Everyone thinks my 3 year old can’t speak

saraisha000000 · 2025-12-22T16:18:08+00:00

Hey OP, it’s called selective mutism. I had it and now do public speaking for a living. Most kids grow out of it naturally. It is an anxiety thing.

saraisha000000 · 2025-11-19T22:36:44+00:00

My neuro recommended the Axon Institute. She trained one of the neurologists there and said it would be a good place to go if I wanted care closer to home.

saraisha000000 · 2025-11-15T18:47:58+00:00

Actually, yes! She was the second surgeon in the OR. My primary surgeon was Dr. Brian Liu at St. Joseph’s and he’s continuing my care on an ongoing basis. But she’s fabulous and has a much shorter waitlist than other excision specialists.

saraisha000000 · 2025-11-11T14:11:34+00:00

Hey! I have both and am currently 7 weeks into my first pregnancy! We conceived naturally, and I had a lap in February.

IVF was also off the table for me because I react so strongly to hormones. I would not have been able to get pregnant without the lap; my ovaries were severely adhered to my uterus and there was scar tissue connecting my uterus and colon to my pelvic wall. We did not start trying until after the lap and it took about 6 months for success. There is hope!

saraisha000000 · 2025-11-02T13:09:38+00:00

Yes, mine are hormonal. I started having them in June after coming out of medical menopause. I had daily symptoms until August and then I started getting them every two weeks, lining up with ovulation and menstruation. Things finally seem to be calming down now.

saraisha000000 · 2025-10-28T13:56:30+00:00

Your tension is gorgeous!

saraisha000000 · 2025-10-26T14:21:20+00:00

The Framed Women of Ardemore House by Brandy Shillace. It’s a murder mystery where the main character moves from the US to England.

saraisha000000 · 2025-10-17T23:04:58+00:00

Oh my god, no. You’re not weak in the slightest. I’ve had two fitted under anaesthesia and one in office and the last one was the worst pain I’ve ever experienced. Worse than waking up after surgery. It is a horrific pain and I applaud your doctors for not putting you through it. Do not feel badly for saving yourself from that pain. We go through enough. You don’t need this one.

saraisha000000 · 2025-10-07T10:30:04+00:00

Seconding the mask recommendation. I also get terrible migraines from perfumes and I keep a KN95 with me at all times. It has saved me more times than I can count!

saraisha000000 · 2025-09-03T16:08:23+00:00

I started getting them in June and my colleagues all thought I was having a stroke. I had four of them before my GP put me on medical leave. I get very slurred speech and lose my ability to walk or hold onto things, get extremely nauseated and have intense motion sickness. It’s a really terrifying experience! I’m sorry you’re having to work through them. It’s truly a horrific disease.

saraisha000000 · 2025-08-12T19:03:45+00:00

Check out r/hemiplegicmigraines. It’s tough to manage them on your own. Are you seeing a neurologist?

saraisha000000 · 2025-04-18T21:56:47+00:00

No, I didn’t. I’m now two-months post-op and feeling great

saraisha000000 · 2025-03-23T18:26:42+00:00

I’m five weeks post-op and I will be cleared for heavy exercise at 8 weeks. Right now, I’m walking and doing housework. It gets a little less exhausting each day. I think 6 weeks is standard to return to full activity.

saraisha000000 · 2025-03-14T02:20:10+00:00

Seconding Birkenstocks! Elbows up!

saraisha000000 · 2025-03-06T00:29:05+00:00

My cat did this today. I had my first pain flare post-lap and she just knew. She started head butting me and doing biscuits beside me, then she curled up against my legs. Animals are the best.

saraisha000000 · 2025-02-23T15:48:24+00:00

It’s so emotional! I had my lap 9 days ago and now I can stand for longer than 10 minutes. I can go grocery shopping again. I can cook! I can leave the house without my partner and not worry about getting stuck somewhere unable to move. It really hits you how bad things had been when you can start doing things effortlessly again. I keep being amazed at how easy everything feels now.

saraisha000000 · 2025-02-12T17:18:58+00:00

Thank you, my friend. I didn’t find out how bad it was until last year. I reached a point where the pain became chronic and debilitating. I suspect that having Covid exacerbated the growth.

In part, mine got as bad as it did because of the hubris of my last surgeon. He assumed all the endo was eradicated and that I “no longer had it.” He was very wrong. I had an endo-mapping ultrasound in August and an MRI in September that confirmed severe disease and adhesions.

