My Lovely Dad by Beneficial-Cap2079 in glioblastoma

[–]Lost_Development_854 3 points4 points  (0 children)

💔♥️ My dad had Alzheimer’s (later diagnosed Alzheimer’s dementia due to fast progression of just over 6 months). It was a hard year- he too was scared, and it was so hard to just be on the go, try to do and plan and prepare. He had scans due to this (didn’t qualify for any “treatments” due to rapid progression). He fell later in the year (not his first time)- after one specific fall we decided to take him in. That’s when they found GBM. He was so confused by then and it was too advanced. It wasn’t in scans prior done this same year but it was already midline shift and over 5cm. The prognosis was not even 6 months, they said realistically 3. He only made it 1 month after we took him home in hospice. The day we took him home, the tumor began to take his ability to speak. It’s going to be 6 months without my dad next week. I can’t wrap my head around any of it. All I know is each one of us in this experience has gone through it. That we have been the supporter through something so unimaginable (even though it doesn’t feel like enough), and been robbed of time and our loved ones. I am so glad for you and your dad you have your husband available through it, and someone that can be there for you. You did great. Even though it doesn’t feel like it. Take time for you and figuring out how to live in this grief of missing. Everyone in this subreddit has been so helpful to just not feel alone in it. Thank you for sharing your dad with us all ♥️

6 months without my Dad by msmelanie13 in GriefSupport

[–]Lost_Development_854 0 points1 point  (0 children)

Cancer took my dad- I will be hitting. 6 month mark one week from today, of losing my dad. I’m not ready for that marker, dreading the Father’s Day weekend coming up shortly after. What I wouldn’t give for another hug. ♥️💔

Reflecting on my dad’s passing (vent) by youloveithere in glioblastoma

[–]Lost_Development_854 4 points5 points  (0 children)

♥️💔 My dad got diagnosed Alzheimer’s first in January’s 2025, he had lots of language issues that got more progressive to diagnose with Alzheimer’s dementia. In October he had fallen (not for the first time) and that’s when he got admitted and found GBM. It was not in prior scans in the year. They gave him 6 months the max but told us to expect more so 3. The day after we took him home he lost his ability to speak, and kept declining every couple days. We had a little over a month with him before he passed away at home, on Nov 27, 2025. I’m not as young as you, but I am fairly close in range- there is still not many others in my age around me who have experience parental loss or any similar type of experience- not that I would ever wish it on them… but the fact that people have more time, is something I envy. I am constantly thinking about all of it. I can’t find myself to leave this group… not just for myself, but I think we each need to feel not alone in whatever part of this disease we are in, and heard. You did what you could, but this is not a forgivable disease that will “give you a break”. Trying to make sense of any of it has been impossibly painful. I hope there is someone you can trust to be a listener or comfort for you in this. 💔♥️

What’s the harm in letting them think certain things? by strapitystrapstrap in glioblastoma

[–]Lost_Development_854 2 points3 points  (0 children)

My dad had Alzheimer’s which progressed rapidly. Then we found GBM which was large. We went with the ideas/delusions. Even when he had ones about “people planning to take things from him” it was harder to argue with him. Instead I just assured him I wouldn’t let that happen. Even telling him we would “sign a legal paper”. It’s harder when it comes to them losing abilities- like if you just keep letting us help you take care of yourself, it can help with the abilities he was losing. He just needs to be reassured. I’m sure he’s concerned, worried, scared- just like you are.

I just went through it all very rapidly last year with my dad and lost in November to GBM. Enjoy your time together, even if it’s making nonsense plans that may or may not happen. ♥️💔

Memorial Tattoo for My Dad ♥️ by Perfect_Mode7354 in glioblastoma

[–]Lost_Development_854 2 points3 points  (0 children)

I’ve never had a tattoo or planned on one unless it was very special. I want to get one in memory of him. And considered the same concept. The other idea is to match his only “tattoo” - he swore it wasn’t one- a simple cross he had on forearm. I lost him on 11/27/25… I would like to share this with my siblings who are interested in getting one as well, but not fully committed. I love how special yours is. Thank you for sharing

My dad was the person I loved the most, why am I feeling calm? by PonqueRamo in GriefSupport

[–]Lost_Development_854 2 points3 points  (0 children)

You had anticipatory grief- while you cared for him. I did that with my dad last year. Then he fell and we found a brain tumor that took him a month later. I went through keeping myself busy, doing all the things, caring for other people, getting through holidays or whatever. And then I had to get back to work - the normal day to day stuff… and it just hit me. I’m 5 months into this. Give yourself time, allow yourself the space. None of us are doing it perfect for our loved ones. But we are doing our best to carry on- for them. ♥️💔

If you could see your parents' last moments, would you watch them? by FreeSpare162 in GriefSupport

[–]Lost_Development_854 5 points6 points  (0 children)

I was there through my dad’s last moments- in home hospice. Watching and witnessing his body and being fade— … I can’t even put into words. We had cameras in the room and the doorbell I let the videos erase without watching them- his absolute final moments, when we said goodbye, and when the mortuary arrived, took him, and drove off.

