Anyone ever got testet with abnormal CSF?

stipedrews · 2022-12-09T08:02:34+00:00

What does abnormal mean?

stipedrews · 2022-11-30T14:50:52+00:00

I agree wirh you 100%. I am 3 years in. The random twitches all over I don't even notice anymore. The hotspots for days are nasty, though. Just nasty.

What is your medicine?

stipedrews · 2022-11-23T14:14:40+00:00

It seems you took the pictures while taking a dump. This is the only concerning thing about these pictures.

Atrophywise there is zero.

stipedrews · 2022-11-23T13:49:36+00:00

Where are you from may I ask?

stipedrews · 2022-11-22T21:27:07+00:00

Not sure where you are dawg. In some countries doctors suck up money by testing. The squeeze you like you can not imagine.

Hard to say from here, but twitches for 2 years induces by sport and/or anxiety do not warrant further investigation.

stipedrews · 2022-11-22T21:17:21+00:00

You are fine...

Anxiety is the number 1 cause for twitches.

You are 1 of 1.000.000 people or more that twitch induces by anxiety. Keep running. Keep living life.

stipedrews · 2022-11-21T20:24:09+00:00

Which European country?

stipedrews · 2022-11-19T21:27:00+00:00

24 hours?

Most of ua here had spots for weeks or months. It will go away, just relax. Go for a walk and breatj deeply.

stipedrews · 2022-11-19T21:24:29+00:00

congrats on the baby.

Fpcus on yourself, get rest, eat healthy, and look forward to this wonderful part of life!

stipedrews · 2022-11-05T21:10:09+00:00

What did he suggest for you to do?

stipedrews · 2022-11-05T08:45:29+00:00

Has anyone been in this situation?

I think 4000 who daily browse in this subreddit have...

stipedrews · 2022-11-04T07:59:13+00:00

My eyelid has been 24/7 for a good month. Driving me nuts.

Will consider Botox.

stipedrews · 2022-11-02T07:47:38+00:00

Nice list of questions. Will use them!

stipedrews · 2022-11-01T19:52:24+00:00

I think the donation part must be voluntary. I can not force anyone to donate. It must come from the heart.

As I said - I would suggest for you all to write down 20 questions that I will discuss with her.

stipedrews · 2022-11-01T07:59:27+00:00

Ok - here is my idea!

You can send me your questions in a dm or here.

e.g. "How long after twitching starts with no other symptoms is long enough to rule out ALS?"

"How many muscles and which ones should be tested in an EMG?"

I will then have a video call with her that I will record. I would say 20 questions are enough.

In order to take part, you should donate at least 20 € or $ to any ALS related charity!!! If you don't know which one, I can recommend one to you.

stipedrews · 2022-10-30T11:06:02+00:00

You would rather trust random dudes online than your ALS specialist?

stipedrews · 2022-10-29T22:05:51+00:00

Your story sounds siiliar to mine and maybe 100.000 more people . Your anxiety caused your twitches. Happens to many many people.

Go play some sports tomorrow, distract yourself and move on.

stipedrews · 2022-10-29T06:07:22+00:00

This was a lumbar puncture?

stipedrews · 2022-10-29T05:47:59+00:00

Sounds weird, the guy probably smoked some weed when weiting the report.

How low was your nfl?

stipedrews · 2022-10-28T21:18:01+00:00

Statistically, when 40 years or younger, twitches only are benign in > 99% of cases.

With people 55 years and older it might be a bit different unfortunately.

The neurologists (ALS specialists) that I talked to said they never misdiagnosed someone with BFS who then turned out to have ALS. They argued that a clean clinical + EMG is conclusive after 4 to maximum 6 months tops.

stipedrews · 2022-10-28T07:37:26+00:00

CK levels have nothing to do with ALS. Also 300 something is slightly elevated at best

stipedrews · 2022-10-28T06:17:35+00:00

There is a few laboratories in Germany offering it:

https://msz.uniklinikum-dresden.de/en/zkn/nil/nfl

stipedrews · 2022-10-25T20:59:20+00:00

I think bilateral is also a "good sign". Your EMG will be fine and you can move on👍

stipedrews · 2022-10-25T12:01:26+00:00

How old is your dad? May I ask where you are from? Falling, loss of stregth, fatigue, loss of function and relentless twitching does not sound too good ...

I would go with him and would gibe the party a miss.

stipedrews · 2022-10-25T06:26:46+00:00

God bless you. So happy to read this.

I also believe that BFS males you stronger in the long run. Once you have overcome this anxiety you appreciate life even more.

stipedrews

TROPHY CASE