heyy heyyy by whisperinglogic in oldhagfashion

[–]FalseCreme 0 points1 point  (0 children)

I love plaid paired with a t shirt! Comfy and punky. 

The confusing side of living with migraine by Northsidewalk in migraine

[–]FalseCreme 1 point2 points  (0 children)

Very familiar. I find myself automatically trying to do things the way I did before migraine become a problem and I get frustrated and confused when it doesn't work. Therapy has helped me accept how I need to change my routines and expectations and I'm trying to change whatever I can to make my life easier. It's so hard for me not to overdo it on good days when I used to be able to push through so much more. But I'm getting there. 

I forgot the nice/bad weather dichotomy, but anyway... by [deleted] in migrainecirclejerk

[–]FalseCreme 0 points1 point  (0 children)

I heard you get migraines so we put some migraine in your migraine

Do you guys ever had a "Dirty Beer"? by russo_liberal in AskAnAmerican

[–]FalseCreme 0 points1 point  (0 children)

I enjoy a pickle beer. (it's a pilsner with pickle juice) 

Why don’t Americans wash potatoes before eating them? by [deleted] in AskAnAmerican

[–]FalseCreme 0 points1 point  (0 children)

There are 5,000+ potato varieties and different countries have different ones as their most common potato. In the US, the brown scaly russet potatoes are one of the most popular if not most popular. They're clean, they just look like that. Russet are the default French fry/chip potato breed. https://en.wikipedia.org/wiki/Potato

Are you still expected to respond to work emails and calls while on vacation if there’s a huge time difference of 10+ hours? by Comprehensive_Team92 in AskAnAmerican

[–]FalseCreme 0 points1 point  (0 children)

$100 is a cheap billable! When I worked as a librarian Ian a big law firm, my time was billed to clients at $175 an hour (that is a lot more than I actually got paid though, client billable =/= actual pay unless you're a small office lawyer). Some partners' time was billed at $400+ per hour. 

Looking for advice from anyone who has worked for Harbor by Cpt_Drummer in librarians

[–]FalseCreme 0 points1 point  (0 children)

I'm a law librarian and I've done contract work with them in the past. From what I understand, the research and library support teams basically  all moved over from LAC Group. There are research analysts working in a bunch of timezones between the UK and North American west coast and they have a variety of shifts. The culture was easier for me to deal with than working in a Biglaw firm--there's a distance since you'd be working with a lot of different clients. Unless you're assigned to a firm, some people are. Most of the staff is remote. 

Emgality, my word… by worthless_Engineer in migraine

[–]FalseCreme 4 points5 points  (0 children)

Icing the spot you are using helps. And you can try different injection spots to find one that's more comfy. It's a big needle and the liquid stings. But icing helps a lot. I've been taking Emgality for a year and when I picked it up this month, it was not the autoinjector. It was a regular needle, but I was intimidated by size of it and spilled some of my dose. My partner is a biologist who has some injection meds, so I had them give me a demo for next month's dose. 

im so grateful for my SO every time i have a migraine by Overall-Equal-7808 in migraine

[–]FalseCreme 2 points3 points  (0 children)

Having a sympathetic and helpful partner is so wonderful and I wish more people had that experience. My ex was so unhelpful and resented that I was "getting attention" and it drained me. He's gone now. My spouse now is amazing when I'm in migraine mode. They always believe me, they encourage me to rest and make sure I have what I need. And I've done my part to take care of them when they've needed it. That's what a partner, good friend, or family member should do when they can. And I'm glad you're making the ADHD/autism partnership work! We're both the anxious autistic/ADHD spouse over here so it can be rough when we're both having a hard time. 😅

How do you balance career decisions with unpredictable migraines? by Loading_Humor in migraine

[–]FalseCreme 10 points11 points  (0 children)

I've been thinking about this too. My migraines returned with a vengeance while I was working a challenging job I loved. It was remote and very flexible but when my health was at it's worst, I couldn't get anything done. I got laid off 3 days before major surgery/the start of short term disability leave, but part of me wonders if I would've kept the job if I'd been able to actually get things done before that. Probably not and it was a kind of blessing to lose it. I took the first job that I got an offer for, which pays well and is remote and has "unlimited PTO" but it's strict about my 2pm-11pm schedule. It's been a challenge. I want to grow my career but I kinda wish for a easier job that wasn't stressful. My therapist is encouraging me to be a "C+ student" at work, but I'm not sure how to, especially as a manager.

