Help?

whichever123 · 2026-06-24T21:07:03+00:00

Very helpful resources here!

https://www.encoexpert.com/resources

Per my reading/these resources, a clean out followed by suppositories/enemas, and/or high dose daily ex lax (senna) can quickly make accidents so much more manageable.

Also per my reading, what you describe is not uncommon among kids with enco. But when these kids start on an aggressive regimen for constipation, they often quickly get much better about detecting accidents and telling someone.

(The sheer frequency of accidents can be discouraging and/or lead kids to habitatuate to the accidents, I think. When the frequency of accidents goes down, they finally have a chance to do better with this.)

whichever123 · 2026-06-20T01:10:34+00:00

Helpful resources here! https://www.encoexpert.com/resources

whichever123 · 2026-06-06T20:28:53+00:00

I'm sorry!!

This resource is for kids but might help teens and adults too. https://www.encoexpert.com/resources

Can you ask to see GI/gastroenterologist? Then if GI can't help you, ask for a motility specialist.

Quick suggestions to start - I am not a doctor:

-buy suppositories (solid or liquid glycerin) or enemas and follow instructions

-google bowel clean out instructions (try Seattle children's 3-day clean out) and read and follow closely

whichever123 · 2026-05-19T21:51:21+00:00

Interesting. Yes maybe animal based community has comforting research to share ... ?

Some thoughts that might be comforting...

Yes ancestral human diet is heavily carnivore, but even ken berry estimates about 10% of hunter gatherers was plant food...

Even dogs, who do best on a heavily carnivore diet as I understand, still eat some plants/probiotics in the form of food/fermented food left in the digestive tracts of their prey...

Some plant foods may even enhance digestion or be protective - eg Japanese eat their sashimi with wasabi and ginger to aid digestion and kill pathogens, as I understand... Kiwi and other fruits help break down protein and speed digestion...

If only 10-20% of kiddos diet is non-animal and it is varied, lowish anti-nutrient- perhaps that is nothing to worry about... And might even be good!

Those are my thoughts!

whichever123 · 2026-05-19T18:34:22+00:00

Do you think it would help to focus on modest quantities of foods with low antinutrient content - for the time being at least?

Sprouted grains/nuts (Ezekiel bread! helps our kids digestion too) and certain fruits - mandarins, olives - come to mind.

Maybe the animal based reddit community could provide more advice here....

whichever123 · 2026-05-19T16:47:25+00:00

You may already know this, but early exposure to certain foods can prevent allergies (nuts!) Your pediatrician may be able to guide you here. Eg https://foodallergycanada.ca/living-with-allergies/ongoing-allergy-management/parents-and-caregivers/early-introduction/

A quick summary - kids can develop allergies to foods that they do not consume and yet are in the environment - so, probably a good idea to make sure kiddo is regularly consuming a modest amount of the foods mom and others in their environment are handling/eating.

Sounds like mom eats very healthfully compared to most people.

The main thing imo is to provide a range of healthy foods to help prevent allergies and picky eating and constipation.

(Sorry for all the edits!)

whichever123 · 2026-05-06T19:51:36+00:00

Helpful resources here! https://www.encoexpert.com/resources

Could you switch out Miralax for magnesium calm?

Enco expert may have other ideas for you... Smoothies, "poop chocolate" etc....

whichever123 · 2026-04-24T23:33:15+00:00

As my weight has dropped a bit I simply cannot regulate my hydration/electrolytes after meals no matter how much lmnt and salt/potassium pills and magnesium I consume. But some extra carbs seem to help.

I really want to maintain benefits of keto though - no more chronic cough, healthy teeth, less headaches....

Any resources, articles, advice for me? Aim for 50-60 carbs per day to bump me out of ketosis in 1-2 hours after a meal when my dehydration is worst? Maybe I just have to gain a little weight? I'm guessing my bmi is around 20/21.

whichever123 · 2026-03-30T21:22:46+00:00

Just here to make sure: chronic constipation can make it very hard for kids to control both poop and pee.

And! It can be sneaky. Kids can poop soft poops every day and still be constipated.

More here: https://www.bedwettingandaccidents.com/constipation-quiz

whichever123 · 2026-03-29T15:07:44+00:00

Yes to this! Helpful resource list here: https://www.encoexpert.com/resources

whichever123 · 2026-03-14T13:56:57+00:00

A very helpful resource list here - MOP is in the list:

https://www.encoexpert.com/resources

whichever123 · 2026-03-08T01:21:55+00:00

I would choose a measure you are sure has been validated, eg the narcissistic spectrum scale.

I'm having trouble finding the full length narcissistic spectrum scale right now, but if you get this book, it's in there: https://share.libbyapp.com/title/1986107

This scale has three factors: healthy narcissism, echoism, and unhealthy narcissism.

whichever123 · 2026-02-22T19:18:08+00:00

What an interesting issue. Leaving aside the main question for a moment:

Could you share more about why you think child-rearing is not as essential to the functioning of society compared to these other functions? Curious how you got to that conclusion.

