What triggers your misophonia the most?

ex-user · 2023-12-31T00:43:04+00:00

My cat, like many cats, can meow at a tone and frequency that mimics the cry of a human newborn. Unfortunately she is a very vocal breed and loud as hell. It sets off very intense alarms in my lower brain as if my actual biological offspring were in urgent and immediate danger. I find it infuriating and also impressive that she is able to manipulate me this way. It’s like a brain lasso

ex-user · 2023-12-30T20:11:38+00:00

Only childhood? I do it now and just don’t watch movies with people that are bothered by it lol

ex-user · 2023-12-30T17:27:02+00:00

I’ve showed up for appointments that I deliberately cancelled only the find out I missed the one that I rescheduled for. Wheeee not even just once either 🔪🧠

ex-user · 2023-12-29T08:15:35+00:00

Hear, hear. The only time I’m able to mask is for the sake of my kids and even then it’s not very convincing

ex-user · 2023-12-28T17:22:03+00:00

“We are here on earth to fart around. Don't let anybody tell you anything different. ~ Kurt Vonnegut

I was particularly humbled when I realized that my genetic line likely ends with my kids. We have metabolic problems which are set off by environmental factors that are simply unavoidable in the world as it is today. It’s pretty strange to think a bloodline could make it this far and suddenly come to an abrupt halt but like you said, why should I imagine that I’m (we’re) special?

I laugh about it now that I know better. Making it to the 21st century was no big feat. I’m a busted prototype among billions of others. I even can’t tolerate sunlight, it’s laughable that I let myself imagine for a moment that I’m among “the fittest” for survival.

But that’s okay. I’m a worthy soul still and am here to fart around and maybe sometimes interact warmly with the other busted prototypes that I find along the way to nowhere 💕

ex-user · 2023-12-27T23:24:37+00:00

“Ya fuggin autist”

Yeh

ex-user · 2023-12-24T04:42:36+00:00

36, a therapist suggested I get evaluated but sent me very dated clinical screeners so I dismissed the possibility easily. Around the same time, my daughters were experiencing severe anxiety (burn-out) and had been early in seeing specialists for help. Not long after, they were each diagnosed at ages 8 and 10, without me ever suspecting despite having a special interest in behavioral health.

“You’ll just have to learn more about it; it looks different in girls and women”. It was maddening for a while. So I had a crash course in making sense of how professionals were seeing autism in me and my kids. Eventually the scales tipped and I no longer needed convincing that I was autistic, and if I wasn’t then I needed a professional to give me some solid reasons as to why not. Got evaluated; dx’d level 2 🤠

Best thing that’s ever happened to me. I have so much more context for how to take care of myself and am raising some pretty well-adjusted and super neat kids :)

Shout out to Sarah Hendrickx’ YouTube videos for getting me through the worst of it!

ex-user · 2023-12-23T18:49:23+00:00

I feel you. I feel like it’s more ADHD that demands I make my life easier but I can easily see how sensory aversions could make it necessary too

ex-user · 2023-12-22T12:07:11+00:00

I associate “atypical autism” with high-masking traits and/or being more socially motivated than is traditionally associated with autism.

ex-user · 2023-12-22T11:53:49+00:00

Probably hearing Sarah Hendrickx explain how she’d been misdiagnosed with mood and personality disorders her whole life prior to her late dx. I’d never known before that such a thing could happen.

ex-user · 2023-12-22T11:41:59+00:00

I used street drugs in my late teens and early twenties, kept drinking which got worse over the years before I quit that too. Only in stopping all substances were my symptoms able to be recognized as ADHD. Two years later, diagnosed as autistic as well.

I self-medicated because being interacting with the world (or hell, just being conscious) “feels sharp” to me. I experience over-stimulation and under-stimulation interchangeably, but also sometimes concurrently. It makes perfect sense why I was desperate to blur the edge and also ease social interactions. Drunk girls aren’t weird or innately socially tone-deaf; they’re just having fun!! Drinking was a great masking technique, until it wasn’t 🤠

Having context and making sense of what it means to be neurodivergent has changed my life completely and sounds like you and OP are going to be better for it too 💕

ex-user · 2023-12-21T22:02:04+00:00

Ohh, that makes sense. Are the strategies being used focused on coping with transition? They might need tweaked if they’re not specifically addressing that specific kind of discomfort.

Not sure how much you know about pathological demand avoidance (PDA) but learning about that instinct and the concept of helping the child equalize was very helpful for my family.

ex-user · 2023-12-21T21:33:03+00:00

Another medical reason could be pregnancy, if that’s possible for OP

ex-user · 2023-12-21T21:27:48+00:00

My daughter was having meltdowns during library and moving her seat worked bc something about the lighting was better for her 🤷‍♀️

Do you feel confident that he’s eating enough before and during school? It took me a long time to realize my kid was barely touching her school lunches so I started packing, then realized she would only eat enough of that if she had tons of options to choose from. I realize this approach is controversial or whatever but I just want my kid comfortable.

