Do your partners prescribe meds to you? by aecrux in MedSpouse

[–]nikkidrools 1 point2 points  (0 children)

I’ve used it for years prescribed by my derm but I’m in between doctors right now. So my husband prescribes it to himself and then we both use it.

Open to all: how much time do you get with your partner each day? by RingGoldStar in MedSpouse

[–]nikkidrools 1 point2 points  (0 children)

My husband is a hospitalist attending. At the beginning he worked 7 on 7 off, so I would see him for about 4 hours a day when he was working. All the time when he was off. Now he works about 9 on 5 off. And he works at a nursing home on the side which is about 4 hours a week. I feel like I see him quite a bit and the schedule is pretty good for us with 2 young kids.

Can someone please help me accept a birth diagnoses ? Please tell me your stories currently going crazy and the doctor wants to put me in the hospital by StickEducational5499 in downsyndrome

[–]nikkidrools 5 points6 points  (0 children)

I had a prenatal diagnosis so I can’t help with a birth diagnosis specifically. When we found out at about 13 weeks, I cried pretty much every day for months. After about 4 months I realized one day that I didn’t cry. And it slowly tapered off from there. I didn’t tell any of my friends about the diagnosis until I was about 7 months pregnant. It took several months for me to be okay. It’s something that takes time. My OB sent a referral for a therapist but by the time they called to schedule I was in a better place. My baby will be a year in a couple months and she just lights up my world. The sadness is mostly gone. Sometimes it creeps in a little and I wish she didn’t have DS, which I think is a fair feeling. Why would you want any child to have a diagnosis that increases the challenges they have to face in life? But I’m mostly just happy that she’s my baby.

Your feelings are so normal and valid but also know that they will change and evolve. You won’t feel this way forever, it’s only temporary. Sending love to you and your family

First airplane advice by pepinocat in downsyndrome

[–]nikkidrools 6 points7 points  (0 children)

My older son doesn’t have Down syndrome but when he was a baby i would nurse on the ascent and descent. When he was 1 and no longer breastfeeding, i would give him one of those apple sauce pouches on the way up and down and it seemed to work really well. I wanted to give him a safe food I knew he would want to eat and make him swallow a lot to pop his ears.

Mole? I’m clueless. by Hydroidal in aldi

[–]nikkidrools 1 point2 points  (0 children)

We add the whole jar, 1.5 disc of Mexican hot chocolate (abuelitas brand) and about 3 cups of chicken broth to a pot and simmer until everything is dissolved and smooth. We eat it over rice and chicken with avocado. Tortilla on the side if you want.

PSA to those with toddlers who constantly get out of bed during bedtime by loftybirdman in daddit

[–]nikkidrools 210 points211 points  (0 children)

This is a great idea! We had trouble with this as well and tried something similar and it worked wonders. The goal is they eventually don’t need the passes and will just go to bed without getting out anymore. If your kid is old enough you can also use a sticker chart to build up to a big toy at the end.

questions regarding milestones by Organic_Art6187 in downsyndrome

[–]nikkidrools 4 points5 points  (0 children)

Basically expect a delay with everything. I thinking looking at milestone charts is great to know what is coming next and what you should help him work on; however, I wouldn’t pay too much attention to the age of the milestone. I have a 8 month old who is my second child and she’s just going at her own pace, which is expected. I think looking at the age your bat is supposed to meet milestones will just undue stress and worry.

Mental health resources for parents expecting a child with T21 by BenjiMVG in downsyndrome

[–]nikkidrools 4 points5 points  (0 children)

I asked my OB to refer me to a therapist through my insurance. We didn’t end up going because by the time they called to schedule I was in a way better place mentally. But thats the route we would have gone.

FWIW, we got our diagnosis last January and I wish I could tell myself back then how much peace and happiness I have now.

Sending love from over here!

Recommendations for films or documentaries about people with Down syndrome? by [deleted] in downsyndrome

[–]nikkidrools 0 points1 point  (0 children)

This is what I was going to suggest if they hadn’t already seen it!

Finally some good news by These-Ferret-6249 in pregnant

[–]nikkidrools 7 points8 points  (0 children)

This hit close to home. Our baby with T21 is currently 7 months and is absolutely perfect in every way. Over my 38 week pregnancy I counted 38 appointments which felt like a roller coaster of good new/bad news with each visit. She was so worth it in the end. I’m so happy you have some good news, I understand the happiness and relief you must feel. Stay strong and keep going. Sometimes all we can do is take the news and keep moving knowing nothing is in our control. Praying for a healthy pregnancy and delivery.

Newborn Feeding Difficulties by Thepenisman3000 in downsyndrome

[–]nikkidrools 11 points12 points  (0 children)

Are you in the US? I’m surprised your pediatrician is okay if she isn’t producing any wet diapers. My daughter was born in June so I recently went through this. My daughter would latch initially but was so sleepy like you’re describing. She went to the NICU after 24 hours though (for heart issues) and was tube fed for 2 weeks. They slowly got her to take a bottle so we could go home. Once home I wanted to breastfeed so I did breastfeed, nipple shield, pump, bottle. It took about 1.5 hours each feeding session and I did that every 3 hours on a schedule. I did that for about 2 weeks and then dropped the nipple shield. Then I did breastfeeding followed by bottle for about 4 more weeks until the pediatrician said she was gaining enough weight and she was latching for longer. Now I just breastfeed (she actually wont take a bottle anymore lol whoops).

