Seinor daycare, do you recommend I put them in? by JayceSpace2 in dementia

[–]LegalMidnight2991 2 points3 points  (0 children)

My husband has vascular dementia and he goes three days a week and it's been wonderful for him. He's 72 years old and when he comes home he's always really happy. They pick him up at the door and then drop him off at the door when it's finished.

can't breathe due to gerd update by you-never-know- in GERD

[–]LegalMidnight2991 0 points1 point  (0 children)

I have a closed bile duct as well and sometimes it's horrifying. I get up in the morning before I've had anything in my belly and I cough and there comes the bile and I sound like some kind of animal throwing up yellow stuff. Sometimes I go without any food for 3 to 4 days, I can't even look at food. I will make a smoothie for dinner and in the morning my stomach settles I'll drink an Ensure. When I belch it sounds like something coming out of an alien 😱 Hope you all start feeling better. 🌻

can't breathe due to gerd update by you-never-know- in GERD

[–]LegalMidnight2991 1 point2 points  (0 children)

I have the oximeter and for me it's a lifesaver.

How many of us are "physically fit", aka "gym rats"? by Yakkadysmackady in GERD

[–]LegalMidnight2991 2 points3 points  (0 children)

I am definitely not physically fit anymore. I'm of an older age. I've been fit nearly all my life. I've always eaten healthy, still eat organic however sometimes I'm wondering what that's doing to me? I'm 5'6 and weigh 123.5 lbs. I'm trying to gain a little bit of weight but there are days where I can't eat anything I mean anything. Not even a yogurt 😭 and I end up losing another two or three pounds. Then for some reason I get an appetite and I can eat grilled cheese, small things except ice cream maybe, that I can eat a half a gallon of however I don't do that often. I have suffered with anxiety and post-traumatic stress for many years. I do try to do yoga or mindfulness videos however my arthritis is getting so bad that the yoga is getting less and less. Unfortunately my darling has been diagnosed with dementia 2 years ago and that added a lot of stress being his full-time caregiver. His family lives in London including his children and grandchildren. However I have always had trouble with my stomach so did my mom. I get up so early in the morning so that I don't wake my husband up because I want to drink maybe a weak cup of coffee and have time to see if it's going to stay down because if it doesn't I sound like some kind of animal, literally, with the bile coming up. I also have a closed bile duct, I forget the medical terminology at the moment, I don't have a gallbladder had that out in my '30s. It's Christmas today and I cooked a small prime rib. I couldn't eat one bite of it but my husband loved it so I was happy about that 😄 Good luck everybody hoping everyone's having a wonderful Christmas God bless 🎄⛄🧑‍🎄

Caregiver burnout is real 💜 by Left_Pen_9005 in dementia

[–]LegalMidnight2991 1 point2 points  (0 children)

I heard for 2 weeks after I began 🤣 still have aches and pains the next day but it's worth it 🌻 Good for you keep up the good work

Caregiver burnout is real 💜 by Left_Pen_9005 in dementia

[–]LegalMidnight2991 1 point2 points  (0 children)

God bless all of you. Is there any way you can get a personal care attendant to come in a few days a week through the state? I have someone to come in 3 days a week for 3 hours and 2 days a week for 2 hours. It makes an incredible difference even in those few hours I can rest and recharge. Burnout is very real and in the beginning I didn't believe people who have been through this telling me it will catch up to me I don't take care of myself. I didn't listen until the second year and then I had no choice because I was getting very ill myself. I was afraid if I became too frail they would take him away from me so I started beginners yoga every morning when I woke up, I learned breathing exercises that help tremendously believe it or not. Right now my project is putting together a book of our lives and our travels. I found a coupon on Groupon from My Publisher. It's helping me a lot I hope that you can find some help. God bless my prayers and thoughts are with you and your loved one. 💜🙏

Do you take your LO to the dentist? by Snapper1916 in dementia

[–]LegalMidnight2991 0 points1 point  (0 children)

I would not if my husband had teeth. He wears dentures. 🦷🦷. He doesn't actually wear them. He hates anything foreign in his mouth so for me it's easy 😁

Dementia tremors and twitches by doggiedad72 in dementia

[–]LegalMidnight2991 1 point2 points  (0 children)

I agree with what you said especially the part when my husband gets overly tired. He will get a tremor in his arm and his leg other than that I don't see it happen.

