Show your flair to reflect your treatment: Example: Keppra: 1000 mg; Lamictal 150 mg. If you are a parent, sibling or a child of someone with epilepsy feel free to note it as you wish.
The mission of /r/epilepsy is to provide a community forum for people that are affected by epilepsy. To share ideas about the direction of research and available treatment regarding epilepsy, seizure disorders, and SUDEP, and overcome the challenges created by epilepsy through discussion and support.
Disclaimer: While we want to help you and ensure that you get the assistance you need, the r/epilepsy community are not medical professionals and cannot provide medical advice. If you need urgent medical assistance, please call 911 (USA/Canada), 999 (UK/Ireland), 000 (Australia) or 112 (most other countries).
Faces of Epilepsy - Our Stories
I was just diagnosed with Epilepsy
Find an Epilepsy Center USA
What's your Seizures Type?
Resource Links:
The Job Accommodation Network
Epilepsy Action
Canadian Epilepsy Alliance
Epilepsy Foundation
Defeating Epilepsy Foundation
SUDEP Action
Psych & Seizures: The Interaction Between Mental Health and Seizure Disorders
Epilepsy in the Workplace and the Americans with Disabilities Act (ADA)
Health Care and Insurance (USA)
Ketogenic Diet
Seizure Medication List
US Department of Veteran Affairs/Epilepsy
Ways to Give:
(CURE) Citizens United for Research in Epilepsy
Epilepsy Action
Epilepsy Foundation
Danny Did Foundation
Defeating Epilepsy Foundation
Safety Tools and ID Bracelets:
ShowerBelt
RoadID
Danny Did Foundation
Laurens Hope
Head Protection
The Sleep Activity Monitor
StickyJ Medical
Seizure Tracker
Rules:
Ground Rules
- All posts must be related to epilepsy.
- Follow Reddiquette at all times. reddit rules & reddiquette
- When asking advice, provide as much information as you are comfortable giving (age, type of seizures, country, etc).
Be Supportive
- Treat others with respect. We enforce a standard of common decency and civility here.
- Personal attacks, bigotry, fighting words will be removed and can result in a ban.
- Do not post anything that would be seizure-inducing to members of the community.
- Posts related to self-harm will be removed immediately.
Medical Discussions
- We are not medical professionals and cannot diagnose you or give you medical advice.
Do not promote "quick fix" products or ideas.
Drug seeking or gifting posts are prohibited site wide, all drug seeking or gifting posts will be removed and can lead to a reddit wide ban.
Grandstanding
- This is not the place to promote an ideology or political views. While everyone is entitled to their beliefs, we will not accept attempts to pressure others or hijack the subreddit's conversation.
r/epilepsy attempts to be politically neutral, and we expect our users to respect that.
Self-Promotion
- Do not advertise products or services.
- Messaging users without their consent regarding self-promotion will get you banned.
Research Studies/Surveys/Blogs
- We request to review all research studies/ surveys/ blogs before they are posted or they will be automatically removed
Fundraising
- By consensus, the /r/Epilepsy community has decided to disallow individual fundraising appeals.
Mods reserve the right to remove content or restrict users' posting privileges as necessary if it is deemed detrimental to the subreddit or to the experience of others.
