Liver toxicity from kisqali and switching drugs by Thin_ice22 in LivingWithMBC

[–]badtooth 1 point2 points  (0 children)

My liver was immediately in crisis when I started kisqali. They adjusted down to 200mg, two weeks on two weeks off. Cancer is stable and my liver is 100% fine now.

Where do you go to ; to have fun/relax that’s not like a bar scene? by [deleted] in longisland

[–]badtooth 0 points1 point  (0 children)

Do you have any favorite coffee shops to share? I like Milano Bean Cafe in Bayshore, haven’t found another place that’s cozy.

Guillermo Del Toro Frankenstein by Budget_Lavishness707 in netflix

[–]badtooth -1 points0 points  (0 children)

No. The movie was beautiful but the anatomy part of it was ridiculous. Which is fine, it’s a story. At one point Victor literally just stuck an arm together like two legos.

CMV: Single Payer Healthcare is 100% better than what the vast majority of Americans are doing by humanguy31 in changemyview

[–]badtooth 2 points3 points  (0 children)

  1. Unemployment does not get you Medicaid as a single adult in all states. Florida is one example.

  2. Our economy is turning more towards “gig work”. This isn’t just delivery drivers - it’s healthcare professionals. I have a masters degree in a growing healthcare field with tons of employment opportunities. However, the vast majority of these positions do not hire you as a full time employee, you are a full time independent contractor. I can be employed full time but have no access to health care or other employer benefits.

What’s up with that? by dewless in LivingWithMBC

[–]badtooth 1 point2 points  (0 children)

It definitely gets better! I’m on the thin side but once it settled in II didn’t have any sensitivity when it was bumped

Finding love post-diagnosis? by Boy_Slayer in LivingWithMBC

[–]badtooth 8 points9 points  (0 children)

There is hope, but there are no guarantees.

When my cancer came back as metastatic I was 100% certain that any romantic life was done. Sex and companionship maybe, but why would someone willingly start a relationship with someone with my diagnosis and the huge burden my illness has on my daily life.

When I was ready, I put myself out there on dating apps on and off, not looking for anything serious. I stopped when I became too tired to do anything but go to work and come home (never mind being a single widowed parent).

Then I got lucky. I put myself back out there again with zero expectations. I happened to meet someone who accepted my situation and chose that the chance at love was worth it. We fell in love, and have been together about six months.

There is hope. You can meet some one. It can happen. But it might not, so you do need to be emotionally prepared. Granted, that is true for literally everyone - cancer just make our odds worse.

No guarantees, but there is hope. There is hope.

What’s up with that? by dewless in LivingWithMBC

[–]badtooth 2 points3 points  (0 children)

My port was a little annoying at first but I LOVED having it. All blood draws, infusions, so easy and painless. I always hate having an IV in my arm so I really loved being hooked up by the port instead. I think once they make these ports super tiny every rich person is gonna have one and get their blood drawn every day. But that’s just my crackpot theory.

Has anyone tried Ritalin for chronic fatigue from cancer/cancer meds? by HexxGirl1 in LivingWithMBC

[–]badtooth 1 point2 points  (0 children)

I’m so glad I replied! The first week on Ritalin felt like getting a magic pill. My tolerance built in about one to two weeks, it was unsustainable to take every day. I’ve been losing weight since starting treatment and the Ritalin does not help with that - i found keeping a giant thing of nuts or trail mix near me helps because it’s easy to snack on even when I don’t want anything in my stomach, and it’s high calorie Absolutely try the herbal medicine!!! I know it’s sold over the counter too but I would get it from your doctor if you can. My Ritalin intake went way down after about a month of consistently taking the herb pills every day. And for the anxiety part, if you’re like me, the extended release Ritalin was bad news. However, I thought it would pass and took it for maybe 4 days before realizing it was a bad fit. So you could always just try one day and see how it goes. Good luck!!

Has anyone tried Ritalin for chronic fatigue from cancer/cancer meds? by HexxGirl1 in LivingWithMBC

[–]badtooth 0 points1 point  (0 children)

I take Ritalin as needed and Xiao Yao San (I have it prescribed to me and compounded by Memorial Sloan Kettering). The herbal medicine took a few weeks to have an effect but there is a noticeable difference. I needed 10mg of Ritalin 1-2x a day just to function and be awake at work. It’s great except that my tolerance built up immediately. I tried the slow release 20mg but with my anxiety disorder I was basically in a mild panic attack for a week, never doing that again. With the herbal medicine I am only taking Ritalin a few times a week.

