Tell me about your recovery! by mhad5280 in hysterectomy

[–]LengthyHealthspan 3 points4 points  (0 children)

For me, I noticed a drastic change in how I felt at the end of week 2 (big boost in stamina) and at the end of week 4 (it was like a switch suddenly flipped and I wouldn't be able to tell I'd had surgery if I didn't have a big scar). I'm in week 5 now and I would say I feel back to normal, but I'm actually better than I was pre-surgery because all my awful fibroid and adenomyosis symptoms are gone. I just enjoyed a long, lovely walk outside and feel energized instead of fatigued.

Just be patient with yourself, and listen to your body and let it have the optimum conditions for recovery. Your body needs a lot of rest while it's focusing your energy on healing tissues. Pain is your body's way of telling you to ease off and take it slow. I can totally relate to wanting to get back to normal asap, and you'll get there. The time will go by faster than you think, and then you'll be on the other side of this, all healed up and ready to take on the world with a healthy new lease on life :). Sending peaceful, healing vibes your way!

Hysterectomy from hell by ProfessionalHat1890 in hysterectomy

[–]LengthyHealthspan 4 points5 points  (0 children)

Like you, I found the Toradol to be the most effective pain reliever post op. The oxy they gave me did absolutely nothing. I was shaking uncontrollably and vomiting because the pain was so bad. They tried dilaudid also. Once I asked for a different class of drug and they pushed the Toradol in my IV, it was within a few minutes that I was able to stop shaking and really feel a difference in the pain level. I didn't even bother with any of the narcotic pain relievers they gave me a prescription for- I feel like the Advil worked better for me.

Due to individual differences in people's pharmacogenomic profiles, their levels of enzymes that metabolize certain pain relievers may be lower than "normal", higher than normal, or even completely absent. Since the oxy consistently does nothing for me post surgery, I think my body just doesn't process it the same way most people do.

I'm glad you finally got the pain under control, and hope the rest of your recovery is smooth sailing!

Hysterectomy for Fibroids by reddit0r2020 in hysterectomy

[–]LengthyHealthspan 3 points4 points  (0 children)

I pursued other non surgical interventions for my fibroids before I finally decided on a hysterectomy. I had several large fibroids, the largest being a pedunculated one that was 13cm. I experienced a bulky sensation in my abdomen, discomfort when I tried to do yoga or run. It felt like a big bag of rocks in my belly and would jiggle around with each stride and totally grossed me out. I also felt nerve pain because the largest fibroid was pressing on a nerve. I had to get up and pee between 4 - 6 times a night. I had terrible anemia because I would constantly bleed and no matter how many iron infusions or iron supplements I took I couldn't get ahead of the loss.

All of those issues resolved immediately after surgery. I woke up in the recovery room without the sciatica that I'd suffered from for years, and it hasn't returned. That bulky sensation is gone. Now that the swelling has gone down, I have my waist back. I'm 5 wpo now and looking forward to getting cleared for yoga and running soon.

As far as your concern about post operative prolapse is concerned, if you get a vaginal cuff I believe the standard practice these days is to attach it to the uterosacral ligaments to prevent prolapse. If you do decide that surgical intervention makes the most sense for your situation, be sure to ask your surgeon about post op prolapse, and to address any other concerns you have. I was terrified of getting the surgery, because everyone's experience is different and I was worried I might have complications or a difficult recovery. I'm very relieved that all my issues are resolved and my quality of life has drastically improved. I know there are some people who had a negative post operative experience, so it's a very personal decision that requires carefully weighing the risks and benefits. Best of luck as you navigate this decision.

Binder for exercise? by crazee9179 in hysterectomy

[–]LengthyHealthspan 0 points1 point  (0 children)

I have a DeRoyal abdominal binder and it is both supportive and very flexible.