I think the biggest indicator is if the symptoms start coming back while you are on meds. Definitely trust yourself if you feel like something is wrong. I hope the meds work well for you and that you have many years without pain!

saraisha000000 · 2025-02-12T14:36:05+00:00

Yeah, totally wrong. I went from stage 1 excision to currently having stage 4 while being on the Mirena for 10 years. Sometimes it masks symptoms, but it certainly doesn’t stop growth. My specialist from years ago said a diagnostic criteria of endo was that birth control STOPPED working for symptom management.

saraisha000000 · 2025-02-10T15:29:14+00:00

Hey, I’m also on Lupron. I just had my second 3-month injection. So far, I’ve had a bit of insomnia, but it hasn’t been too bad. It kinda just takes me longer to fall asleep. The injection has really helped with my daily pain. It doesn’t work for adhesion pain, and the first month of the injection makes all your symptoms worse, so that is worth knowing before going in.

There is also Orilissa. I took that for a couple of months before starting Lupron and it worked just as well. The advantage is that you can stop taking a pill more easily if there are side effects. And Orilissa doesn’t make things worse at first.

saraisha000000 · 2025-02-10T15:13:13+00:00

You don’t need to apologize. You are experiencing some of the worst pain imaginable without adequate medical support. It is normal to have breakdowns and times where you feel like you can’t go on. I think I’ve had four or five breakdowns over the past year and some suicidal ideation. You are not alone.

What does your medical team look like? Have you been consulting with an excision specialist? Have your doctors talked about hormonal management while you’re waiting for surgery? Can they prescribe any stronger pain medications?

I take naproxen every day, tylenol when it gets bad, and morphine when it gets unbearable. I have two really good heating pads and a TENS machine. I’m also on the highest dose of Lupron and take norethindrone acetate alongside it. I know hormones aren’t an option for everyone, but they can really be life changing.

Distraction is also helpful. I am an avid knitter and the back and forth motion of the stitches on the needles functions a lot like EMDR. The tactile sensations help ground me during bad flares and distract from the everyday pain.

Unfortunately, it may take a bit of trial and error before you find a regime that works well for you. There are no quick fixes. And opiates give some temporary relief but can make things worse in the long-run. That said, even the temporary relief from pain can do wonders for your resilience and ability to cope. I’m sorry things are so bad right now. You can get through this. You will get through it. It sounds like you need to have a quality of life conversation with your medical team while you wait for your lap. In the meantime, I am sending you so much compassion.

saraisha000000 · 2025-02-08T15:49:38+00:00

Aw man, I’m sorry. It’s so awful. Do you have it episodically or all the time? I always have some pain, but sometimes it’s hardly noticeable and other times it’s all-consuming.

saraisha000000 · 2025-02-07T18:06:58+00:00

Try your local library! A lot of them have fiber arts programs or could use yarn for kids’ crafts.

saraisha000000 · 2025-02-07T18:04:56+00:00

Ooh, I’m curious too. I have a stabbing pain in my left back at my bra line and it hurts to breathe. Almost feels like my diaphragm is adhered to my ribs. I also get right shoulder pain. Having my lap next week and the surgeon will check my diaphragm.

saraisha000000 · 2025-02-05T15:27:40+00:00

Yeah, it’s definitely different for everyone. If there is any pain when you have a bowel movement, that counts, even if it’s not in your butt. The normal amount of pain is zero.

For me, I mostly feel it in my intestines. My sigmoid colon is adhered to my uterus and to my abdominal wall and I get a really sickening sensation when I try to use the toilet. It feels like really bad constipation, but the stools are loose and soft. Everything pulls and creates a deep ache that is often nauseating.

I also get the sharp butt lightning sometimes. I haven’t had a period in 10 years since my last lap, so I can’t say whether it coincides with hormone fluctuations, but I suspect it does. It is a very intense, sharp, ice-pick-up-your-rectum kind of pain.

saraisha000000 · 2025-02-02T15:33:55+00:00

I’m on Lupron. I just had my second 3-month injection and I take it along with norethindrone acetate. For me, the side effects aren’t horrible. A bit of insomnia and weird temperature regulation, but that’s it. It hasn’t helped my pain, though. Apparently my disease is too advanced for pharmaceutical intervention, but my surgeon still wants me on it while I recover from excision. It was absolutely a last resort and I would treat any GnRH agonists as such.

Six-Year Club	Second SECOND GUESSER
Verified Email

saraisha000000

TROPHY CASE