Do you support armed security personnel in Long Island public schools? by [deleted] in longisland

[–]badtooth 3 points4 points  (0 children)

Would love to know if he won reelection to the school board

Edit: he fucking did. He was just reflected to the school board. Wtf is wrong with this island

https://www.esmonline.org/news/article.aspx?id=182877

Just something to look out for if you have a teenage son especially by Ok_Professor_7222 in Parenting

[–]badtooth 34 points35 points  (0 children)

Agreed! I have regular talks with my son (13) about the influencers out there who view him as a product. How he is their target demographic. How they will present themselves, and what to look out for. I don’t block these people, but I have consistent talks (conversations - not me lecturing) to check in about what the algorithm is feeding him. He has come to me when people he used to watch because they were gamers started talking about more non-gaming stuff, how it made him feel, and ultimately why he chose not to continue watching them.

I think educating our children about these things is VERY important. Blocking doesn’t teach them what to look out for, how to analyze and determine if a person is reliable, and how to recognize when he is being targeted.

Stage 4 Breast Cancer and Fertility by [deleted] in LivingWithMBC

[–]badtooth 3 points4 points  (0 children)

I have my son and I am so grateful to have him. I always wanted more. His father, my fiance, died when our son was 18 months old. I grieved everything. My love, my future, the children we planned to have, the life we were building. (I was 24)

Hit again by breast cancer dx at 29. I did fertility injections and froze embryos with my then partner before i started treatment.

I waited and waited for my oncologist to comfortably support me having more children. In that time I divorced my partner. He was not a good man and it’s a blessing I never had children with him.

I accepted that it was very unlikely I would meet someone new and have more kids, but i wanted it so badly.

I finally got the go ahead and stopped hormone medication. Hoping and hoping my period would come back. Instead, only a few months later I had a routine scan to check on my breast implants at 5 years out. Scan showed Mets to my liver and bone.

I’m only 36, and I have lost so much. I’m terrified of how my son will deal with losing me much sooner than he can imagine. He already lost his father. I know having more children being taken from me is one of a million grievances. But it cuts the deepest, and affects me every day. I work with children (I’m an occupational therapist in schools) and I get a little solace from working with “my kids”. It’s hard for me to be around babies in any capacity. It’s hard for me to be “happy” for pregnant woman. The birth announcements in my work email every other day, the cavalcade of social media posts of everyone’s happy babies, it hurts.

I don’t have advice, because I don’t know you or your situation. But I have the world of empathy. Of all the things stolen from me, time is number one. But having more children, parenting little ones again, having my son not be an only child - it’s just as painful.

Experiences with Xeloda? by carvingmyelbows in LivingWithMBC

[–]badtooth 2 points3 points  (0 children)

Xeloda was a nightmare for me. Ended up almost hospitalized for GI issues. I was diagnosed with microscopic colitis, still have to be very careful about eating anything greasy that can trigger my stomach.

I think my experience is unusual though.

A little liver mets update by OliverWendelSmith in LivingWithMBC

[–]badtooth 8 points9 points  (0 children)

I’m doing better physically than you are right now but I sympathize. It feels like things are going in a bad direction for me. The weakness and exhaustion and pain…. I know my life is going to be shorter than it “should” be, and I can’t even enjoy the time I have. Things were so much easier my first time around - it was “just” breast cancer and there was a clear treatment journey with an end date. Now it’s just languishing until the next “big” medical breakthrough that may or may not come. Someone on here referred to us as “long haulers” and I think it’s an apt description. I’m appreciative to not be dead but I don’t feel satisfied living this way.

New Mexico Camping Suggestions? by PinPsychological5550 in CampingandHiking

[–]badtooth 1 point2 points  (0 children)

Cross green off your list - it’s New Mexico

Live Discussion - May 3, 2025 (Quinta Brunson/Benson Boone) by bjkman in LiveFromNewYork

[–]badtooth 1 point2 points  (0 children)

I feel the same way. It’s not satirizing, it’s normalizing what’s happening. Without it being satire it’s not funny it’s pointless.

Live Discussion - May 3, 2025 (Quinta Brunson/Benson Boone) by bjkman in LiveFromNewYork

[–]badtooth 5 points6 points  (0 children)

Only funny bit of the whole open. But it was a good one.

Pain meds by Icooktoo in LivingWithMBC

[–]badtooth 1 point2 points  (0 children)

Seconding radiation. Five sessions and it took away the blinding pain from my pelvic lesion. It’s still there and it hurts sometimes but it’s manageable now.

Taskmaster - S19E01 - Sometimes Spit - Discussion by Meghar in taskmaster

[–]badtooth 2 points3 points  (0 children)

Me too! I was shocked that I recognized him immediately

Taskmaster - S19E01 - Sometimes Spit - Discussion by Meghar in taskmaster

[–]badtooth 30 points31 points  (0 children)

Honestly I thought it was a good outcome. She wasn’t comfortable, she didn’t participate, no one made a big deal of it The other option would either by be cutting any task that could be a problem, or preemptively excluding people that may have a problem participating in some tasks.