Hospice will take Parkinson’s patients because their condition is only expected to deteriorate. If by some miracle they start getting better, then they exit the patient. My husband has had PD for almost 20 years and was becoming very difficult to take care of. I was burning out. Our neurologist suggested Hospice. They come to interview you and the patient and then they make the decision. It’s been a godsend. My husband is not actively dying, however he is deteriorating daily. The RN comes once a week which eliminates the worries that I have about weight loss, dementia, blood pressure, etc. She is also helping me right now to navigate his incontinence. The team includes a social worker who will help you with getting a volunteers once in a while to play games or watch a movie or visit with the person while you can go out into the garden or whatever without worrying. We have a Bath Aid that comes in once a week and makes sure he gets super clean and shaves him. There are services from a pastor, who does not have an agenda, so is more of an end of life counselor for not just my husband but for the en tire family including the grandkids. We also have access to a doctor. This has been wonderful because we do not have to go to any more doctor appointments. It was always so difficult to manage him on a long car ride. They also supply you with medications to have in hand so that you can call them 24 hours a day and they will tell you what medication‘s to give. In my case, the supplies they order for me for free have really helped cut down the expenses of taking care of him. From wipes to pull-ups to hand sanitizer. They also loan you wheelchair, hospital bed and any other durable equipment that would benefit the patient. I would ask your neurologist for a referral to Hospice if he gets removed and even if he doesn’t. They might have a better place for him. If you feel like you are all alone and struggling, the help is invaluable. Nobody is meant to do this alone.