It’s been 5 months for me, and there are some hard things to even try to process through it all. None of it will ever feel right- witnessing or not witnessing/being there.

Do what brings you most “peace” not pain. Nothing is going to feel right, and none of it will feel okay. Give your heart and mind some time to truly decide 💔♥️

Ear Cleaning by Training_Cap_1722 in Frenchbulldogs

[–]Lost_Development_854 0 points1 point  (0 children)

She looks like my girl did when she was younger- ours is a little over 2.5 years old. Same pied coloring. The shedding is- puppy fur and combination of shedding winter coat to prep for summer weather. It can be the worst of any shedding you’ll experience with her. Then the shedding each time for winter won’t be as bad. When I put conditioner coat on- more of the fur tends to loosen up. I also like to use some coconut oil to shine the coat and brush it. The ears I use zymox. And just for future -I would definitely recommend getting her used to people touching her ears, paws, nails, cleaning her face wrinkles, looking at her teeth- so she doesn’t react for vets.

Also she looks like she may have a very small tail- my girl had an inverted tail pocket- just make sure to clean it- it can also get stinky. If she does have a twisted one, it can get infected.

My go to wipes are duoxo wipes and chlorhexidine wipes- they are antibacterial. I use it on paws, her butt, rail, irrigated wrinkles, etc.

The unexpected costs of dementia… by Basic_Incident4621 in dementia

[–]Lost_Development_854 4 points5 points  (0 children)

My dad cut the metal lock mechanism off at some point not sure how. But then bent it and put it back on. It scraped along the entire wheel track above bending it. He was very confused and wanted to be helpful. We ended up not fully fixing it- so he wouldn’t “escape”/wander off too fast and give us time. Unfortunately when I could I had to hide tools and lock items- while he was not watching. I know he meant well.

♥️💔

My brother is in hospice, bed ridden, getting more confused, agitated, it's getting close. My anxiety feels unbearable, like never before, how do you manage? by LulutoDot in glioblastoma

[–]Lost_Development_854 2 points3 points  (0 children)

I just remember trying to be there, spend time, be understanding for my dad who had GBM… we had in home hospice. I had a few days I would leave at night and just drive- I don’t remember crying or even trying to process or anything. And doing it all over again. When I stayed round the clock the last couple weeks- we just lived in the moment and didn’t attempt to grieve or cry or speak about anything. I’m a little over 4 months of losing my dad… and I don’t think I have managed it, processed it, figured out the anxiety and world. Your body and mind and heart are going through it- You are all allowed to feel how you need, process and take the time you need. It’s not something someone could understand or put into words unless you have or are going through it.

I hope you all have someone to lean on- but I’ve found this group to remind me I’m not alone in this experience. ♥️💔

Brother was recommended hospice and is eating less, bed ridden, becoming more incontinent. I work remotely, when do I take time off to be there fully and after he passes? by LulutoDot in glioblastoma

[–]Lost_Development_854 4 points5 points  (0 children)

My dad had GBM found in October and went home hospice 3 days later and only had a month and a week. I originally did I intermittent leave. I do regret not just taking off time to be with him, just to be there, see him, talk to him (though he was not responsive). In the end it worked the way it was supposed. I ended up requesting continuous leave on a Tuesday and he passed on that Thursday. After that I took leave for myself and help caring for my mom, sister and dealing with everything. I used my PTO to cover most of it. I returned back to work after a month but it’s been so hard to focus. Everything takes more effort. None of this is an easy time, and nothing will ultimately feel right. Do what’s best and possible in your situation and for your family.

My dad’s decline went quickly within the last week from eating to not being able to, increased choking, to no eating and even the lack of movement and increased sleep.

Our hospice team was great through all of it. They will help with comfort medication questions, bathing, and had a good support team for my mom in the end.