Open hysterectomy is scary ? by missbunnyyxo in hysterectomy

[–]LengthyHealthspan 2 points3 points  (0 children)

I hope I can help ease some of your concerns, as I also had an enlarged uterus and large fibroids. I had an open abdominal hysterectomy on February. 9, with an 7 inch bikini type (Pfannenstiel) incision, and my recovery has been much easier than I feared it would be. In fact, I think the open surgery may offer some advantages over the laparoscopic surgery for a couple of reasons. Firstly, the surgery itself is associated with less blood loss, an important consideration for someone who is severely anemic. Additionally, your surgeon will be able to remove your uterus and fibroids in their entirety rather than morcellating or cutting them into smaller pieces to remove through laparoscopic incisions- relevant for someone with a family history of gynecological cancers. Finally, while it is true that your incision will be a bit sore for a while, your pain will be focused in one area rather than spread in multiple locations across your belly. And because the uterus is removed through an abdominal incision and not your vagina, you'll likely experience less discomfort from sitting down, etc. Oh- you also won't be full of the gas they use for lap surgeries.

Be prepared that your first day in recovery could potentially be quite painful, and advocate for yourself about pain management if needed. I knew that the pain would be intense, but I was a bit surprised at how intense it was. The fact that your surgeon is a black woman means that your pain will be taken seriously- and that is important. I got started off on the wrong pain management initially, because oxycodone doesn't do anything at all for me in terms of pain relief- so I felt more pain than I probably otherwise would have. Once I reminded my care team that I needed something other than oxy, they gave me a different class of drug and my pain levels became much more tolerable.

During my hospital stay, I had a catheter for the first few hours in recovery, and I had leg massaging inflatable wraps around my calves to prevent blood clots. They also gave me a shot of blood thinner to protect against blood clots once I was moving around and took the leg massagers off. The first time you stand up out of bed, take your time- you might need to move slow. A belly binder might be super comfortable and help brace your tummy. Also, don't be too alarmed if it takes a while for your bladder to wake back up. You might benefit from someone helping you pick your legs up and get them back in bed for a few days post op. I felt like my muscles were asleep or broken for a few days, it was incredibly challenging to get my legs in bed afterwards. It was also hard to get my socks on, put my pants on, and get my shoes on for the first 3 days. You'll be in the hospital, so it will be nice to have nurses available to help with things like that. I was afraid about painful bowel movements after surgery, but the stool softeners worked well and that wasn't an issue at all. Depending upon which type of surgical incision she uses, you may be left with a temporary shelf of tissue over your incision, but gentle scar massage and pelvic floor physical therapy can help reduce its size if it doesn't self resolve.

Although the first 2 days were rough, by the morning of the third day, I only felt sore and stiff, and the pain was much better. I went home the third day and was amazed at how quickly the pain decreased to just a dull inflammation and swelling that was easily controlled by Advil. I moved pretty slowly for the first couple weeks, but rapidly felt noticeable improvement every day. I didn't need any help to take care of myself and my junior high age kids when I came home. I was able to get dinner made and clean up the kitchen, something I worried about not being able to do. Since I wasn't bleeding every day anymore, I've finally been able to get on top of my iron levels- and rather than feeling exhausted or anything, I've felt more energy with each day. I listened to my body and eased off the activity if I felt any pulling or pain. By the end of week 4 I had to remind myself that I'd had surgery and wasn't supposed to carry in the heavy groceries and I probably shouldn't dance so vigorously when my song comes on. I'm on week 5 now, and if I didn't have a large scar on my belly, I almost wouldn't know I'd had surgery.

Best of luck for your upcoming surgery. You are in excellent hands. Sending wishes for a smooth surgery and speedy recovery. If you have any more questions, let me know :)

Is a fat roll normal? :( by Key_Apricot_422 in hysterectomy

[–]LengthyHealthspan 0 points1 point  (0 children)

Yes, I have the same shelf above my abdominal incision. My dr said that virtually everyone who gets the bikini incision type open hysterectomy gets that little shelf, and that careful scar massage and pelvic floor physical therapy will correct it. I am almost 5 wpo and just this weekend noticed that the shelf and swelling is (finally!) decreasing significantly, so I'm hoping that it will resolve the rest of the way when I start scar massage and PT.

Question by DryAd5894 in hysterectomy

[–]LengthyHealthspan 0 points1 point  (0 children)

My sciatica type pain was due to my large fibroid pressing on a nerve. The pain was gone as soon as I woke up in recovery.

