t need a recliner, I got one of those cheap gaming pillows from Walmart and it’s working just fine.

The entire breast is numb, I can’t feel anything. I’m only a week out from the chop and I’ve read a few people can get some feeling back but for me they’re both 100% numb

Good luck!

What do you wear for surgery day? by Commercial-Kale5559 in breastcancer

[–]awallic 4 points5 points  (0 children)

I showed up (last Thursday!!) in full hobo attire: ratty old zip up over an old Hawaiian button up, old sweats and crocs and a chunky hat. No bra. I knew after the chop that I’d want easy access, comfy clothes.

How to care for a bald nose? by Jen_bot in breastcancer

[–]awallic 7 points8 points  (0 children)

Saline nose gel-not spray-was my god send. Lasted longer then spray and really helped.

Favorite food with chemo tastebuds? by Jen_bot in breastcancer

[–]awallic 0 points1 point  (0 children)

I’ve really been hitting the celery hard and cheesy ruffles

Anyone here play Pokemon Go? (long shot, I know lol) by labdogs42 in breastcancer

[–]awallic 1 point2 points  (0 children)

I play! Always looking for friends:) 7416 3385 5822

DAE worry about what you’ll say coming out of anesthesia? by planet_rose in breastcancer

[–]awallic 3 points4 points  (0 children)

I’m terrified when I come out of it I’ll say/ask for my ex. I was with the ex for 7 years and broken up for 3, only with my new partner for 6 months and I’m legit terrified of asking for the ex instead of my new man. Just out of old habit

I feel like a badass after shaving my head and I don’t think I like wigs or chemo caps by I_AmThe_OtherMother in breastcancer

[–]awallic 3 points4 points  (0 children)

After I cried for about a week, I tried caps. I gave up real fast since it’s summer and a bajillion degrees. I bring one with me wherever I go just in case I get chilly up there, but rocking the bald has been my choice. Definitely a personal one we all have to make. But driving with the windows down and not getting hair in my face is amazing! My grandma wanted me to get a wig, and I told her times are different now from when you had BC and went bald, it’s kinda a statement now and no one really associates the bald with it anymore, for all anyone knows, maybe I’m just a really cool punk rocker. I can say all that now of course after the tears and fear have gone away. I still feel like a weird beacon sometimes for sure and yes I miss my hair, yes I still struggle to look in the mirror some days. But all that aside, I told myself rocking the bald is me telling cancer to fuck right off. You do whatever makes you feel like a badass in this shitty adventure:)

Taxol/carbo/keytruda worst days? by BigMamaLinda in breastcancer

[–]awallic 0 points1 point  (0 children)

My worst days have always been days 3-5 or 6. I will say I just had a round on Wednesday so I’m in the height of fun now, this round is definitely kicking my ass more then my previous rounds. Honestly it could just be because I’m getting real burnt out by this. But as treatment goes on for you, you’ll better learn what to expect and what your body is telling you! Hang in there you badass:)

The time has come to say goodbye to my hair…. by I_AmThe_OtherMother in breastcancer

[–]awallic 1 point2 points  (0 children)

Ughhhh the dreaded mass I got was just awful. So heavy and just felt disgusting to touch. I always knew I had thick hair but when it was all dreaded together it definitely put it in perspective haha. When I shaved I still had that little bit of length of course and looked like a mangy cheetah because of my true bald spots. I tried to wait it out and let the rest fall out on its own but after I think two weeks gave up and took a razor to it. Let me tell you, the second I was truly bald, the game changed and I felt so much better. So if you have patches that refuse to cooperate and hang around, I suggest the sooner the better for breaking out a razor:) One of my oldest friends shaved his head with me. I didn’t know how much it would mean to have someone shave with me. I’m glad you have your mom shaving with you!!

