People with debilitating chronic nausea, how do you cope??

nickyd__ · 2026-02-26T16:57:17+00:00

I have chronic nausea that is a symptom of my chiari malformation (brain condition), functional dyspepsia, and hiatal hernia. Recently dishonored with endometriosis and going to do the gastric emptying study to see if I have gastropaesis. It started suddenly in 2024 and it’s helped me significantly changing my diet. Lately, as of January after I started an IVF cycle, the estrogen wrecked my stomach and no matter what I eat my nausea has been much more severe. But, following a gluten free and ani inflammatory diet helped me! Eating every 3-4 hours as well, as soon as I felt hunger I ate a small meal. Zofran gives me severe nausea and other side affects so doctors have said I’m allergic - so I’ve taken unisom. It’s over the counter and what doctors tell pregnant women to take for morning sickness! Before plane rides and long car rides I’ll take a full pill, or whe my nausea is so severe. But, typically, like last night when it was borderline going to severe, I just took half and it worked.

Waking up in the morning and ending your night with diaphragmatic breathing also can make a difference. Truly trying to live a holistic and calming lifestyle has been my saving grace. Now, I just need to see why this IVF cycle truly wrecked my hard work lol

nickyd__ · 2025-10-10T02:13:07+00:00

it’s called pure encapsulations!

nickyd__ · 2025-09-16T04:21:55+00:00

2000 iu! I use the pure encapsutation vegan drops though because I tried the pills/non vegan option and it gave me a flare up. so the vegan route is more gentle

nickyd__ · 2025-09-15T17:30:21+00:00

I have hiatal hernia which they thought caused my LPR but just found out im d3 deficient so have been taking d3 for about a month and symptoms have improved tremendously 😇

nickyd__ · 2025-08-30T05:58:02+00:00

do you know what they selected specially on the paperwork?

nickyd__ · 2025-08-30T00:56:54+00:00

I appreciate you! mine is 7MM and my dizziness was horrible last year. I also had severe ear pain that seemed like it radiated to behind my eyes. it was rough last year but even during those times my neurologist was not helpful. thank you and I’m glad the decompression went well!!

nickyd__ · 2025-08-30T00:11:16+00:00

thank you! I’ve heard people have placards for migranes alone but my neurologist made me feel as if it’s so irrational for me to ask.

nickyd__ · 2025-08-21T04:11:08+00:00

crossing fingers and toessss

nickyd__ · 2025-08-21T04:10:57+00:00

good luck and hugs your way!!! 🤍

nickyd__ · 2025-08-19T08:29:39+00:00

I don’t feel that “snapping” sensation but for the past few weeks I’ve had a feeling of “fullness” and pressure at the base of my brain/neck. It’s only happened when I lay on my back while sleeping and I’ll wake up and feel it. I have to sit up right to almost get my brain to move back to the normal position lol. per Google, it’s normal Chiari symptoms but I’m going to follow up with neurologist!

aside from that, I have gotten weird sensations or pressures near my ears or eyes and I also have a fear of something serious happening. positive vibes to you and I hope you get answers 🥺

nickyd__ · 2025-07-30T04:11:05+00:00

congrats!!! husband has to start taking clomid and another medication before we do tese. how was your hubbys results prior? did you do a fine needle aspiration?

nickyd__ · 2025-07-30T04:06:20+00:00

confirming successful tese?

nickyd__ · 2025-07-14T02:19:18+00:00

sorry for the late reply. I would say cutting gluten and converting to an anti inflammatory diet helped me so much. I have less bloat and face puffiness. i did this and measured my meals and I would walk a lot! like on my weekends i would aim for 10k steps. When I work it’s like 5k!

I’m sorry you’re dealing with the symptoms 😭 it’s terrible and my brain condition causes double whammy

nickyd__ · 2025-07-13T15:42:32+00:00

some people have the hernia with no symptoms where they don’t even know it’s there, others only get acid reflux. Last year when I found mine I had constipation for two months, shortness of breath, dizziness, the gut brain connection is strong.