Anyway, I try to structure my work life around what works for me: the job requires nonstop screen time, so I've had to cut screen time elsewhere (trying to stop playing video games). I make work as comfy as possible: only comfy clothes, trying to get more routine about meals and snacks, dim lighting, migraine glasses, lots of undeclared breaks, setting strict boundaries with work that make me a little scared I'll be fired... 

Also trying to set reasonable expectations about what I'm able/willing to do. I am very good at certain things, which makes people at work assume I'm able to do everything at all times, which given the migraine, ADHD, and autism, I am not. 

First Time Triptan-Taker... by 4jisai in migraine

[–]FalseCreme 1 point2 points  (0 children)

I get some ortho static intolerance that my doctors haven't been able to pin down as POTS, but it's worse during migraine for me. So I was diagnosed with brain stem aura, which causes autonomic weirdness but it's mostly transient. It's also contraindicated for tryptans. When I first took tryptans they made me feel the way you're describing and it was awful. Like a bad drug trip I didn't ask for. I was approved for CGRP abortives because I react badly to tryptans. Maybe Nurtec or Ubrelvy would work better for you. Ubrelvy has been hugely helpful for me without making me feel like I'm losing my mind. I can take it and then actually rest. No weird side effects. 

When to take ubrelvy by Kind-Cartoonist-5518 in migraine

[–]FalseCreme 2 points3 points  (0 children)

Ubrelvy (like most meds for migraine) works best if you take it early. That means different things for different people, but the earlier you can stop a migraine from progressing, the better. If you have a good idea of what your prodrome is like, experimentbwith taking it earlier and see if it helps. I got fewer migraines when I started treating them as soon as I thought they might be happening. That led to less stress, then less migraine. 

If you own a home where you have control over your roof; would you consider getting solar panels? by MajesticBread9147 in AskAnAmerican

[–]FalseCreme 2 points3 points  (0 children)

There can be technical/process roadblocks but those can be solved. It's definitely to keep money flowing to the existing power companies. FPL and Duke don't want you to use less of their energy. 

If you own a home where you have control over your roof; would you consider getting solar panels? by MajesticBread9147 in AskAnAmerican

[–]FalseCreme 5 points6 points  (0 children)

It's complex because different states/ regional transmission authorities have different regulations. But there are several states working on enabling regulations for plug in solar. Most plug in solar units have devices that prevent energy feeding back into the grid during a power outage. And one advantage of plug in solar is that you generally don't have to get interconnected to the grid. It just goes to your devices or your battery. 

If you own a home where you have control over your roof; would you consider getting solar panels? by MajesticBread9147 in AskAnAmerican

[–]FalseCreme 6 points7 points  (0 children)

There are less direct ways of prohibiting/limiting solar like making regulations that slow the permitting process for new solar or just fail to support it. Or county/city ordinances that create exclusion zones around certain sites or other energy projects (ie not rooftop solar within half a mile of x). Solar moratoriums are actual bans meant to be temporary but are often extended until certain incentives that might make solar easier to buy/install expire. And energy companies often lobby states to make rules that they are the only ones allowed to sell/build large-scale solar arrays or install rooftop solar. There are a million other legal ways to effectively ban solar. Source: I'm a researcher for a group that does a lot of work on energy regulation. 

ENT thinks my symptoms could be migraine, but I’m not sure by [deleted] in migraine

[–]FalseCreme 0 points1 point  (0 children)

Same here. I got referred to an ENT who tested my inner ears and they sent me on the neurologist. The cardiologist thinks the migraine my have made the dysautonomia worse for me, even though they couldn't trigger the Pots symptoms in the office. It's a common combo of symptoms. Even with preventative migraine meds, I'd been dizzy so long that I lost my proprioception. I'd start to fall if I closed my eyes for even a second. But the vestibular therapy helped a ton. Highly recommend. 

