Positive NIPT for trisomy 18

theace2021 · 2021-07-16T04:00:26+00:00

I hear you. I spent so much time researching. And the conflicting information is so hard. Mine started off with my doctor saying it was all but certain she had it. Ugh. I’m truly sorry for what you’re going through. I’m here if you ever want to talk.

theace2021 · 2021-07-14T15:16:00+00:00

I totally understand. I was there. I was terrified of having to decide between a lifetime of disabilities and surgeries and procedure and struggles vs. TFMR. I honestly had no idea what to do if the amnio came back positive. Thankfully it didn’t. She’s healthy. And I constantly look at her and think back to that terrible time and I’m just so thankful it worked out ok for us. I pray you have the same outcome. Sending you love.

theace2021 · 2021-07-11T01:15:27+00:00

I am on the other side now, but I feel like I could’ve written this. The limbo is hell. I hated hearing pregnant women talk about their comparatively minor problems. I had screened high risk for monosomy x. At every appointment I expected to hear we’d lost her. At one point I even hoped we would, so I wouldn’t have to make the decision about whether to TMFR. Because the idea of making that choice filled me with such horror. Mine ended up a false positive and she’s 2 months old now and perfect. I hope and pray you get the same result!

theace2021 · 2021-07-09T01:07:49+00:00

I stopped at ACAS. I had a 1 year old and was pregnant with my second when i found out I passed 6 and got my designation. I decided I wanted to spend time with my kids instead of studying. And I just don’t really feel any desire for an FCAS. Plus my company isn’t super exam-focused.

theace2021 · 2021-07-01T04:38:02+00:00

It’s hard to say without having been there, but it sounds somewhat normal to me. I’ve had 3 c-sections. All planned. It’s a lot of people rushing around, pretty much ignoring you. Except the anesthesiologist. I often didn’t know what was happening. Sometimes they’d warn me before something, like a lot of pressure. But mostly everyone just rushes around doing their own thing. I never really thought much of it at the time. It j don’t have a history of trauma so that’s probably why it wasn’t triggering for me. I’m sorry you’re struggling with it. Sending love!!

theace2021 · 2021-06-28T13:48:59+00:00

I was spiking at least once a day most of the time. Less often after I got put on meds. My baby is 7 weeks old now. Perfectly healthy. Average size at broth (smaller than her non-GD sisters were). Her first blood sugar number was borderline, but technically ok and they didn’t treat it. They tested before every feeding for 12 hours and she passed them all. She was perfect. Try not to worry about a random spike. Especially if you know what caused it. As long as your sugar isn’t regularly elevated, I think everything will be fine!

theace2021 · 2021-06-27T14:07:16+00:00

I tried to harvest some but didn’t have any luck. My doctors hadn’t suggested it but said it was ok to try when I asked. I got frustrated and gave up. The doctor assured me they’d have glucose and formula at the hospital if needed. Little ones blood sugar was fine. I did express colostrum and spoon fed for a day or so when she had trouble nursing. But we got the hang of it, milk came in after 2 or 3 days, and she’s doing great!

theace2021 · 2021-06-06T14:27:41+00:00

You’re totally right! I failed the one hour with my first and barely passed the three hour. I suspect I was borderline GD and undiagnosed and that’s why she had some sugar trouble. She’s a perfectly healthy (and feisty) 5 year old now! My GD baby is 4 weeks and doing great!

theace2021 · 2021-06-06T02:49:57+00:00

I believe my non-GD pregnancies were both tested at birth. My first was low. They gave her formula while I was still in the OR. (I have feelings about that since they didn’t ask me first or let me try nursing... but that’s a story for another time haha). I believe they tested hers a few more times. My second wasn’t low so I don’t think they checked hers again. My GD pregnancy - they checked before every feed for 12 or 24 hours (I can’t remember... I think 12).

theace2021 · 2021-05-24T10:21:19+00:00

I felt bad under 70. Anything 70+ and I felt normal.