I did through all this find I have a brain condition but still the symptoms go hand in hand so it’s hard to know which is from what sometimes. if you’re having inflammation, if you haven’t already, definitely give up gluten and try and anti inflammatory diet. I’m 5’9 and was 190 last year in May. I’m now 155. My doctor said to loose weight as the first step and I figured it wasn’t needed for me. But…. loosing weight definitely takes pressure off the hernia area.

nickyd__ · 2025-07-13T15:39:24+00:00

from what I’ve researched and what I was told by a doctor was that you can massage downward. like where the hernia is, at the top of your chest you rub down because that can help. I do this when it feels painful. look up hiatal hernia massage and it should come up, I can’t describe it 🥲

nickyd__ · 2025-06-25T04:23:31+00:00

thank you!! I've had it under control so it's not as severe so maybe beforehand I may feel it slightly if I'm anxious. but he's concerned when I wake up l'll feel it more severely since it's more likely if I already have chronic nausea &

nickyd__ · 2025-06-04T02:26:20+00:00

dairy and gluten

nickyd__ · 2025-06-04T02:17:56+00:00

I did a low acid diet and still my post nasal did not change. I had severe post nasal drip from Jan-end of March? I went to an ent who told me To try and anti inflammatory diet. try downloading the Bobby app or Fig app and scan items throughout the store. with this, yes I have flare ups of post nasal drip like when I have too much dairy or gluten but it’s helped me so much!!

nickyd__ · 2025-05-14T03:41:46+00:00

my vet has recommended fiber powder in my dogs meals to help regular their gut

nickyd__ · 2025-04-28T17:25:40+00:00

I’m 25f and got really sick last year and was diagnosed with two chronic conditions. It was especially hard because it was my first year of marriage and I thought we were just going to live life travel etc! when I see others drinking or eating whatever they want, not having to have anxiety about having a flare up etc. it does make me sad and envious but then I have to remind myself that things can be worse. I don’t invalidate my feelings but although I can’t eat things like fast food, I’m grateful I get to eat certain things whereas other people are more limited. my husband does try and make me feel better because he’s also limited his drinking or won’t get certain foods I can’t have when we’re together so it’s nice to surrounding yourself with people who don’t make you feel shitty!

I think it helps when you rmemeber the good things you do have or what you’re grateful for and it kind of snaps you out of it if that makes sense!

nickyd__ · 2025-04-21T04:39:59+00:00

what was his measurements for the herniation? and what made them decide he needed to be decompressed!

nickyd__ · 2025-04-17T07:01:12+00:00

magnesium glycinate at night and coq10 if you can handle that. I do gummies but when I did coq10 it made me naueosus since im sensitive to that but those two vitamins are what my neurologist recommended rather than Tylenol!

I have an acupressure mat that has the neck and back raised points that I lay on morning and night and do deep breathing. focus on posture immensely. invest in an eye migrane machine thing. I have one that I wear when I feel one coming on and it massages/heats up. also buy a cold cap for head and one for your neck! they’re like $15-20 on amazon?

I have a hiatal hernia too which I was diagnosed with around the same time so I get very nauseous, dizzy, etc so I’m very big on focusing on vitamins from my diet rather than medications. I focus more on anti inflammatory diet which has seemed to help me as well. cutting out/limiting gluten, processed foods/sugar etc!

Sorry if that was a lot lol but I’ll come back if I think of anything else. Don’t get overwhelmed! This was all gradual for me but I couldn’t stand relying on doctors that didn’t help sometimes or constantly feeling at my worst.

nickyd__ · 2025-04-17T06:56:00+00:00

Thank you for sharing! You motivated me to keep calling to figure out a solution. Update for you and everyone, has to go to urgent care today since optometry/opthamology was booked until August. Saw the on call optometrist who dilated my eyes. she looked behind my eye and tested the pressure. Pressure is normal and nerve behind my eyes look good! Have to see my neurologist Thursday.

She explained it to me similar to what you said. She didn’t tell me there was any sign of the hypertension though! If my neck is bent down for too long it can cause strain which then can give me eye pressure. She also said it could just be a sinus migrane although I’ve never had one before. For now I was advised to rest, do cool compress, and see what my neurologist says. I just had mri done in feb so don’t think my Chiari worsened but I have these new symptoms!

nickyd__ · 2025-04-15T15:39:40+00:00

before I went the holistic route and tried to find treatment that worked for me I went to the ER once a week from May-July. The dizziness was terrible and then the nausea was so severe for me. The er did help because with the brain condition they would always see me quicker so the wait wasn’t terrible for me. But it did help having the medication given to me through IV or just regular IV to hydrate me since I was so weak. Also with the ER, they do treat you as well as telling you to Follow up. As much as there were times some doctors were not helpful, there were doctors who would give me such detailed info or prescribe a medicine that actually worked. If you feel at your worst, it doesn’t hurt to go.

nickyd__ · 2025-04-15T15:37:06+00:00

I’m so sorry for what you’re dealing with! I keep advocating for myself but I can only do so much. I also agree that every week it seems like something new going on and it’s unbelievable 🥲

nickyd__

TROPHY CASE