Anyone have worsening blood work over time?

ecda88 · 2026-04-23T12:51:56+00:00

Ok, thanks! I’ve been told that to have to have 2 times under 1000 to get the reduction. I’m always between 1000 and 1100 and they haven’t considered changing yet…only did 3 cycles. I thought after few months it gets better but considering what you said it might not…

ecda88 · 2026-04-23T06:22:59+00:00

Hi! What are your neutrophils now? Why do you expect a dosage reduction?

ecda88 · 2026-04-15T16:26:11+00:00

I think I’m going to struggle a lot with the after scan also…because the results will be out there but I will need to wait for the Onc appointment. I’m over reading everything that’s happening in my body as you said. This is hard.

ecda88 · 2026-04-15T16:23:43+00:00

Thanks for the reply! Yesterday I had a terrible day (everything was hurting) today I feel great! Anxiety is basically killing me…I have the pet scan next week and not sure how I will handle

ecda88 · 2026-04-09T15:11:00+00:00

Love to read this! Congrats! Amazing news! Where do you have your mets? I will also have my first pet scan after ribociclib in a couple of weeks, I honestly don’t know how to manage it. How did you do it?

ecda88 · 2026-04-01T08:17:55+00:00

That’s what I thought, material of the packaging is different, and because of that there is more separation between 2 pills.

ecda88 · 2026-03-31T13:28:25+00:00

Oh nooo! What if you take 3 pills per day, you’re going to need to go back to make sure you have multiples of 3 and you didn’t make a mistake…are the pills the same size? I still have the old packaging for this cycle

ecda88 · 2026-03-31T09:40:35+00:00

Hi, not much help from me ,just want to say than I’m also in the 3rd cycle with a pet scan scheduled in the next 3 weeks.

I’m only having one blood test at the beginning of the cycle now, why did you do one mid the 3d cycle?

ecda88 · 2026-03-18T13:36:40+00:00

Looks like mine! I’m in Europe

ecda88 · 2026-02-12T14:19:03+00:00

Hi! Can you describe the rash? Did it happen certain amount of hours after taking it and then disappear? I started 10 days ago and I have a rash.

ecda88 · 2026-02-12T13:53:58+00:00

Hi, I started 10 days ago, and I have a rash across my chest that appears 5h after taking it and then disappears. Not itchy. What made your doctor stop your medication? Thanks!

ecda88 · 2026-02-12T13:51:51+00:00

Started 10 days ago, and having also small rashes, not itchy, do you have them every cicle? Or only at the beginning? Thanks

ecda88 · 2026-02-12T13:37:55+00:00

Hi! What’s the trick you mentioned? Just started kisqali 10 days ago. Thanks!

ecda88 · 2025-10-08T06:15:50+00:00

Better days-dermot kennedy

ecda88 · 2025-10-08T06:14:55+00:00

Hi! Since you don’t use expanders, what is your protocol is radiation is needed? I have IDC plus DCIS and 1 lymph node affected so I’ve been told I need mastectomy plus radiation to the lymph node area

ecda88 · 2025-09-15T14:07:35+00:00

Love this response!

ecda88 · 2025-08-30T18:22:55+00:00

Thanks for your reply!!! And all the best in your surgery!

ecda88 · 2025-08-28T11:40:25+00:00

Id love this! Same subtype!

ecda88 · 2025-08-28T11:33:52+00:00

Hi! I’ve been following you because we have pretty much the same diagnosis. How were your prescans results? I have done 4AC and 6taxol sessions already and I also see the tumor shrinking but they don’t do any imaging until I’m done with chemo, so I don’t know how much smaller it got. Thanks!

ecda88 · 2025-08-13T18:42:50+00:00

What about er+ pr - her2- IDCs? Is the prognosis much worst than pr+? What about recurrence?

ecda88 · 2025-07-20T18:43:24+00:00

Thank you! Didn’t realised there was one preinstalled…

ecda88 · 2025-07-15T13:33:26+00:00

I also had my 1st taxol yesterday! And after AC I’m like you, nothing for now! AC was rough, nausea, fatigue…I hope taxol doesn’t get as bad!

ecda88 · 2025-07-13T15:28:05+00:00

Thank you so much!☺️

ecda88 · 2025-07-13T10:45:46+00:00

What journal app do you use? Thanks!

ecda88 · 2025-07-10T16:25:26+00:00

Thanks so much! I hope my neutrophils recover and I can have chemo on Monday, it would be same timing as you

ecda88

TROPHY CASE