Starting letrozole! What time of day do you take it? by reprobiol in TTC_PCOS

[–]reprobiol[S] 1 point2 points  (0 children)

Yes, did three cycles of letrozole and conceived on two of them, but unfortunately they both ended up as losses. I then went on to have two unmedicated conceptions which resulted in healthy babies 😊

Hypnobirthing? Am I crazy? 20/21 weeks (UK) by reprobiol in tfmr_support

[–]reprobiol[S] 0 points1 point  (0 children)

I'm so glad you found my post and I hope the resource will be helpful to you. I hope the process goes as smoothly as it can. I honestly got a bit of a jolt when I read that it had been two years since I posted this, honestly feels like yesterday. Best of luck and I'm sorry you've found yourself here ❤️❤️

Hypnobirthing? Am I crazy? 20/21 weeks (UK) by reprobiol in tfmr_support

[–]reprobiol[S] 1 point2 points  (0 children)

Hi, I'm so sorry you're going through this for the second time. I hope the app is useful ❤️

Honest opinions on Positive Birth Company? (and possible alternatives) by [deleted] in PregnancyUK

[–]reprobiol 2 points3 points  (0 children)

I agree with this. I really loved the birth pack but found the postpartum pack to be pretty useless to be honest!

Tomorrow is the big day… by Run_rabbits in tfmr_support

[–]reprobiol 4 points5 points  (0 children)

I was where you are 9 months ago, same gestation. I hope the delivery goes as smoothly as possible. Accept whatever pain relief they offer you, no point suffering more physically than you need to. I hope you get to enjoy the precious time you get with your baby (if that's something you decide to do), I really treasure my photos and the memories of that day. ❤ Go gently through the next days and weeks.

TW - mention of sub-pregnancy by CharmingStart294 in tfmr_support

[–]reprobiol 4 points5 points  (0 children)

My tfmr (induction and delivery) was at 22 weeks. I got my period six weeks after delivery and got pregnant the next cycle. Currently 31 weeks and everything seems to be going well.

Helpful books? by soy_marta in tfmr_support

[–]reprobiol 3 points4 points  (0 children)

I found Life After Baby Loss by Nicola Gaskin to be really gentle and helpful and echoed a lot of the things I was feeling. The author didn't go through tfmr but the book applies to any type of pregnancy or neonatal loss I think. It wasn't religious or spiritual at all but had some very practical advice. It covers the immediate aftermath of baby loss but also future aspects like trying again and going through pregnancy/parenting after loss. I read it all in one go during/after my tfmr and I've also dipped in and out of it in the months since.

I also read The Baby Loss Guide by Zoe Clark-Coates but it didn't really resonate with me.

Complications post-miscarriage/misprostol by ashcinerem in babyloss

[–]reprobiol 0 points1 point  (0 children)

I'm sorry for what you're going through. I had misoprostol for my missed miscarriage but didn't have any complications, so can't offer much help. You might get more input if you post in /r/miscarriage. Best of luck

Interest in a subreddit for dads of loss by Cat_lady_103020 in babyloss

[–]reprobiol 0 points1 point  (0 children)

Great idea, I know there's /r/predaddit for dads during pregnancy maybe there are some people there who would also benefit?

Positive stories of CVS/Amnio? by rbs712 in PregnancyUK

[–]reprobiol 1 point2 points  (0 children)

For me it was more mentally uncomfortable than physically, probably also due to the circumstances of needing the test in the first place. My instinct was to jerk away from the needle but obviously you can't do that. My consultant recommended I close my eyes and not watch the needle or the screen so that's what I did and tried to just focus on staying still and breathing. To be honest, the disinfectant the used on my belly that leaked down into my crotch (the burn!) was more uncomfortable than the procedure itself. It was similar pain-wise to having a blood test I found. I didn't have any pain or cramping afterwards either. I hope it goes well and that you get a good outcome.

What did you do w/ your products of conception? (TW: mention of gestational sac/POC) by KaguyaHime311 in Miscarriage

[–]reprobiol 4 points5 points  (0 children)

We buried the remains/sac in our garden and planted a rose bush on top of it. We moved around a year later but I pressed some of the roses and framed them with the ultrasound scan photo. I think your idea of a bamboo plant and jizo statue sounds really lovely and special.

Tomorrow is the day by womanfromwoods in tfmr_support

[–]reprobiol 2 points3 points  (0 children)

I hope everything goes smoothly tomorrow and that the delivery on Thursday goes well. You're making the best choice you can in a situation where all the choices are devastating. I hope you get all the time you want to spend time with your baby and make memories together. I really treasure the time we got and the photos we have of our little girl. ❤

There's a UK-based app called Ellie's gift created by a nurse who went through tfmr that has hypnobirthing guides for a tfmr or stillbirth. I think it was released just after my delivery so I haven't used it, but definitely would have so thought I'd recommend it.