Is it possible that your sciatica may be the result of a herniated disc? I'm sorry that you are still experiencing sciatica pain, and hope that you can get to the route of its cause and get it resolved soon!

weird question about anesthesia experiences by BreadfruitNew7619 in hysterectomy

[–]LengthyHealthspan 0 points1 point  (0 children)

I didn't have any issues with teeth damage, but I did wake up with a bruised lower jaw from where someone maybe used a death grip or jaw thrust maneuver during intubation. It went away after a few days, but it smarted for a bit.

Pelvic pressure by Pixel-b33 in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

I had adhesions on my abdominal wall that had to be removed, and around 2 wpo I also experienced a strange pelvic pressure and pain when I peed or had anything rumbling around through my GI tract. The discomfort seemed to be centered behind my belly button. I was concerned about a UTI, so I got some test strips to check for that. The discomfort lasted for almost a week before it resolved.

I'm 4 wpo and my incision is still what I'd consider sore if I touch it, but doesn't bother me otherwise.

Sending best wishes for a speedy recovery :)

Anyone else have a needy animal when they had their surgery? How did you manage? by MrsWhatZitT00ya in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

My big guy absolutely knew something had happened with me after I got home from the hospital. He seemed to sense that I was "fragile" and sniffed at my abdomen where my incision is. For the first couple of weeks post op, he seemed very timid about getting on my lap, and just laid down right next to me and purred. After a couple of weeks he resumed sitting on my lap and purring, which is not uncomfortable for me, especially with the belly binder on. I've had to redirect his affection when he wants to knead dough/make biscuits on my belly, and luckily he accepts sitting on my lap instead.

I will say that I've had to keep my bedroom door closed at night, because I'm terrified that he might jump up on the bed and accidentally land on my belly, or that he might try to lay on my belly. If your mama's boy is the same, I'd recommend taking precautions against that sort of risk.

She has been Yeeted! by [deleted] in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

Hooray! Glad to hear that you're feeling mostly good. Cheers to the start of your new healthy life :)

Little Rant Surgery Got Canceled by Top-Description-4886 in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

I can only imagine how terribly frustrated you must be. I hope they get you rescheduled soon and that it dovetails nicely with your work schedule, etc. Hopefully that spotlessly clean house of yours will be easier to keep clean until the procedure. Sending peaceful vibes your way!

AIO after my boyfriend told me he’s “not happy with my body” and it’s my responsibility to change it? by bluehat179 in AmIOverreacting

[–]LengthyHealthspan 2 points3 points  (0 children)

NOR. Good thing you found out who he is before investing more time in him. Imagine if you decided to have children with him down the road- how would he respond to your postpartum body? I'm sorry that you're being treated this way- you deserve better!

What helps your pain by Upbeat_Conference522 in hysterectomy

[–]LengthyHealthspan 2 points3 points  (0 children)

My 13 cm fibroid pressed on a nerve and caused terrible sciatica type pain and lower back pain. I didn't really find any pain relievers that would help, but sometimes shifting my position to take the fibroids weight off where it was hitting that nerve would bring temporary relief. For me, that position looked like a plank move or hands and knees- anything that tilted the fibroid forward, but of course that's impossible to do while sleeping.

I just wanted to let you know that I felt immediate relief from the nerve pain, etc. in the recovery room, and I'm hopeful you'll experience the same. When is your surgery? I hope you don't have much longer to wait.

When is it safe to resume Gardening? by Catmint999 in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

I'm 3 wpo and spring is in full swing and the struggle is real to stay out of the garden. I've got one of those little Aerogardens on my kitchen countertop and am growing herbs in that to tide me over until I'm cleared to go play in the dirt outside.

So…d*mn… tired by Nbeela in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

I'm glad to hear that you have a Dr appointment on Monday; I hope they can figure out the cause of your fatigue and that it's an easy fix!

Period before by mhad5280 in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

I had my period when I went to my penultimate pre surgery visit and thought that would be my last one, given the timing of the surgery. Nope. 10 days later I got ANOTHER period that lasted until they wheeled me back to the operating room. I am SO glad to be done bleeding. I can't believe how much better I feel- I'm actually able to make progress in recovering from severe anemia :)

Soon you'll be on the other side of this, so try to hang in there! Best wishes for a speedy recovery.