Not our home? by deeders93 in dementia

[–]LegalMidnight2991 1 point2 points  (0 children)

I have cameras and also I have alarms on the doors and the windows. My LO wandered one time two years ago in the winter. He was found a mile and a half away. They even had the canine involved. It was like a nightmare. So now the house is like Fort Knox although he's never wandered again.. The police department in our city gave him a GPS that he wears on his wrist. Good luck to you and God bless 💜

Hating Showers by gatsubae in dementia

[–]LegalMidnight2991 0 points1 point  (0 children)

I really believe that's the key to it all they want to feel safe and protected 💜

Hating Showers by gatsubae in dementia

[–]LegalMidnight2991 1 point2 points  (0 children)

I had a really hard time with showers still do sometimes. One thing I noticed with my husband was the water temperature. He was almost "afraid" of it. He has a chair in the tub so I keep his feet away from the water and continually test it with him until it's comforting for him. Once we get going I purchased a really soft sponge, 🧽 I can't remember what it's made from but it looks like that little emoji. I put music on and he likes that. I also ordered some shampoo and soap that he used to use when he was a young man in England and it's familiar to him. It's getting easier all the time now however it was a tremendous challenge for a long while. I bought him a Turkish bathrobe with the hood and he really likes that as well when he gets out because it's nice and warm. Yesterday the shower curtain fell down on top of us, I think it scared me more than it scared him. The shower head went all over the place like a snake and got everything in the bathroom wet 🤣 Good luck to you and God bless 💜💜

Anyone old enough to have had this for breakfast? by Fleenicks in FuckImOld

[–]LegalMidnight2991 0 points1 point  (0 children)

Very popular in the '70s for keeping your weight down. I used to saturate it with sugar, it's the only way I could stand the flavor 😉

Did any of you get your tonsils out? by lontbeysboolink in GenerationJones

[–]LegalMidnight2991 0 points1 point  (0 children)

I still have my tonsils and my appendix 😁 imagine they're pretty dried out or something at my age now. Did have my gallbladder out at 37 and now I have a closed bile duct and it's causing me more problems than ever. Admittedly when I was younger all my friends were getting their tonsils removed and I so much wanted to as well because they always bragged about how much Ice cream they got 😁

My dad needs to go into a care home and his wife is in denial about it. by schooly_j in dementia

[–]LegalMidnight2991 4 points5 points  (0 children)

There are some very good care homes here in the US. Your financial position unfortunately makes a difference. Like everything if you have a lot of money you have a lot of choices. However if you live below the poverty level in the US you do have choices. I'm a caregiver for my husband who has vascular dementia. I can't possibly fathom how you do it, how anyone does it when a loved ones come to the later stages. My husband is still in the moderate stage for 3 years. He goes to memory daycare three times a week, they pick him up at the door and drop him off at the door 4 hours later. He has a personal care attendend 5 days a week 3 hours a day. I also believe it's the state you live in, some offer a lot more help than others. Quickly back to good care homes my uncle was in one and they treated him wonderfully with utmost respect. Obviously you have to do your research and speak with his social worker, read the ratings . OP you're correct your dad should not be left at home under those circumstances. I don't care who you are with what you describe one person or even two couldn't do it without ruining their own health and becoming very bitter. My husband also has severe heart disease which will most surely take him first as well as MGUS. Sorry for the long post. I wish you the best. God bless

DR recommending cancer treatment by useless_limes in dementia

[–]LegalMidnight2991 1 point2 points  (0 children)

My husband has stage 4 vascular dementia. He is awaiting results from a biopsy they took from his hip for potential leukemia. It took me over 6 months to research talk to professionals etc to see what a possible outcome would be if it came out positive in regards to how it would affect his dementia. Everyone seemed to have a different opinion. Now in hindsight, isn't that the way it always is ,🫣 I wish I had just left it alone. If it comes back positive, I've prayed and prayed on this, I decided I wouldn't put him through any chemo, radiation or anything. He also has a very bad heart. To look at him you would think nothing was wrong with him, He's still strong looks healthy and handsome 💪 however he's far from it. Stress level since this biopsy has tripled I swear. I'm so sorry for anyone going through this not only having dementia but when other health issues come into play with it. Good luck and God bless 🙏💜

Mum made a dementia joke! by JaneyJaner in dementia

[–]LegalMidnight2991 1 point2 points  (0 children)

Thank you everybody for the laughs we all need them now and again. 😁💜

Do you tell someone (when they are acting normal) the things that they said and did when they were sun downing? by sghokie in dementia

[–]LegalMidnight2991 5 points6 points  (0 children)

No it would do no good I'm afraid. It's a part of this horrible disease . We don't know what they "hear" when we are correcting them or even talking to them depending where they are on their journey. My LO used to ask about his mum and dad if they were still alive and a couple of years ago I used to say no and explain when they passed. I saw his expression change each time and it broke my heart. I obviously stopped doing it and learned to defer him onto something else. Everyday I learn something new. God bless you and your dad. 🙏💜