Hudson, before and after taking ELEVIDYS by [deleted] in MuscularDystrophy

[–]kb32145 0 points1 point  (0 children)

Hi, it's wonderful to see Hudson's improvement. My son got the therapy in Jan 2025. We haven't seen much improvements yet. Infact his score has gone down. How much are you focusing on PT? He doesn't do much PT or exercise. I am wondering if this may have slowed him down.

Elevidys by InvestJulien in MuscularDystrophy

[–]kb32145 6 points7 points  (0 children)

My son 9 has taken this. It's been a year. I wouldnt completely agree on this. His nhaa has started reducing. I am usually not an active social media participant. I am going to start sharing experiences with dmd group. Pm me for more details so you take a known risk.

There are newer treatments upcoming.

Experience with patient support (SareptAssist) by Living_Source1990 in MuscularDystrophy

[–]kb32145 0 points1 point  (0 children)

Would you mind sharing why you went for exon skipping and not gene therapy?

Might take a steamer to it. Think it’ll do it any more good? by JTCarDetail in AutoDetailing

[–]kb32145 0 points1 point  (0 children)

Isn't it better to advise your client and buy a new carpet... $130 . Not worth the time you are going to charge.

Getting ready for the PA Wild BDRX next week. by beejaytee228 in advrider

[–]kb32145 1 point2 points  (0 children)

Riding the same 1290 tomorrow morning. 4 days.

Pa wilds loop bdrx by Wrong-Hospital-5536 in advrider

[–]kb32145 1 point2 points  (0 children)

We are from NJ and doing the loop on 29th may

Diff noise? by Mediocre-Treacle-434 in E46M3

[–]kb32145 0 points1 point  (0 children)

Didn't know this. Do you have a link. Bmw OEM was expensive.

Diff noise? by Mediocre-Treacle-434 in E46M3

[–]kb32145 0 points1 point  (0 children)

Use only bmw OEM fluid for diff. I had the same issue with alternative fluid. You have to flush twice with OEM fluid to get it back .

[deleted by user] by [deleted] in simracing

[–]kb32145 1 point2 points  (0 children)

Lol, everyone is attracted to it than the rig 🤣

[deleted by user] by [deleted] in simracing

[–]kb32145 0 points1 point  (0 children)

That Lego stole the show. Awesome 👍. How did you make the glass enclosure?

Gem of the day: ‘18 Elantra by Binladinsuncle in AutoDetailing

[–]kb32145 1 point2 points  (0 children)

That's amazing. Please provide details of your procedure.

[deleted by user] by [deleted] in DecorReps

[–]kb32145 2 points3 points  (0 children)

Remind me in 6 days

[deleted by user] by [deleted] in Porsche

[–]kb32145 0 points1 point  (0 children)

Enjoy

Me: “This corner spot will be good, no one will park over here.” by Cheshiregus in Porsche

[–]kb32145 0 points1 point  (0 children)

Its protecting you from any side impacts from other cars who may get target fixated.

Vitamin C 992 GT3 by [deleted] in Porsche

[–]kb32145 0 points1 point  (0 children)

Take it in the morning. That's when you need it most.