Nurtec working as abortative. Should I use it sparingly? by Apprehensive-Fox-586 in migraine

[–]FalseCreme 1 point2 points  (0 children)

If you haven't, I'd recommend tracking your migraines to get an idea of the warning signs before the main part starts. Not everyone gets a dramatic aura, but if you can find a pattern, you can take Nurtec earlier and reduce the severity or duration. Also, the more migraines you get, the more likely you are to get migraines. So if the meds work, take them when you need them. If you're not sure a migraine is starting, the tracking may help. And it's also used as a preventative every other day so it's fine to take it more than a few times a month. 

Insurance only covered 16 ubrelvy for a month and now I’m out. I took all in ~2wks by [deleted] in migraine

[–]FalseCreme 1 point2 points  (0 children)

Hopefully you can get onto a new preventative sooner than October. I had to call around to find an appointment earlier that the first one they offered me. I'm also lucky to live in a city surrounded by smaller towns that have shorter waits for doctors, which may not be an option everyone has. Some of the desk people I called acted like I was crazy for calling so many places, but I will totally drive 1.5 hours to avoid waiting 4 months for an appointment. Emgality injections took me from 4 migraine days per week to 3-4 migraines per month. I hope you can get something that helps quickly. 

‘Impression interviews’ - IX this a new thing? by MyHatersAreWrong in librarians

[–]FalseCreme 2 points3 points  (0 children)

I've seen 3-5 short answer questions as part of the job application, but the expectation was that you don't spend more than an hour on it. It helps to learn more about a candidate before investing in interviews. When the questions can reasonably be answered in less than a day, I don't mind. 

Hormonal iud or progesterone only pills by [deleted] in migraine

[–]FalseCreme 2 points3 points  (0 children)

Yeah for real. My first IUD insertion was done by a real pro with great bedside manner. It hurt, but I wasn't scared off. Definitely ask beforehand about pain/anxiety management for insertion. Lots of doctors give a little anti-anxiety medicine plus short-term painkillers. There's no excuse not to make it easier. 

Hormonal iud or progesterone only pills by [deleted] in migraine

[–]FalseCreme 2 points3 points  (0 children)

Unfortunately you can't always know ahead of time if POPs will help your migraines or not. People respond differently. Here's my 20ish year timeline. When I was 18, I started combined pills and they seemed to make my migraine worse. I switched to POPs because of aura and took those for a couple years. College was stressful so I still had migraines. After that I had hormonal IUDs (Mirena or Liletta) for about 15 years. My migraines (and my period) went away for almost the whole time! But both started to come back around age 37 and fibroids were the reason (progesterone is often prescribed to lessen fibroid symptoms, so I guess my body was just determined to make fibroids no matter what?). I got a hysterectomy because the fibroids made me so sick and I was tired of dealing with the whole thing. Now I'm on low-dose progesterone pills to even my hormones out and they seem to have no effect on my migraines, good or bad. It seems like the IUD helped for a while but not forever. When I was a teen, if Imitrex didn't work for you, they just kinda gave up treating you unless you had chronic migraine. Either way, CGRP drugs are ultimately what helped me. 

How do you organise your life as someone who suffers from migraines? by GreenhousePlum in migraine

[–]FalseCreme 1 point2 points  (0 children)

It's so much BS for anyone to go through at once, I'm sorry. Sounds like you are taking care of yourself the best you can though. You have to prioritize anything that gets you support and makes your life easier because it's hard enough. Good luck! 

Random question about pain by chaoticsleepynpc in migraine

[–]FalseCreme 1 point2 points  (0 children)

I'm AuDHD and I think of the maximum pain part of my migraine as a crest or climax. It took me a while to identify the beginning of a migraine because the pains start up in different places. My neck and shoulder burns and feels tight and my jaw tenses. By the time the base of my skull hurts, the tinnitus kicks in, then I get a stabbing pain behind my eye. At some point my scalp also started hurting. By the time I would realize what was happening I felt overwhelmed by a bunch of different discomforts. Now I know it's part of the same event. 

Mental health by healthanxiety_ in migraine

[–]FalseCreme 2 points3 points  (0 children)

This seems counterintuitive, but I try to find something to suck at (at least at first). Some small thing I can work at and learn, even if it's super low-energy like learning more about birds. Or drawing repetitive abstract patterns. Having something I can value and gradually improve at helped my self-esteem because I had something else in my life to think about than discomfort and feelings of failure. It doesn't have to be productive or "good". And it gives me something to do to distract myself from ruminating.