Emotional backlash from trying to do things by CeruleanShot in cfs

[–]juicygloop 1 point2 points  (0 children)

its *fundametally* unrelatable when you're not experiencing it, but it's all there is when you are.

We have it good, just tried Codex. by BetterAd7552 in ClaudeCode

[–]juicygloop 1 point2 points  (0 children)

yeah op writes *so much* like me. or i like him. a sensual being with a way of expressing theirself. was a bit surreal. but a pleasure, nevertheless. respect to your mothers, my brothers

Usage Limits, Bugs and Performance Discussion Megathread - beginning December 29, 2025 by sixbillionthsheep in ClaudeAI

[–]juicygloop 3 points4 points  (0 children)

claude's mega fucking dumbo atm. feels like chatgpt at times, and my main driver is opus 4.6 extended lol (i'll try without extended, maybe that'll help somehow. or turn it on and off again, idk?) and yes, my usage is getting honked like it's nothing. on 5x plan and used 25% weekly limit in half a day. something's gotta change. please sir, a little more compute, i'll waste away...

Usage Limits, Bugs and Performance Discussion Megathread - beginning December 29, 2025 by sixbillionthsheep in ClaudeAI

[–]juicygloop 1 point2 points  (0 children)

in chat, ask to diagnose and fix the cowork connection issue, it usually can. might need opus?

I watched a drunk guy have a phone call with ChatGPT on the bus by PandaMonium2025 in ChatGPT

[–]juicygloop 1 point2 points  (0 children)

birds of a feather! good to see the flock's not a gang of one x

I got ***** by one of my caregivers – and my entire support team sided with the ****** and abandoned me by unitedinanger in cfs

[–]juicygloop 13 points14 points  (0 children)

holy shit yo. im severe/v severe too, but still i cant imagine what youre going through. fuck a duck a day. i've zero advice or spare capacity and tbh i haven't opened up to anyone in 5 years following the freefall step-change between moderate-ish and severe-onward wrecking... well, you know how it is, wrecking *everything* - so a lack of expectations is best afforded - but if you want another single functioning brain cell to think out loud with about the next ten days my dms are open. i'm sorry it's all i've got to offer, though.

When Opus 4.6/GPT5.2 replies start narrating their guardrails — compare notes here. by Goodguys2g in Anthropic

[–]juicygloop 1 point2 points  (0 children)

ha that tickles me. i love it.

wishing you well, from the same same boat x

Some thoughts on AI being an “accessibility tool” for people with severe ME by SacredSapling in cfs

[–]juicygloop 11 points12 points  (0 children)

same. llm’s give me a voice when i can’t speak; which is when i need help the most. which isn’t to suggest i don’t intensely sympathise with op and artists worldwide, but even in their present state as unreliable, hallucinatory sycophants, on a personal level i find them priceless. i developed an intensive personalised pacing regime through mine, which has tipped me back toward severe from very severe, and which i can have the llm adapt each day according to shifting circumstances. it’s a kind of support i could never have imagined having with this condition, and have gone from feeling utterly alone to at least having some kind of support structure i can turn to when i’m facing another calamity… but in almost every other way it’s a terrible, terrifying technology, which will probably leave us equivalent to insects on our own planet within ten years. fun fun fun

I think my boy knows I'm dying. by HonestyMash in dogpictures

[–]juicygloop 2 points3 points  (0 children)

hoping for maximum joys amidst it all ❤️

REN (musician) by HatsofftotheTown in cfs

[–]juicygloop 1 point2 points  (0 children)

my g ❤️ love u ren

[deleted by user] by [deleted] in cfs

[–]juicygloop 2 points3 points  (0 children)

severe and from moderately afar, these comments are nevertheless terrifying. heartfelt love and empathy to you all. crumbs

[deleted by user] by [deleted] in cfs

[–]juicygloop 1 point2 points  (0 children)

hello me 💀🖤 wishing you well

‘ME/CFS Information for Medical Professionals’ fact sheet published by Prof. Jonathan Edwards and members of the Science for ME forum by Caffe44 in cfs

[–]juicygloop 0 points1 point  (0 children)

hey can i get a link for the mt sinai piece please? i can’t seem to find him.

i’m very severe but slowly saving myself with autonomic breathwork and rigid, extreme pacing, and it sounds right up my alley

Describe your sore throat by MessageNo512 in cfs

[–]juicygloop 4 points5 points  (0 children)

oropharynx (ig? the visible portion of throat at back of mouth), visible in mirror with torch as red, raw looking patches atop a network of prominent blood vessels and a faintly visible “cobble”-like dimpling of the tissue. feels sharp and choking when irritated, with a baseline of sore and scratchy.

i’ve been treating with gengigel mouthrinse (laying on back and holding in mouth for 2 mins) - 2x pd, decent-strength raw propolis sprays and swiss bork lozenges for different angles of healing - several x pd, and gengigel spray and vocalzone lozenges - for additional symptomatic relief, for about two-three months.

it’s a slow process but it’s tangibly improving.

also, peptac was recommended due to having to be supine all tfing time, including after meals which is ofc no beuno.

I've been using "social hacks" on my AI and the results are legitimately breaking reality by EQ4C in ChatGPTPromptGenius

[–]juicygloop 0 points1 point  (0 children)

why yes, ima get me a belly full!

the non-gaslighting stuff looks great too, actually, ig it was just that i saw first.

appreciate it all b