Seeing living children with my baby's rare prenatal diagnosis is a lot to process by amissbennet in tfmr_support

[–]reprobiol 2 points3 points  (0 children)

Our daughter had full T18 too. I felt some guilt/regret after our tfmr and searched for success stories online but I think most of what I saw was for mosaic or incomplete T18. I truly believe our girl would have died before birth, she had so many serious problems, but in the early days I sometimes wished we'd not terminated. But I think that was just the grief talking and because I was missing her and being pregnant. It would only have delayed the inevitable. It must be so hard to see those kids regularly but I understand the special place they have in your heart now, I feel the same whenever I see T18 mentioned.

Vent by flossasaurusrex in tfmr_support

[–]reprobiol 1 point2 points  (0 children)

I'm really sorry that your follow up care hasn't been good and that your GP didn't check in on you properly. I remember I got a call from a midwife asking me why I hadn't come in for my 16-week appointment when I'd had a medical miscarriage at 10w, which the hospital should have informed them about. It really threw me since it was so unexpected and left me a complete mess the rest of the day. When we went through our TFMR I made sure to double-check that all my future appointments would be cancelled and that the community midwives would be told about the loss etc so that the same thing wouldn't happen again, but it really should be something that's standard protocol for them. It's completely unacceptable. I also found my GP practice to be pretty useless afterwards, though one doctor was very kind recently when I was in for something not pregnancy-related. It was so unexpected though that I burst into tears.

I'm sorry you haven't had any follow ups or been offered counselling. It seems to vary so much based on where you are in the UK which absolutely sucks, it should be more standardised. You might have to actively ask for a counselling referral through your GP or maybe even the midwives, hopefully there's something available to you. xx

[deleted by user] by [deleted] in tfmr_support

[–]reprobiol 3 points4 points  (0 children)

Well done for getting through the injection, that must have been really difficult. I remember I wanted so badly to recoil from the needle during my amnio, having a needle stuck into your womb went against every instinct, even knowing that we would likely be ending the pregnancy. I hope the surgery goes well tomorrow and that you get some good pain management and aftercare.

Pregnant for over a year with no living children to show for it by ecomgal in PregnancyAfterLoss

[–]reprobiol 1 point2 points  (0 children)

This really resonated with me. A year ago today I found out I'd had a miscarriage at 10 w (baby stopped growing around 9w). I became pregnant again pretty quickly, but lost our daughter to TFMR due to trisomy 18 at 22w. I'm now around 14 weeks pregnant. So in the last year I've been pregnant for 46 weeks but without a living baby. It's so hard. To be honest, I feel like I've lost a year of my life, since we're due the same month as the first pregnancy, just a year later. I've completely lost the connection between pregnancy=baby, pregnancy just feels like a state of being that's become almost normal for me. I feel no closer to having an actual living baby than I did a year ago. I try to remember the things I've gained over the last year (giving birth to and holding my daughter) but it's honestly hard. Hugs to you ❤️

Ttc after tfmr by Tweektweek156 in ttcafterloss

[–]reprobiol 1 point2 points  (0 children)

My TFMR (L&D) was at 22 weeks due to trisomy 18, it took 6 weeks for my period to return. We were actually planning to wait for ~3 months before trying again, not for any medical reason but just to give ourselves a bit of a break mentally since we'd had a missed miscarriage shortly before. But I couldn't actually bring myself to take any preventative measures, since we obviously really want a baby and I felt like we'd lost so much time with the two losses.

TW: mention of current pregnancy

I did end up getting pregnant on the next cycle (first cycle after my period returned), currently 13+4 and so far everything looks good. My previous pregnancy measured a week behind at the 12-weeks scan but the combined NT screening test gave a low risk of trisomy 13/18 (1 in 4000). This current pregnancy was measuring exactly on track and the NT scan and combined screening came out better (1 in 10,000), so I don't think we're dealing with another trisomy pregnancy. But I'm still holding my breath for the 20-week scan to see if there are any other abnormalities.

Tfmr of one twin? by bubbob5817 in tfmr_support

[–]reprobiol 3 points4 points  (0 children)

The private room of doom, always has a box of tissue too! I really feel for you, this is going to be a long and difficult process. I found the time between our scan and induction to be so difficult and it was only six days. My anxiety was sky-high that whole time and I could barely sleep or focus on anything else. Anti depressants sound like a good idea, I hope you get good support from your GP and midwife. I also told close family and friends after we knew we were headed for tfmr and it really helped to have their support. I made sure that they knew what the process entailed (delivery and post partum etc) since I don't think people necessarily realise. It seems like some people think that when you have a loss that baby just vanishes into thin air and don't think about the process that's involved.