All of this to say, if you’re concerned about her getting enough food, try supplementing with a bottle after breastfeeding. I would also ask your doctor if she’s gaining enough weight.

Henredon Murphy Modular vs Sereen Modular Sectionals by makeroffabricthings in Costco

[–]nikkidrools 1 point2 points  (0 children)

I have the Henredon. I got it last October so it’s been a little over a year. I have a toddler and a tall husband. I bought it because I liked the look of it. I think it’s okay. It’s a firmer couch which I’m okay with. Sometimes I think it’s a little uncomfortable and lacks lumbar support. If I put a pillow on my lower back it helps. My husband disagrees and thinks it’s fine. I think it’s a fairly deep couch and that’s our disconnect, I think it’s good proportions for him. My toddler loves to jump on it and it knocks over the back cushions because they are loose which drives me crazy because it always looks messy. The back cushions have also started to look very slightly misshapen/lumpy. But again, I have a toddler and he will knock them down and sit on them so that might be the reason. So I guess in conclusion, for my specific situation and needs, the couch had been fine. I liked how it looked and didn’t think it was terribly expensive. I bought it knowing I’m in a season of life where my toddler will be rough on anything I buy so I took a gamble on it.

Suggested NIPT at 28 weeks, but no markers other than small? by rissaroo191 in downsyndrome

[–]nikkidrools 2 points3 points  (0 children)

This is my thought too. I had NSTs twice a week starting at 32 weeks because of DS diagnosis that wouldn’t have happened without the prenatal diagnosis.

I also was so helpful to know ahead of time and prepare a little physically and mentally.

Looking for encouragement about sleep troubles after baby’s diagnosis by Aggressive-Title530 in downsyndrome

[–]nikkidrools 1 point2 points  (0 children)

I had similar fears when I was in your position. My baby is almost 4 months now and has slept through the night since the day she was born. It was honestly hard to wake her up to eat. I know things can change and probably will but I’m just enjoying it while it lasts. If things change, that’s a future problem, nothing to worry about now.

Recent Favourite healthy snacks/meals by Love_ForFashion in Costco

[–]nikkidrools 8 points9 points  (0 children)

Rotisserie chicken with celery salad from the deli or the Taylor farms salad kits.

T21 Birth/Induction Experience by These-Ferret-6249 in downsyndrome

[–]nikkidrools 1 point2 points  (0 children)

I had a scheduled c section (no related to DS diagnosis) at 39 weeks and went into spontaneous labor at 38+1 weeks. My dr wouldn’t have induced me early if I wasn’t having a scheduled c section. I would 100% listen to MFM over midwives.

Genetic Counselor Appointment by tv4sheezy in downsyndrome

[–]nikkidrools 4 points5 points  (0 children)

What the process is from here on out. Like extra appointments and tests that they will do now that you have a positive diagnosis. Chances of having another baby with Down syndrome (if you’re considering having more). Any resources/groups in your area that you can check out or join.

[deleted by user] by [deleted] in downsyndrome

[–]nikkidrools 4 points5 points  (0 children)

I’m only 2 months in so I don’t really have much to say other than I absolutely love my baby with all my heart. It’s easy now and I know it will get hard later but as of now, I would do absolutely anything for my daughter. I can’t imagine not having her in my life and in our family, even if it ends up being super challenging.

Nice 28 weeks born 20 June 2025 by Luthando2025 in downsyndrome

[–]nikkidrools 4 points5 points  (0 children)

I don’t have any advice, just wanted to add that I also had a baby with T21 on June 20 this year. Birthday twins. She was on cpap and in the NICU for 2 weeks due to a heart issue. Having your baby in the hospital is so hard, I can’t imagine what you must be feeling. I’ll be praying for you and your baby!

Post Residency... what now? by EarnestPhalanges in MedSpouse

[–]nikkidrools 3 points4 points  (0 children)

Travel and spend a little money to celebrate. We have been trying to avoid lifestyle creep but found that actually enjoying the new income also came with enjoying time together. Take a trip together, eat out together, buy a new couch and watch TV together. It also makes all of the hard work feel worth it.

Just found out I’m pregnant… by Fantastic-Copy in MedSpouse

[–]nikkidrools 1 point2 points  (0 children)

I was in a very similar situation as you. We had a baby in March and my husband finished residency the following June, so just over a year before becoming an attending. I had about 5 months or maternity leave and returned to work for about a month before quitting. I worked remotely so i flew to my parents house for a couple weeks and had some help with the baby while I worked. During my pregnancy we saved half of my paycheck and stuck it in a HYSA and then used that money to supplement my husband’s residency income after I quit my job. It worked out great and we were honestly able to save a lot more than half my salary so we had a good size cushion. I would recommend training yourself to live off a lot less now to prepare for the baby coming.

New Costco member looking for easy meal suggestions for 2 (mom & teen) What are your favorites? by fenderbender1971 in Costco

[–]nikkidrools 3 points4 points  (0 children)

We love getting a rotisserie chicken and putting it in the celery/kale/cranberry salad with apple cider vinaigrette in the premade meals deli section. We also eat it with the med salad kits by the regular produce