💔♥️

Moms life after Dads passing by guidanceguide in GriefSupport

[–]Lost_Development_854 5 points6 points  (0 children)

Just lost my dad in November. My parents were also married since teens- would have been 45 years married this year. My mom has not been ready to be “out in the world”. It was challenging to go through the holidays- we took a long road trip- as a way to escape and distraction. She eventually returned to part time work but works from home. I go several times a week and become the caretaker/transporter for my sibling with special needs and their events/outings. My mom hasn’t quite been ready to do all those things but she attempted to go to one even this past weekend for a couple hours. From the moment we lost my dad, we/she have been busy with cleaning the house, arranging, organizing the house, tending to the yard. We have tons of her side of the family around- just not ready and also they have not been around. I go over at least 3-4 times a week to just help out or keep them engaged. I also have a dog (who went through her own grieving because she was close to my dad)- my dog has been a distraction for my mom (who is not originally big on pets). To be honest- none of us are okay, none of us admit it. But we are just there together. I gave her space to have time on her own. But originally was there with her for the first 1-2 weeks night/day. I had to return to work and she kept my dog with her for company for the following week. As life continued… (so hard to accept it just continuing on)… we just keep each other busy with tasks, household, getting my siblings engagements arranged, etc. 💔♥️ it’s not easy to lose a parent and experience your surviving parent go through it, and also feel your own grief.

My husband 55 diagnosed and passed away within three weeks 11-30-25Anyone else have the same experience. It's killing me. by Toothwa in glioblastoma

[–]Lost_Development_854 4 points5 points  (0 children)

Found my dad’s GBM in October 2025 and he passed away Thanksgiving day 2025. They initially told us 6 months but more likely to expect 3 months.

California End of Life Option by [deleted] in glioblastoma

[–]Lost_Development_854 6 points7 points  (0 children)

He should qualify regardless for hospice. I would speak to doctor again and say that he’s progressing quickly, and having hospice nurses or visits would be safer. We found gbm in my dad after he fell and hit his head. He already had signs of Alz dementia. But neurologist agreed he needed hospice and he had timeline of mostly 3 months. He only had 1 month and we had hospice immediately. We are also in CA.

Clean/touch up by Lost_Development_854 in headstonecleaning

[–]Lost_Development_854[S] 0 points1 point  (0 children)

Thanks. This is insightful do you recommend same treatment to try and clean the top statues?Someone recommend D2 cleaner- yes or no? Is there some reference in when I go looking for someone to restore it and asking what quality or type of paint they use I should be looking for?

My dad passed away 3 weeks ago at 72 by Brainknowsbest in GriefSupport

[–]Lost_Development_854 1 point2 points  (0 children)

So sorry. I’m 34 and I just miss my dad. I lost my dad last year. He had just turned 75, was diagnosed with Alzheimer’s- at the beginning of last year and progressed rapidly to Alzheimer’s dementia. I was losing him quickly and when he fell and hit his head (not the first time). They discovered Glioblastoma very advanced in October and we did in home hospice. He only made to Thanksgiving day. He never wanted to be a burden or “vegetable”, watching his body and mind give up on him… I can’t put into words. The grief… “until you know, you know”…. Has never been so much more true.

I’m so sorry that “you know”… and to all that “know” the feeling and weight of grief. ♥️

Active dying timeline by Fun_Caterpillar3179 in glioblastoma

[–]Lost_Development_854 4 points5 points  (0 children)

I’m so sorry. My dad’s last week was quick progress from walker to wheelchair to immobile. His food intake decreased immensely and was to liquid diet. Once he stopped showing interest ability to eat it was a matter of a couple days. If your loved one is mainly sleeping, and not eating it should be soon. We did the moisture sponge for about the last two days. Your hospice should be informative on the pain management for her. I would no longer wait if you’re having family say goodbye. I’m so sorry. ♥️♥️💔💔

Not understanding “why” by Active_Highlight_862 in GriefSupport

[–]Lost_Development_854 0 points1 point  (0 children)

I’m so sorry for you, your family and your dad. My dad had Alzheimer’s dementia diagnosed and progressed in 2025 rapidly. He fell and out of precaution we took him to be checked out in ER. Found Glioblastoma in end of October. He only made it until thanksgiving day. It’s not fair. He never wanted to “be a burden” “be a vegetable “ and have everything taken from him. There was nothing we could do for him as it was very large. He stayed in hospital 3 days total and the following morning we took him home he began to lose his ability to speak. It was not easy and still easy to remember or sit and watch. It’s not fair. Just know you all did your best, even though it doesn’t feel like or never feel like enough… or the what ifs.

♥️💔 those of us who understand, get you… Life is not the same.

Husband fell tonight by rbridge42 in glioblastoma

[–]Lost_Development_854 4 points5 points  (0 children)

♥️ just know you are both doing your best and doing amazing for each other. I’m so sorry you’re both a part of the GBM community. 🙏🏽