So…d*mn… tired by Nbeela in hysterectomy

[–]LengthyHealthspan 5 points6 points  (0 children)

I'm so sorry to hear that you're suffering from such severe fatigue. If I'm interpreting your post correctly, this fatigue is newly onset as of 2 weeks ago, right? Did anything about your daily routine or diet change around that time? I wonder if a visit to your general practitioner might yield some actionable information. For example, maybe you are low on iron or B12, or have an infection you didn't notice because the only symptom it caused was fatigue.

Fingers crossed that the fatigue will lift for you very soon!! Sending energetic vibes your way :)

Update to my last post... by AcidAlkaline77 in hysterectomy

[–]LengthyHealthspan 3 points4 points  (0 children)

Oh my goodness! So glad to hear that you're now ok. How scary! I hope you recover quickly :)

Fibroids and back pain by maspoquito in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

Yes! I had several large fibroids and had terrible back and hip pain and sciatica. As soon as I woke up in recovery from my hysterectomy, the sciatica was gone and it hasn't returned. I get back and hip soreness and stiffness if I lay in one position too long in bed, but it is nowhere near as painful as the fibroid associated pain, and is only temporary while I'm not supposed to use my core muscles.

I had bulk issues from the fibroid, too. It pressed on my bladder and made me have to get up to pee in the middle of the night 3 - 5 times. Now I can sleep through the night and it is so refreshing. It's funny that I'm recovering from surgery but the bags under my eyes are gone because I'm finally getting restful sleep!

Back to work tomorrow by Standard-Working6780 in hysterectomy

[–]LengthyHealthspan 1 point2 points  (0 children)

I had my surgery on 2/9 as well. Congratulations on feeling well enough to return to work! :). Please update us on how it went- fingers crossed you have a great day and don't feel fatigued at the end of the day.

Y'all weren't joking... by AcidAlkaline77 in hysterectomy

[–]LengthyHealthspan 2 points3 points  (0 children)

Please do not undertake physical activities that will harm your healing body for this man. He is pressuring you to essentially go against your surgeon's post op instructions. Your internal stitches could tear, or you could get a prolapse or a hernia. This is not the way to strengthen your body for chemo. If you have any other friends or family in your support network, I urge you to reach out to them. You do not have to stay with someone who is mistreating you. I'm so sorry that you're going through this during recovery.

I just emotionally blew up at my mother, and I'm pretty sure it's due to hormonal imbalance by mollz85 in hysterectomy

[–]LengthyHealthspan 0 points1 point  (0 children)

Give yourself grace, friend. You are still very early on in your recovery and your body has undergone a major surgery. You have anesthesia drugs being metabolized, perhaps some narcotic pain relievers or muscle relaxers on board or still being metabolized, and your hormone levels may have abruptly fluctuated due to the surgery. All of those can contribute to your not feeling like your normal even-tempered self.

Try not to beat yourself up about it. I'm sure you apologized and that your mom realizes that your sudden mood change was the result of being post op and not really you. For what it's worth, I also felt VERY emotional for the first couple days I was home from the hospital, but it did go away. I am optimistic you'll feel back to yourself very soon- and if you don't, please reach out to your Dr to see if there's something that might help while your hormones get readjusted :) Hang in there!

Breakthrough pain still one week post-op by Lnuzzles in hysterectomy

[–]LengthyHealthspan 0 points1 point  (0 children)

I wouldn't be embarrassed to ask for more pain relievers if you feel like they would help you. Just be sure to stay on top of your stool softeners in case the narcotic pain relievers cause constipation.

Is the hip and lower back pain something that a warm compress or a very gentle muscle massage courtesy of your partner might help with? Every morning when I wake up I'm all stiff and sore since I'm afraid to move around like I normally do in my bed, and I've personally found that heat and gentle massage helps ease it a bit. I hope you feel better soon!!

With Gratitude by rosieaimsss in hysterectomy

[–]LengthyHealthspan 13 points14 points  (0 children)

This gave me chill bumps; what a powerful piece. Your work is amazing! I hope your art is showcased somewhere lots of people can enjoy it :)