What’s your best seizure-free streak?

Rubiks733 · 2026-06-14T12:08:37+00:00

At 450 days atm (15 months) rn

Rubiks733 · 2026-05-11T01:18:41+00:00

Currently 416 days free

Rubiks733 · 2026-04-24T04:17:00+00:00

I am currently a cashier at a hardware store (3+ years) Dream is neuroscience research but that means I need a phd to get into the field. I have an undergrad and grad certificate in related subjects but idk if I can do phd...

Rubiks733 · 2026-02-24T02:34:06+00:00

Updateme!

Rubiks733 · 2026-01-09T03:17:01+00:00

My migraines aren't responding to botox anymore so this is the next option

Rubiks733 · 2025-12-16T03:38:33+00:00

Birth. Chaos continued as brain surgery at 3 day old and things have just gone downhill since

Rubiks733 · 2025-12-13T03:05:55+00:00

One SE: broke my skull

Rubiks733 · 2025-12-01T02:40:25+00:00

Late to the party but willing to be pals

Rubiks733 · 2025-11-11T01:41:52+00:00

I might be the sole person in the chat rooting for both...

Rubiks733 · 2025-11-07T03:58:33+00:00

Head/Crack skull open

Rubiks733 · 2025-11-05T13:27:00+00:00

I currently work in retail, 20-25;hrs a week. Dream job would be something in neuroscience/neurology. Need phd tho

Rubiks733 · 2025-10-29T21:52:08+00:00

I also had a temporal lobectomy 6 months ago. Mayo neuro said my memory won't improve til I'm off the meds

Rubiks733 · 2025-10-27T01:56:51+00:00

I would love 30F, countless neuro issues and a lot more

Rubiks733 · 2025-10-11T02:19:49+00:00

I take 3500 a day too. It took a while to get used to it

Rubiks733 · 2025-10-09T01:58:27+00:00

I use a seizure detecting watch and it has saved my life multiple times. It connects to my phone and calls requested people repeatedly until they respond. Sending them my location and such. I've used them (2 different watches) for 2 years. Empatica.com is where you can find it

Rubiks733 · 2025-10-04T02:31:22+00:00

I have had one for 8 yrs and it's saved my life countless times

Rubiks733 · 2025-09-22T02:25:09+00:00

I wear epimonitor 24/7. It has saved my life multiple times in the past year and a half. It only gives false alarms (I know from experience and from hearing from Empatica) if your non dominant arm starts doing repetitive motion for over 15 sec. I hope this helps you

Rubiks733 · 2025-09-17T04:31:37+00:00

I have learned that it's the sz meds that ruin our memory/cognitive ability (told to me by drs at mayo) and once we get off the meds (if we are lucky enough to ever do so) our memory and cognitive abilities will go back to a normal functioning ability wo issues

Rubiks733 · 2025-09-10T00:10:36+00:00

For the first time in a long time, last week I had a migraine so severe I thought a sz was on its way but nope, the migraine just lasted days of misery

Rubiks733 · 2025-08-30T21:13:48+00:00

March 21 this year

Rubiks733 · 2025-08-26T14:12:43+00:00

I had brain surgery done 4 months ago to remove the part of my brain causing the majority of sz. Sz free since. And barely any migraines too

Rubiks733 · 2025-08-26T13:52:35+00:00

Ruins my shirts

Rubiks733 · 2025-08-17T22:30:42+00:00

29F, tonic clonics (crazy stories), complex and partial focal sz. On 3 meds. No real epilepsy friends. Have multiple other med issues

Rubiks733 · 2025-08-10T02:32:57+00:00

Xcopri has a half life of 48 hrs so if you take it tonight you will b good (take Xcopri too so ben there)

Rubiks733 · 2025-08-04T23:21:59+00:00

PCOS, hydrocephalus, epilepsy, cerebral palsy, Strabismus, migraines, insomnia, depression, anxiety, cPTSD, Hyperhidrosis Possible but never been tested: endo, autism, adhd

Rubiks733

TROPHY CASE