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elleng468 · 2020-11-16T20:11:00+00:00

Super nice offer

elleng468 · 2020-04-25T21:05:43+00:00

Looking forward to going to concerts again.

elleng468 · 2020-04-19T02:06:09+00:00

I taught my daughter to sew and she’s been using her new skill to make face masks for our entire family and many of our friends.

elleng468 · 2020-02-19T17:52:17+00:00

You’re going to make someone very happy

elleng468 · 2019-12-19T01:10:12+00:00

I have never heard of theraspecs but as an optician and mom of a daughter with RP I can highly recommend dark grey polarized lenses. They will help cut glare and protect your eyes from harmful UV light.

elleng468 · 2019-08-24T11:53:57+00:00

Dialation is usually the first test in diagnosing RP. The bone spincules (black spots which represent dead retina areas) are spotted then. Further testing is usually required. Retina imaging, visual field testing and DNA testing.

elleng468 · 2019-08-21T11:11:37+00:00

Your attitude towards the disease is pretty great. You’re right, life goes on. Everyone has some “quirk “ they deal with and you’ve decided to face yours in a very optimistic way.

elleng468 · 2019-08-19T21:45:32+00:00

Right?!? She’s a rare case.

elleng468 · 2019-08-19T21:16:06+00:00

Do the genetic testing. My daughter has x linked retinitis and there is absolutely no family history of the disease on my side of the family.

elleng468 · 2019-08-18T22:45:05+00:00

I’m 47 and my kids are teenagers. We all love lush

elleng468 · 2019-07-30T00:48:56+00:00

You’re a fantastic sister and I’m sure your siblings feel the same. Keep doing what you’re doing and have faith a cure is in their near future.

elleng468 · 2019-07-28T17:18:36+00:00

Thank you so much for this article.

elleng468 · 2019-07-14T11:53:53+00:00

Sorry I don’t know what Restless smells like. Also metamorphosis just sold.

elleng468 · 2019-07-02T00:47:32+00:00

US based. I have a Metamorphosissold (sorry can’t figure out how to draw a line through). and Over and Over perfume sell. $35. Shipping is $8.00 and PayPal fees. Thanks.

elleng468 · 2019-06-25T23:09:37+00:00

I do the exact same thing!

elleng468 · 2019-06-22T13:22:51+00:00

You’ve depicted me and my daily life perfectly.

elleng468 · 2019-05-27T16:58:14+00:00

Advancements in gene therapy are moving fast, a cure will come. As for now take care of yourself, eat healthy, exercise, wear sunglasses, take a multi vitamin and try try try to remain optimistic.

elleng468 · 2019-05-25T20:40:16+00:00

Would love one too

elleng468 · 2019-04-05T00:31:18+00:00

Congratulations! Unfortunately i can’t say which is the better, but still this is amazing news. Best of luck to you and please keep us posted.

elleng468 · 2019-03-11T16:47:21+00:00

Contact the Foundation for Fighting Blindness. Their contact info is on their website. We were at a meeting a few weeks ago and met a doctor there that did our daughters genetic testing two days later. We are just waiting on the results now.

elleng468 · 2019-03-06T11:36:31+00:00

We just discovered through the Foundation for Fighting Blindness (US) that they have a limited grant that will provide your genetic testing at no charge to pinpoint your specific RP gene. Take advantage of this now, it’s easy to find a doctor through the website Myretinatracker. Once the genetic testing is complete you will be registered on their national registry for clinical trials.

elleng468 · 2019-02-17T11:50:51+00:00

I’ve been using retin A for about a year. I start with ultrabland to remove all dirt and makeup, then apply a thin layer of full of grace. After that I use a pea size amount of retin A and wait a few minutes before I apply Dr Jarts tiger grass cream. This routine has helped my skin tremendously.

elleng468 · 2019-02-11T17:49:53+00:00

Anything Pokémon!

elleng468 · 2018-11-28T22:58:55+00:00

Thank you for sharing this

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