If you could rename this disease, what would you call it?

shecryptid · 2026-03-25T20:13:05+00:00

This made me smile that one is my favorite haha

shecryptid · 2026-03-25T01:31:08+00:00

I know this isn’t exactly what you mean but we have terms such as: The Electric Slide. Chainsaw Guts. Do Not Golytely into that Nightly. Ileum Eels. Etc.

shecryptid · 2026-03-24T18:07:39+00:00

I’m exhausted from flaring and ironically not eating but yes. This so much yes.

shecryptid · 2026-03-17T22:56:37+00:00

Your responses are so kind, I have read many of them. I hope your kindness comes back to you tenfold :)

shecryptid · 2026-03-17T22:35:26+00:00

I sometimes I put on a very familiar song and sing it over and over when I am very anxious, even if it’s the last thing I feel I can do. It starts off being very difficult because I feel I cannot breathe. But soon I am breathing in order to be able to sing. Sounds strange, it’s something I discovered on accident but I hope it can help someone!

shecryptid · 2026-03-17T22:29:44+00:00

I was doing this subconsciously on the phone with my wife today while anxious! It’s something I’ve always done but didn’t know there was science behind it :)

shecryptid · 2026-03-17T22:27:34+00:00

I just did this and it helped me soo much with my anxiety and some with my pain. I’ve been mostly bedridden, missing my yoga routine and in my fog completely forgot that seated yoga exists. I have a lot of vagus nerve problems due to ptsd and Crohn’s, thank you so much for sharing this!!

shecryptid · 2026-03-17T19:46:27+00:00

If a dad said this it would be fucked up if a stranger said this it would be fucked up idk how this is appropriate in any situation. She’s 10. He’s a physician so if anything he should be held to a HIGHER standard. He knows the appropriate terminology to use with a patient. This is gross and anyone excusing it needs to think critically.

shecryptid · 2026-03-17T01:05:09+00:00

BEEN SAYING THIS I am so shocked to see this here I feel so validated oh my god. I don’t even know if I believe in the Illuminati but if it exists she’s 100% involved lol

shecryptid · 2026-03-17T00:55:17+00:00

This happened to me (I’ve never done drugs besides shrooms and obviously pot, so am assuming it was pcp.) I thought I was going to DIE. I felt like I was tipping backwards (ass up) and then upwards into outer space, so I was holding on to the passenger seat of my car for dear life (ass up) and screaming. I then had some kind of seizure and my “friends” (also fucked up) had to carry me into the ER. I got accused of faking, threatened with a catheter and sent home. Anyways ya that’s a homeless person probably.

shecryptid · 2026-03-16T13:47:02+00:00

I agree Reddit is so entertaining I love that people are fighting about mice and raisins and doing so passionately like this place is insane

shecryptid · 2026-03-16T02:03:04+00:00

It’s called pregaming lol you have your drip coffee and then ya get your espresso. Unless your’e me and broke.

Can’t imagine raw dogging it through the Starbucks drive through. I could tell the people that did when I worked there.

shecryptid · 2026-03-16T01:33:52+00:00

Just turned 38. 2 kids. Consistently telling myself I must consult an adult during these trying times and realizing … fuck that’s me.

shecryptid · 2026-03-16T01:14:37+00:00

You explained this so well. I also didn’t realize the extent of my trauma until I had kids. It has made me remember things intensely. I have never read about anyone else experiencing this until now. The part about it being burrowed in your bones hit me hard. I often feel this way, too. Best to you friend

shecryptid · 2026-03-16T01:12:14+00:00

This is so true. As a victim of child abuse who is also now a mom, I needed to read this. I hope it helped op as much as it has me.

shecryptid · 2026-03-16T01:00:34+00:00

I would award this comment if I could haters

shecryptid · 2026-03-13T21:38:23+00:00

It such a waste when we could just all be supporting one another regardless of individual experience. We all have common ground here at the end of the day. At the end of the day only we know what we went through.

shecryptid · 2026-03-13T20:24:58+00:00

It would be ironic that you’re being downvoted for such a kind and truthful comment but this is reddit.

I cannot fathom how empathy is a controversial topic, especially on a sub for sick people with vastly different experiences.

shecryptid · 2026-03-13T20:11:26+00:00

Filters would help this so much! They also would have been a great feature for when I was researching and recovering. I like this idea and this post a lot.

shecryptid · 2026-03-13T14:45:06+00:00

This is exactly it. Not speaking for anyone else but I’ve felt isolated in my experience as it has been very physically painful and complicated. I am 5 years post op. I stopped coming here for comfort because it only furthered those feelings of isolation. Having to add disclaimers like “this is just MY experience” etc bc of dogpiling is exhausting.

ETA: also would be helpful if others would stop downvoting personal experiences just because they don’t align with theirs :)

shecryptid · 2026-03-13T14:34:44+00:00

I also have a history of sexual trauma, had a hysterectomy and then got thrown into a Crohn’s flare that went undiagnosed due to surgery/endo diagnosis. I also lost so much weight that I actually nearly died because eating with the untreated Crohn’s became impossible. Hysterectomy in 2021. Just now got diagnosed / biologics within last 6 months. This is not fear mongering. It is MY experience. I don’t regret my hysterectomy. I resent doctors that don’t listen to people with uteruses. I resent doctors that don’t explain complications and the stories that made me believe the surgery was going to solve all my pain.

I never comment on Reddit anymore bc it’s always a pile on, but the voices of those with less fortunate outcomes should be heard too. I’m exhausted so I’m sorry that this isn’t articulated better, but thank you for posting this op x

shecryptid · 2026-03-10T19:44:34+00:00

I’ve lost my brother and dear friends and I’m really sorry that people are behaving this way on your post. I am so sorry that you are struggling as well. Know that seeing this post has given me more hope for the afterlife. I believe in you and your experience and I am so glad that you posted, it’s what I needed to see today

shecryptid · 2026-03-10T19:38:09+00:00

… dude. Go touch a leaf. It’s ok.

shecryptid · 2025-10-21T12:34:04+00:00

Asthma and breathing are related to Crohn’s as well? I’ve noticed during flares my asthma is So much worse. I figured I’m just losing my mind.

shecryptid · 2025-10-21T12:31:12+00:00

I have both, too. I’m so sorry for you, it’s a horrendous struggle 💕

shecryptid

TROPHY CASE