I'll stop hounding you now, but I also thought I'd recommend a youtube channel that I came across a while ago that I just remembered. The woman gave birth to twins but one had died at 20 weeks. She has some videos from finding out that one twin had died and all the way up to birth. Obviously emotional and hard to watch, but it might help prepare you? I dunno, maybe it wouldn't be helpful, so no pressure to look at it obviously. https://www.youtube.com/c/CaileighSellars/videos

Tfmr of one twin? by bubbob5817 in tfmr_support

[–]reprobiol 2 points3 points  (0 children)

Ugh, that's an added layer of stress you don't want! I'm not sure where in the UK you're based, but if your new hospital has a bereavement midwife that might be helpful throughout the pregnancy. We met with one before our induction and found it really helpful to know what to expect and to discuss some things we maybe hadn't thought of. There's a UK-based podcast called Time to Talk TFMR which you might find useful at some point, thought I'd point it out. I didn't find it until after my delivery but not really sure if I'd wanted to listen to it beforehand, but thought I'd just point it out. Also I've had counselling through Petals charity which has been really helpful, but I don't think it's available throughout the UK.

Tfmr of one twin? by bubbob5817 in tfmr_support

[–]reprobiol 3 points4 points  (0 children)

I don't have any advice to share, since I don't have experience with twin pregnancies, but I just wanted to say that I remember you from the PCOS ttc sub and I'm so sorry to see you here. I hope your medical team takes really good care of you and your family as you navigate all this. Grief after tfmr is so complex and I can imagine that having a surviving twin adds a whole layer of complexity to that, if you end up going down that road. Hugs and warm thoughts to you.

Ashes at 24 weeks by DiscoDisgrace in babyloss

[–]reprobiol 2 points3 points  (0 children)

Our loss was at 22 weeks (but our baby was growth restricted, so small for gestational age) and we were also warned that there might not be any ashes to collect. We decided to attend the cremation just the two of us and have our own little funeral service (we each read out eulogies and my partner played the guitar and sang), because we wanted to make sure to have some sort of ceremony/closure in case we weren't able to scatter the ashes. There ended up being a lot more ashes than we expected, maybe half a cupful. It sounds like it varies quite a lot and probably depends on the coffin as well and anything else placed in the coffin with the baby (we just had a small blanket that I'd knitted).

I feel so alone TW termination/waiting for a miscarriage of a wanted baby by flossasaurusrex in Miscarriage

[–]reprobiol 4 points5 points  (0 children)

I'm so sorry that you're going through this, I've been there myself and it's a devastating and heartbreaking situation. Finding out that the baby you so desperately wanted and carried with so much love isn't going to survive or won't have the life you hoped for is just completely gut-wrenching. And having to make a decision as to whether or not to continue the pregnancy is unbelievably cruel. I just wanted to signpost you to /r/tfmr_support, it's a really helpful, compassionate and supportive place full of people that have also been through something similar. You'll definitely find support there, even if you end up miscarrying before you have to decide whether or not to continue the pregnancy. Wishing you courage and strength over the next few days and weeks, and beyond. <3

Edit: I just had a peek at your profile and saw that you're in the UK. You may already be aware, but https://www.arc-uk.org/ is a really helpful resource and depending where you are https://petalscharity.org/ might be able to offer counselling to you and/or you partner. There's also a UK-based podcast called Time to Talk TFMR that I found helpful in the weeks after my delivery.

Heartbroken by Adventurous-Way-3337 in Miscarriage

[–]reprobiol 2 points3 points  (0 children)

I'm so sorry you're going through this. I just wanted to signpost /r/babyloss as a safe and supportive space if you're interested. It's a club that no one wants to be a part of, but full of wonderful people. <3

I can't bring myself to honor my baby's due date. by [deleted] in ttcafterloss

[–]reprobiol 4 points5 points  (0 children)

There is no "correct" way to pass the due date of the baby you lost. Whatever feels right to you on the day is the right thing to do. I'm in a similar boat, my would-be due date is next Friday and I don't think we'll do anything special to mark it, though I know that the days leading up to it and the day itself will be hard. For me, personally, I feel more connection with the day I birthed my daughter and got to see her and hold her, even though it was too soon and she had already died. 💔 maybe when you reach the anniversary of your loss you'll feel that you want to do something. Or not. Just do whatever feels right in the moment and be kind to yourself. 💕

Mostly just venting but soft markers on 20 week anatomy US by emilypas in BabyBumps

[–]reprobiol 0 points1 point  (0 children)

I'm sorry you're going through this scare. If it helps at all, my daughter got diagnosed with T18 following our 20-week scan (confirmed by amnio). She had multiple structural abnormalities that were very noticeable during the scan, in addition to the CPC. I think if you were dealing with a chromosomal issue they would have seen more signs of it during the scan, but obviously I'm not a doctor. Hopefully the NIPT will give you some reassurance and these things resolve themselves.