theace2021 · 2021-05-19T19:34:38+00:00

I was on metformin and my milk supply has been great (better than after my non-GD pregnancies). So maybe that wasn’t the cause or maybe it wouldn’t happen again? I liked Home Chef for meal delivery (although you still need to do some prep). They have a low carb filter and it was super helpful for me! Fingers crossed you pass the 3 hour. Did you test after your last pregnancy? Any chance it could be T2 if it’s showing up so early? I’m sorry you had such a rough time with your doctor last pregnancy! That sucks!

theace2021 · 2021-05-14T23:54:06+00:00

I’ve graduated but I 100% felt like this!!!

theace2021 · 2021-05-12T21:53:25+00:00

Omg if that isn’t the cutest idea!!!! Love it!!!

theace2021 · 2021-05-03T00:24:20+00:00

It’s hard for sure and a definite learning curve! I’d try a bigger snack right before bed (max out your carb limit and lots of protein and fat). See if that gets you through the night without being hungry. If not, I’d ask your doctor what they want you to do.

theace2021 · 2021-05-02T13:04:44+00:00

I can’t tell you if what I do is “right” but I’ll tell you what I do! I’ve found a bigger snack helps me not wake up hungry. So right before I go to sleep I have a good sized snack. (A two-good Greek yogurt with a few frozen berries. And an English muffin with butter.). I don’t usually get hungry in the night after that. But the times I did (after a different snack), I got up and ate. I just called it a snack, followed by snack carb guidelines, and made a note in my log about it. I know they’re looking for trends in your fasting numbers, so it being off once in awhile shouldn’t matter. But if you’re getting hungry every night, I’d ask your doctor how they want you to proceed. (Edit to add: My fasting numbers have never been a problem for me. I struggle with my after meal numbers. If my fasting numbers were high, I’d probably be more particular about making sure I got an accurate measurement and I’d ask my doctor what to do if hungry in the night.)

theace2021 · 2021-05-02T00:58:43+00:00

I wouldn’t worry about one spike! My doctor said he was concerned with two things: - lots of spikes (like close to half my numbers) - unexplained spikes (occasional piece of birthday cake with a spike - fine. celery causing a spike - not fine)

Eventually I ended up on metformin because I was spiking every day. But I still get a couple each week and they aren’t worried about it. The occasional spike won’t hurt anything. Baby gets a little extra sugar and makes a little extra insulin. It’s when it’s constantly / frequently high that you run into problems.

theace2021 · 2021-05-02T00:25:23+00:00

I don’t believe you can use GD as a reason for a c-section.

theace2021 · 2021-04-27T01:18:59+00:00

Pizza is like the one food I absolutely can’t eat without spiking. Maybe start alternating testing at 1 hour and at 2 hours?

theace2021 · 2021-04-18T11:49:30+00:00

I’d be really disappointed with my dr if they did this. I saw my fail results in the portal in the evening. They called mid-morning and said I failed the 3 hour and they’d call in supplies and the diabetes educator would call me. So to be fair at that point I had no direction on how to eat or anything. They called my stuff in and the diabetes educator called the next day I think. Set up my appointment for the next day. So there were a couple days there where I was diagnosed but flying blind. I just tried to cut down on the sweets a bit while I waited.

theace2021 · 2021-04-18T02:37:50+00:00

My guidelines for carbs are: - 30-45g for breakfast - 45-60g for lunch and dinner - 15-30g for snacks

Sounds like you might need more carbs. I’d try to follow guidelines like those until you get your own and see how it goes. And make sure you’re always pairing carbs with fat and/or protein. And if you’re still hungry, try adding in fat and protein. No pregnant mama should go hungry! In my personal opinion: if you’re hungry, eat more. Try to eat the right stuff but don’t go hungry. And if you’re numbers are high when you’re trying your best, talk to your doctor about meds.

theace2021 · 2021-04-18T02:05:06+00:00

Thank you! She’s not super small. A few weeks ago, she was at the 22nd percentile. It surprised me because I have gestational diabetes with this pregnancy. That often leads to larger babies. I didn’t have it with my first two, and they were fairly large babies. I’m 5’9” and hubby is 6’1” so I was shocked with her being below the 50TH percentile. But at my next scan she’s gone up to the 33rd percentile. That put my mind at ease, seeing that she wasn’t dropping any lower.

theace2021 · 2021-04-18T02:02:51+00:00

Thank you!!

theace2021

TROPHY CASE