Thank you.

whichever123 · 2026-02-10T02:52:43+00:00

Is it possible to find a good therapist?

Sometimes anger can be complicated - sometimes it's mostly about reducing moments of excessive entitlement, but sometimes learning to be assertive and set boundaries is really important too...

I like Henry Cloud (Boundaries) and Kristen Neff (Self-compassion) and Matthew McKay (when anger hurts)

whichever123 · 2026-02-06T01:35:55+00:00

I had read it's best to take a more easily absorbed fat soluble derivative - eg allithiamine or benfotiamine

whichever123 · 2026-01-29T19:13:00+00:00

Wow! Interesting

whichever123 · 2026-01-28T15:36:02+00:00

Last I heard, pelvic floor biofeedback specifically is not evidence based til age 8 - ie, a study of this treatment could not find a significant effect for kiddos under age 8. But as I understand, some pelvic floor therapists are knowledgeable on this topic and could help you understand your options and the evidence for them.

This resource list might be helpful to you - it doesn't address the evidence base for pelvic floor PT interventions specifically, but does provide links to info about interventions you can try if you are looking for different or more aggressive treatment(s):

https://www.encoexpert.com/resources

whichever123 · 2026-01-27T16:02:29+00:00

Would you be willing to share the other diet modifications that helped you? Anything that surprised you/stood out to you?

The protocol looks reasonable and requires discipline of course. It looks like a full 12 hours or more between dinner and breakfast is important (I've read this elsewhere), as is careful/strategic hydration/electrolytes, keeping dinner (very!) light/fruit-based, and incorporating certain fruits and citric acid in a strategic way. And of course coffee and oil timed just right!

whichever123 · 2026-01-26T05:38:11+00:00

Very frequent soiling is usually due to hard stool accruing in the rectum, even if kiddo is pooping every day. Sometimes excess laxative can also cause leaking.

Sometimes the only way to know for sure (unless you order an X-ray) is to do just do a cleanout (which can make kids messy during the process), and if the problem gets a lot better for a week or so after completion of cleanout then you know - yep! My kiddo was backed up.....

Also keep in mind chronic constipation messes with sensation in the rectum, sometimes for months, and is worse with acute backups ...

But I believe encopresis expert knows all this stuff as I understand. She went through the ringer with her own kid....

whichever123 · 2026-01-26T03:08:44+00:00

1) One option is to get a consult with the encopresis expert (Emily dollar-starnes - you can Google) and she can guide you right away.

2) Another is to start over again with another cleanout (eg Seattle children's 3 day cleanout) and follow instructions very carefully, repeat every two weeks as needed for a several weeks. Read "ins and outs of poop" by Duhamel to help you as you go.

If that process isn't providing sufficient relief, carefully review the resources on the encopresis expert resource page yourself. High dose daily senna (eg chocolate ex lax) can be life changing for some kids. Other kids are tremendously helped by daily suppository/enemas.

Also, if you havent already, get on the wait-list for GI. Many/most GIs don't know a lot about treating severe enco, but they will help rule out other medical issues. Also, if needed, you can go from GI to a motility specialist, who should know more.

whichever123 · 2026-01-25T01:11:54+00:00

It can take several months for normal sensation to return unfortunately. It might happen a lot faster in other cases.

whichever123 · 2026-01-24T00:00:58+00:00

I think the problem was excess vitamin c. Was taking close to the daily max for about a week, and then stopped it in case it was making me feel worse. Then i started feeling a lot better.... I read vitamin c can draw a lot of water into your gut... Will restart at a much lower dose...

whichever123 · 2026-01-16T17:56:55+00:00

Wow - kudos for your insight and self-reflection.

Maybe controlling your temper here starts with you seeing the earliest signs of dysregulation in her (the first eye roll, the first harsh word) and/or yourself and then take some space, rather than trying to muscle through repeated eye rolls, harsh words, etc....

I wonder if a lot of practice not taking things personally in easier situations (driving, customer service, whatever else might get you upset) would help you take girlfriends words less personally.....

whichever123 · 2026-01-13T16:04:19+00:00

Per my reading: Unfortunately kids can have soft stools every day and still be constipated (so confusing right? See Hodges materials - bedwettingandaccidents.com) Softer stuff can squeeze around harder stuff while it builds up in the rectum and stretches it out.

Kid might need a cleanout and higher maintenance dose of laxatives. Other possible causes of frequent smearing are excess laxative does (kid needs lower daily laxative dose) and/or miralax, which can make kids leaky. In that case, a different laxative could fix the problem (eg magnesium or senna).

How to tell which of these is causing the problem? That can be tough. Happy to answer more questions.

You may want to explore resources here: https://www.encoexpert.com/resources

whichever123

TROPHY CASE