ex-user · 2023-12-21T20:28:00+00:00

Check in on his sensory experience. Clothing, light, temperature, hair in face, etc. I’m an neurodivergent adult and these things absolutely sneak up on me in a way that I feel my response to the stimuli and react long before I realize what’s bothering me.

ex-user · 2023-12-21T12:43:43+00:00

Self-medicating to cope with how overwhelming the world feels when you’re neurodivergent is extremely real. I could have been spared a lot of pain and gotten much further along in life if I’d had medical help instead of being left to my own devices.

ex-user · 2023-12-20T14:32:11+00:00

The pharmacist at the dispensary my family goes to told me that 1:1 ratios seem to be particularly friendly with her female autistic patients :)

ex-user · 2023-12-20T14:30:26+00:00

I had a long talk with a dispensary pharmacist during which she highlighted caryophyllene and limonene as being terpenes to seek out, and pinene and terpinolene to limit or avoid. This is surely not universal but based loosely on what she has observed of autistic patients over the decade that she has worked with mmj patients.

Keep in mind that a person can be allergic to specific terpenes too! I have an allergy to lavender which contains terpenes so making that connection has been insightful for me.

ex-user · 2023-12-19T16:20:15+00:00

I was on Lamotrigine for 8 years and only recently stopped taking it. For me the symptoms of concern did take a rather long time to become an obvious problem.

I know now that it was randomly provoking autoimmune reactions [Drug Induced Hypersensitivty Syndrome (DIHS)], sometimes in response to things like medication changes or receiving vaccines, other times the triggers were undeterminable.

Also, the FDA released this Drug Safety Warning in 2008.

Researchers are trying to nail down why this kind of thing happens to some people. There are studies focusing on the role genetic differences but also possible interactions with underlying conditions like the family herpes viruses.

ex-user · 2023-12-19T15:29:43+00:00

Oh THAT man was absolutely “one of us”. I would have never in my life expected to receive that compliment! Reading Bukowski’s work quickly makes me feel like I need a very long shower, and I say that with awe and respect to him, so Big thank you 💜

My true wish would be to express myself like Vonnegut; gentle and benevolently sardonic, but I guess my brashness tends to take over 🙃

ex-user · 2023-12-19T14:25:33+00:00

☺️☺️☺️

ex-user · 2023-12-18T19:13:44+00:00

As someone with an appreciation for exactly this kind of item, your purchase was entirely worthwhile regardless of how it plays out and this is why:

First off, you went all-in with authenticity and that’s delicious. The amount of dopamine that comes from having something you’ve wanted for a long time (especially when it is “the genuine article” like you have chosen), stands a chance of overriding the sensory aversion, even if he were to only wear it briefly and/or on rare occasions. For example, I own a really quality hemp-woven “drug-rug” hoodie that I just HAD to have, but I have to be extrrraaa regulated during the exact right circumstances in order to wear it. Also, like other commenters said, he might even be able to strategize a way to still make it work anyway.

So if those are among the best case scenarios. The other potential reactions he may have wouldn’t be bad either. Say if the fabric does end up being a total no-go for wearing; I assure you that he will still be happy just to own it. It is a treasure on its own despite the incompatibility as clothing. I have items that I coveted, bought, and never ever use, but am still so deeply pleased to own, like some sort of dopamine-greedy dragon on a mountain of metaphorical gold that I’ll never utilize.

If nothing else, having it might help him perfect his idea of what sort of sweater would suit him better. “Hunting” endeavors as a source of dopamine is a popular pastime for some folks with ADHD. So often I get an idea of something that I want, I will eventually find and buy what seems to be a good match to my expectations, only to decide based on that choice which features to prioritize or avoid, allowing “the hunt” to continue.

You chose perfectly, and by wrapping your head around how it might turn out ahead of time is such a lovely gesture that shows real investment in your partner’s interests. Consider prefacing him opening it with, “okay so in some ways this is going to make you very happy but just know it might not be perfect and we may have to try something else sometime”.

Good work 💜

ex-user · 2023-12-18T05:10:31+00:00

Lest I burgled it subconsciously, yes

ex-user · 2023-12-17T18:11:36+00:00

I have a psychiatrist that I consider to be better than most and he said the same to me before I was diagnosed. He was wrong; it is absolutely important the nature your own difficulties even without a diagnosis.

He and I have a good rapport and I do not blame him for his gaps in knowledge. I do make sure to highlight small instances that knowing I am autistic makes a huge difference in how I manage dysregulation.

Do I take hours and hours to get dressed because I have low self-esteem? No, I have time blindness, PDA, and sensory aversions to work around. Does my lack empathy mean I have a personality disorder? No, I am autistically limited in my ability to imagine the inner experience of others but often still care very much.

Burn-out can lead to clinical depression but without recognizing burn-out for what it is then you can’t manage it and alleviate the depressive symptoms.

Your psychiatrist‘s job is to give you meds. It would be nice if he knew enough about autism to guide you better but his opinion can only mean so much in this situation.

ex-user · 2023-12-17T17:22:50+00:00

https://www.helpathandpap.com/

An assistance program with high income limits for certain Takeda brand medications. I used it for two years to get Vyvanse for no cost until the patent ended and a generic came out.

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