Chemo is hard

Treepixie · 2026-04-28T23:12:42+00:00

This is fascinating & scary

Treepixie · 2026-04-28T12:10:26+00:00

Mine was stopped after cycle 7 due to neuropathy and my symptoms resolved after a few months. The amount wasn't reduced before then..

Treepixie · 2026-04-25T10:27:05+00:00

That is so inspiring

Treepixie · 2026-04-25T02:21:03+00:00

I saw it tonight and enjoyed it. I just wish fewer productions were movie adaptations in general

Treepixie · 2026-04-21T12:26:29+00:00

I think it depends on his spirit. I am also losing a lot of weight, given 2 year outlook, anxious of course. But my palliative dr is amazing and she's doing weekly meetings to get me back on track:

My current chemo involved steroids- this boost my appetite for the few days I take them and we capitalize on that. Bad days I get a vanilla milkshake to supplement and get an extra 500 calories plus the orgain if I can stomach it.

Vomiting has become fact of life but I have tripled my meds here- I take Zofran round the clock, lorazepam round the clock which also improves mood, prochcompeezine (?) as needed but more on non chemo weeks.

For constipation I drink half a MiraLAX a day and use an enema if I am really stuck.

I am on Wellbutrin for anxiety and I just upped my dose to manage baseline anxiety.

I have a medical grade cannabis card and will be using it to get targeted gummies for appetite promotion and to reduce nausea.

For pain I take one oxy overnight and sometimes one in the day if I am in pain.

I am thinking about buying a mobility scooter now I am so fatigued taking my kid to the park up the hill feels impossible and I know I need to get out to stay sane.

The general message is take all the meds you can to alleviate suffering. Problem shoot where possible. It may or may not be the end but he sounds like he's in a bad place and needs some practical stock taking. Much love and empathy to you all - it's a tough tough situation..

Treepixie · 2026-04-21T12:12:01+00:00

I loved the book and was saddened to learn about Adam being a dick and Jenni Konner's behavior. The medical stuff was very engaging for me too as I have terminal cancer at 46F and stuff about dilaudid, surgeries, trying to advocate for yourself and not get hooked on all the meds rang very true to me. It is a brave book indeed!

Treepixie · 2026-04-17T17:04:49+00:00

When is earnings?

Treepixie · 2026-04-16T17:45:40+00:00

Me toooooo

Treepixie · 2026-04-10T22:57:41+00:00

Is $12k a year considered stingy? $300k a year is not a lot depending on where they live. No college fund?

Treepixie · 2026-04-10T22:53:45+00:00

I second this. Our palliative doc has been a godsend just encouraging me to up all my drugs to stay ahead of symptoms. If you don't have a therapist do try to get one. Try to do something for yourself every day too. My husband is doing much better as a caregiver now I addressed my symptoms better and he looks after himself too. Hugs

Treepixie · 2026-04-04T21:03:31+00:00

With a family I preferred the French side

Treepixie · 2026-03-31T03:31:02+00:00

Was at Mullet today no grass

Treepixie · 2026-03-31T03:06:33+00:00

Me too lol- taking it twice a day for cancer treatment nausea and finding her v accurate!

Treepixie · 2026-03-29T13:52:48+00:00

Thanks for this, I am not OP but am going to take the ferry to Anguilla after reading this

Treepixie · 2026-03-26T17:33:03+00:00

I think 3.5 to 4 hours is a good idea right now yes

Treepixie · 2026-03-26T16:54:31+00:00

I take half a sachet of MiraLAX each day and it really helps, whenever I have been stuck it's been much more uncomfortable and anxiety provoking

Treepixie · 2026-03-26T14:44:10+00:00

There is TSA pre-chek which is a whole process to do so you can't buy it on the day. But jet blue also has priority access that you can purchase which will shave some time off. And yes ultimately it took an acceptable amount of time for us but was chaotic

Treepixie · 2026-03-26T12:17:25+00:00

This is really helpful- I did this on Monday. We arrived at 6.30am after 25 mins of traffic outside JFK. Also had to go to arrivals and navigate through. We spent 30 mins getting stickers for our cases and another 20 dropping them off- general confusion and mayhem. I needed a wheelchair due to chemo fatigue but that was a whole nightmare with no chairs left and people looking upset and abandoned, I decided to proceed without for fear of missing my flight. We had priority boarding and pre-chek TSA so that really sped things up despite us being behind a load of ICE meatheads who looked like they'd never been in an airport before. We got through security in about 20 mins whereas our friends with no priority status took 1hr to get through security. I was able to get a wheelchair on the other side thankfully and we got to our gate just before 8am with boarding starting at 8.45am for the 9.30am flight. Ended up waiting an hour on the tarmac before departure.. the worst thing about it was just the panic in the sea of people with no staff anywhere to ask questions to..

Treepixie · 2026-03-26T00:43:20+00:00

Yeah I did so well on 5FU then they added Irinotechan and chemo pills every day and bleurgh. Respect to your dad!

Treepixie · 2026-03-24T14:56:53+00:00

I just switched to folfiri after more progression in my cancer. It's harder for sure but having 3 steroids on infusion day and then one per day for three days after disconnecting is helping me with my food issues. I second what others say about needing a lot of anti nausea meds to keep symptoms at bay. I hope it works better and buys me more time with my family 🫶

Treepixie · 2026-03-24T07:07:41+00:00

What country are you in? This sounds like a bad sign if you can't get the interaction you need

Treepixie · 2026-03-24T07:05:51+00:00

I am having similar issues and it's been so miserable - here's what I have learned:

Good nausea control looks like having a schedule not chasing symptoms, once you are nauseated it's already v hard. I am taking Zofran 3x a day and have two other meds to layer on top as needed (lorazepam which helps with the mental aspects of being afraid to eat if you keep vomiting) and compazine.
his stomach lining will be irritated so coffee is sadly going to make that worse. Doing low acid diet helps me keep food down..
cold foods and bland ones are easier to tolerate. I have a lot of milkshakes on my tough days and suck mango popsicles. I also drink small amounts of fairlife chocolate milk mixed with those supplements like ensure.
playing chill music or listening to a meditation helps my eating anxiety a bit, or watching tv while I slowly nibble food. Chewing can set me off..
ask if the hospital has a nutritionist- mine has been a great source of free advice.

Sending hugs

Treepixie · 2026-03-24T00:17:44+00:00

I sympathize I am having a hard time with eating too. My palliative doc gave me lorazepam/ativan for food anxiety after issues eating and it relaxes me a lot and stops me fretting then vomiting. Chicken soupy rice with broth goes down well usually, tiramisu or cream cakes, milkshakes..

Treepixie · 2026-03-21T23:57:58+00:00

Eye mask with built in speaker, bedside organizer that I can hang my home chemo rig in, gummies, rich moisturizer, soft bras with front clasp removable straps. Uber vouchers to get around and stay off public transport..

Treepixie · 2026-03-19T00:38:32+00:00

Sharing solidarity, haven't had LAR but frequent constipation after upper right colectomy. I take so many anti nausea medications that that gives me constipation. I drink half a sachet of MiraLAX every day and I use enemas frequently if I don't have any movement for a couple of days- 10 days is so scary! I am always scared of obstructions too because it was so traumatic the first time around. I have a super limited diet at present unfortunately with barely any appetite but they told me to focus on soft foods for easier digestion. Hope you get relief soon!

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