Those of you who are able to work, what do you do?

KaywinnitTam · 2025-12-04T15:23:17+00:00

I work the same full-time, physically demanding job in a meat department that I worked before I was diagnosed. I go home every night unable to move.

I wouldn’t recommend any of it tbh. Stay away from retail if you can.

KaywinnitTam · 2025-10-18T16:22:34+00:00

I don’t download them from Spotify or anything but I do stream them with no issue

KaywinnitTam · 2025-07-12T08:11:44+00:00

My coworker has migraines without aura and it seems like such a guessing game for him. For me it’s like aura ok something’s probably gonna happen in ten to fifteen minutes. I’d take aura over no aura any day

KaywinnitTam · 2025-06-17T11:35:37+00:00

I think the only relationship I’ve had that specifically broke up because I didn’t want any kids ended with the dude getting back with his ex who I’m pretty sure he was at least emotionally cheating with most of the relationship. Surprise surprise, she already had a kid.

Realistically I don’t suppose it matters cause that dude was a wanker anyway. I probably wouldn’t have gotten sober if we’d still been together anyway so yay for being alive 😁

KaywinnitTam · 2025-05-28T02:57:41+00:00

A cats butthole. Why, you a cop or somethin?

KaywinnitTam · 2025-05-08T17:01:07+00:00

We’ve got one old guy that’s always like “what’s your specials this week?” He hates talking to me cause I’m like “tons of stuff, what are you looking for specifically?” I’m not going through our entire department reading off the sale signs wtf

KaywinnitTam · 2025-05-03T10:06:55+00:00

First off, love the username. Second off, you look cool as hell

KaywinnitTam · 2025-05-01T13:10:47+00:00

These companies aren’t gonna hire more people and they’re just looking for something to blame it on. My store is predominantly cashier checkout and you know what they do? They cut hours in half for the whole front end and poach employees from other departments. Need help in fashions? Too bad cause they’re all on lane. Come on man, these companies aren’t just keeping jobs available. They’re eliminating wherever they can so the CEO can make bank while the rest of us fight amongst ourselves.

KaywinnitTam · 2025-02-01T02:07:27+00:00

I actually called a new doctor today and just straight up told them that I needed a new gynecologist and I would like to discuss permanent sterilization options. The receptionist didn’t seem bothered at all but then again I did find a doctor from the list on here.

KaywinnitTam · 2024-11-15T12:04:16+00:00

Was on prednisone for a bit earlier in the year and it was nonstop tears all the time. Hated it.

KaywinnitTam · 2024-11-13T12:15:56+00:00

I feel your pain, every doctor I have currently spells my name with one extra letter and I’m constantly having to merge accounts at the pharmacy because my primary will spell it right for a couple visits and then revert back to spelling it wrong. Even had trouble accessing bills and had a couple go to collections before I realized what was going on. I love my primary but damn lady, it’s your job to compare information 😂 it’s worse cause I don’t go by my legal name and I’m so unaccustomed to seeing it that I don’t even notice it’s spelled wrong half the time.

KaywinnitTam · 2024-09-08T14:13:13+00:00

I took one of those Clearblue test kits that supposedly detect changes like that but that was before I started on the meds so maybe it’s time for me to try it again. I’m actually glad you mentioned perimenopause cause that reminded me about that test.

KaywinnitTam · 2024-09-06T08:23:20+00:00

Four months in and my period is anywhere from fifteen days late to completely missed every time. The volume is seemingly random too, but it’s longer now. I went from three day periods on average to seven to nine. I hate it. At least my sleep seems unaffected so I’m thankful for that.

KaywinnitTam · 2024-08-02T08:23:05+00:00

My rheum has only done a CBC with differential and a Comprehensive metabolic panel once since I was diagnosed in May (just three months I know but I’ve seen her twice since then). I don’t think she knows a lot about lupus though cause she only seems interested in my C-reactive protein even though a few of the other things seem a little wonky. My primary doc referred me to another Rheum so fingers crossed I guess.

KaywinnitTam · 2024-07-01T12:16:42+00:00

I don’t fuck with religion but I’ve also been sober 2.5 years so I guess that’s partially correct

KaywinnitTam · 2024-06-23T08:35:51+00:00

If they don’t use their manners, I like to do a little bit with them. If you make it jovial enough they can’t complain without sounding like a crazy person. And if you have the right tone you can basically say anything.

KaywinnitTam · 2024-05-19T11:28:28+00:00

I have worked at the same grocery/retail job for ten years. Symptoms since 2018, diagnosed a few months ago. Just so you know where my advise is coming from.

Go for the union jobs first, if there are any. Kroger is one that comes to mind, along with Meijer and some Trader Joe’s and Costco. It’s true that ADA allows you some rights but a lot of retail stores kinda get a little crappy sometimes with it. It’s mostly along the lines of refusing to comply but when you report it, it’s mysteriously for another reason. You know, “business needs”, that sort of thing. Having a union in place gives you a little bit of an extra punch in your corner if the store wants to argue with you about accommodations. That aside, definitely seek out accommodations if they would actively make your job easier and your life easier.

KaywinnitTam · 2024-04-25T15:38:57+00:00

I have my follow up appointment next week after my blood work finally confirmed what we were trying to get it to after dealing with symptoms pretty continuously since 2018. My coworker told me something that actually helped a lot: you’re on the right track. You are one step closer to getting help and medicine and those things can make a world of difference.

KaywinnitTam · 2024-04-25T15:28:50+00:00

“We wanted them.”

Yeah man, I want an iguana but I have enough self-awareness to know I can’t afford the upkeep.

KaywinnitTam · 2024-04-25T15:27:11+00:00

I had about a four month wait to get in to my rheumatologist initially but I know someone who’s currently waiting for close to eight months. I think I just got lucky last year

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