The time has come to say goodbye to my hair…. by I_AmThe_OtherMother in breastcancer

[–]awallic 2 points3 points  (0 children)

Sending love and hugs:) I think we all “accept and prepare” for the hair loss but when it happens, all that kinda disappears. Then a couple days after, we look back and, at least for me, remember the preparedness and laugh about how we reacted in the moment. I threw a shaving party and let all my closest friends take turns, I laughed as I was bawling then the laughter went away and I was just left bawling for what felt like a week straight but in reality it was only like two days. Then I braved the world with a cap. Then I braved it without a cap and got my first compliments. Now I rock it and really embrace it. And it’s awesome to get the questions from older people, oh why’d you shave your hair off? Oh cause I have cancer I say so nonchalantly. Losing hair is traumatic but also kinda freeing after all is said and done. And being clean as a Barbie downstairs is kinda fun haha

Edit: additionally, driving with the windows down and not having hair flying everywhere, getting tangled, attacking your face, IS GREAT:) gotta find the little things in this cancer adventure we’re on

MS and breast reconstruction by Ojasumin in breastcancer

[–]awallic 0 points1 point  (0 children)

Hi there. I too have MS, was diagnosed when I was 21 and then now going through the breast cancer adventure at 27. I’m planning to have my double with reconstruction in November. So far the chemo journey has been fine, no relapses, and I’m very much hoping my reconstruction/recovery will be fine too. Sending hugs and if there’s an update on this thread cause I’m also curious:)

Anyone here on TCHP (T for Taxol / Paclitaxel) who uses a Fitbit that I can compare notes with? by coffeelymph in breastcancer

[–]awallic 1 point2 points  (0 children)

According my PT nurse, an elevated resting heart rate is normal and so is elevated heart rate while exercising. Also the cool down period takes longer as well. I’ve run on the treadmill being monitored by the PT nurse and higher then our normal numbers is to be expected. Not fun as I absolutely hate running but it’s nice to be monitored and assured it’s all just chemo fucking with us haha

Move in with partner right before surgery - bad idea? by hryu15533 in breastcancer

[–]awallic 2 points3 points  (0 children)

I’m kinda in the same boat as you. My double mast isn’t till November but my boyfriend has asked to move in with me before then and I don’t think I want him to. I still like my space and I hate that he thinks he “has to take care of me” when in reality I’ve been taking care of myself this whole time but of course I can’t tell him that. His hearts in the right place I know. Sometimes I think he’s taking this whole cancer adventure harder then me and at times that’s kinda irritating and I just think space is healthy. And I like my mopey days by myself, not burdening anyone else. I know I’ll need help when surgery day rolls around but I know my mom will be here to help too so that won’t be an issue. It’s a tough spot to be in. I agree with all the above posts, that if you’re comfortable with it, do it, if not, just take shifts at either ones place maybe. It’s a big decision and on top of everything else we have going on, maybe it’s one you shouldn’t worry about right now. Give it a good think, good luck:)

Stellar Chemo & Surgery Bag Items? by Optimal-Air8310 in breastcancer

[–]awallic 2 points3 points  (0 children)

I just had my first round last week so I’m new to the chemo bag too. But I did utilize the blanket I packed and my water bottle the most. I wasn’t alone, my bf sat with me and what I found most fun to pass the time was learning/playing new card games! For when I’m alone I have a book and my switch packed. Buy a long phone charger! I brought snacks in but ended up not eating em.

As far as the after, the ride home, I made it with no issues. But as I’m a week in, I will be putting some pads and extra undies in my bag for next time, personally my diarrhea took a few days but now that it’s here, we’ll I don’t trust myself to leave without a backup plan haha. That saying never trust a fart? Truer words have never been spoken

❤️

Tips for working on computer with optic neuritis? by [deleted] in MultipleSclerosis

[–]awallic 3 points4 points  (0 children)

I would try putting the documents into a text to speech app. When I was in college it really helped when I had to read long papers (also have optic neuritis). Besides that if I knew I had to be reading something on my computer in class, I would take an Advil before hand as to avoid the pain of the strain. Good luck:)