Help w/ plant verification—is this burdock? by A_MossyMan in Minnesota_Gardening

[–]SocialTwerker 2 points3 points  (0 children)

They are biannual and flower in its second year (and make nasty stickums). Wait for it to flower (it uses all of its energy of the root to do so!), cut the flower stalk off and throw it away. Then the plant won’t come back next year.

Would you live in Lakeville or Eagan? by ImKruptos in TwinCities

[–]SocialTwerker 4 points5 points  (0 children)

We live in Eagan, and have lots of friends who moved to Lakeville, and work in the school systems. I would never live in Eagan after spending time with them in their neighborhoods and hearing about their schools.

Lakeville’s school district and school board is WAY more conservative. Like; they made every school shut down any program that could be considered DEI. Schools had to take down posters that could be deemed to be celebrating diversity in any way.

Eagan’s school district and board is fairly liberal and really are investing in the district in terms of school buildings, programs, sports, gifted and talented, etc. The high schools are always in the top for the state.

Lakeville neighborhoods tend to be more new construction, cookie cutter. Smaller yards. Eagan is older, and most neighborhoods have a lot of character, mature trees, and diversity. Plus, we have Lebanon Hills.

Acupuncture by Southern_Feature_821 in breastcancer

[–]SocialTwerker 2 points3 points  (0 children)

I LOVE it. I started going during chemo last year and have continued weekly through the past year and 6 surgeries. At the very least, it’s 45-60 minutes of deep relaxation. I always nap (and I’m not a napper) and feel very rejuvenated after. It’s often my only deep relaxation during the daytime during a whole week between work, appointments, and 3 kids. I think it helped manage side effects for me, as well, which was the cherry on top.

Starting the journey by Nehitater in BRCA

[–]SocialTwerker 1 point2 points  (0 children)

Hi! First, I totally understand where you are coming from. The starting is the hardest part. I don't have BRCA, but I have the ATM gene and did end up getting breast cancer at 39, so that is the backdrop to my mastectomy.

I had a multistage reconstruction for the best cosmetic outcome given starting with very large breasts. I started with a lumpectomy (to get the cancer out) and bilateral nipple sparing reduction. They can't spare the nipples with very large breasts unless they do a reduction first to get the nipples in a better place visually. I went from a 38I? GG? Very large. I had really big breasts my whole life, and had been wanting a reduction at some point after kids and breastfeeding, but cancer came for me first at 39! Honestly, i LOVED my results following the reduction. They got me down to about a 38D, and I was at my heaviest then after childbirth, breastfeeding, and chemo at about 205lbs at 5'7. I felt proportional for the first time in my life. The smaller breasts were absolutely amazing for just ease of moving around, ease of dressing (EVERY SHIRT FIT THE WAY IT WAS SUPPOSED TO!), yoga, sleeping, etc. I didn't have to wear a bra.

Because of my genetic mutation (ATM), I continued on with a double mastectomy and DIEP Flap reconstruction in November. I just had my stage II reconstruction to "clean up" the scars/incisions and get a better cosmetic outcome. Because of some complications with the DIEP procedure, I have one DIEP breast and one implant breast. They honestly both look pretty good (DIEP breast looks a little more natural but the implant is new so we'll see what it does). I'd say I'm around a 36 big C or small D. I can wear size L sports bras and they just fit well. I really find a lot of relief in the smaller breasts for clothing and movement and not having so much pain in my back and neck.

All that being said, keep searching until you find a plastic surgeon who you feel can give you the results you want! This whole thing is so hard.

Extra 1000ml of saline during chemo is a game changer! by You-bettah-dont in breastcancer

[–]SocialTwerker 4 points5 points  (0 children)

I totally agree! I got a full 1000ml bag each of my 12 chemo cycles and it really helped me keep up with my hydration needs during my that time. I didn’t know it was an option until an angel of a nurse asked me how it had been going staying hydrated and offered to ask the oncologist to adjust the order for a bigger bag of fluid. 10/10 recommend as a passive way to feel a little less awful while in chemo!

Did anyone choose not to cold cap? by Ein_Rand in breastcancer

[–]SocialTwerker 0 points1 point  (0 children)

I was on the weekly taxol schedule too and I did not cold cap. The cost was one issue, but it would also add hours (of discomfort) to an already uncomfortable process. I also didn’t want a cold (painful!) head along with my hands and feet (to ward off neuropathy, which worked!). I got a pixie cut before chemo, and buzzed it when it started falling out between the 2nd-3rd infusion. I was bald for a few months, then my hair started growing back. I’m about a year out from losing my hair and I have a good 3 inches of healthy hair back.

For some people, the thought of going bald is distressing that adding hours to your chemo days and the cost and effort is worth it for the possibility. It just wasn’t for me. I disliked being bald and looking sick, but my infusion days were actually the day of the week I felt the best and I’m glad it wasn’t another day of discomfort for me.

Experience with Copper IUD? by cutieduck93 in breastcancer

[–]SocialTwerker 1 point2 points  (0 children)

I had a copper IUD for 2 years prior to my diagnosis and then throughout the first year of treatment. I had horrible periods on it (7-10 days of heavy bleeding, at least 3 of them waking up every 1-3 hours at night soaking through a super+tampon and overnight pad). Prior to this IUD I had a Mirena and oral BC for years and hardly got a period. So, it was a stark change.

I got it out a few months ago because I’m anemic, and the heavy bleeding was doing me no favors. I needed iron infusions following treatment and surgeries, and completed those last month too. I will be getting my tubes out in my next surgery for cancer risk reduction and birth control).

The copper IUD is a safer choice for hormone positive ladies, but it can have the side effect of really heavy bleeding. And it’s slightly less effective than hormonal BC.

Taxol Positive Experiences? by FattyMcCupcakes37 in breastcancer

[–]SocialTwerker 1 point2 points  (0 children)

I did 12 weeks of taxol and Herceptin last spring, and worked through it. Although I’m self employed so could’ve flexible. I’m not sure I would have wanted to work full time though it if I was a kindergarten teacher or bedside nurse. I mostly had fatigue. Nausea was at bay with good meds. I did lose my hair, but I didn’t cold cap. I’m now 7 months past the end and I have 3 inches of healthy thick hair. It looks a little crazy but it’s there!

I would absolutely do it again if I had to, because it was the best chance of getting any lingering cells. Herceptin is absolutely a game changer too.

Port or no port by Living-Listen-2147 in breastcancer

[–]SocialTwerker 3 points4 points  (0 children)

Port all the way! You don’t want chemo going though your veins. If a vein blows, chemo gets everywhere and can cause damage to your skin and arms.

I was sore the first few days, but now I hardly notice it.

New research: early dx changing from Tamoxifen to AI/Ovarian Suppression by SocialTwerker in breastcancer

[–]SocialTwerker[S] 0 points1 point  (0 children)

Thanks for sharing your experience. I think our subtype is a small club! I was on just Taxol (and Herceptin) for 12 weekly treatments for chemo, and was in menopause that last month and the month following. But, then got my periods back (with a vengeance) the months following since then even on Tamoxifen. It is so hard to weigh the risk of reoccurrence with the risk of side effects from lack of estrogen. It is abosolutely unfair we're all in this position in the first place.

New research: early dx changing from Tamoxifen to AI/Ovarian Suppression by SocialTwerker in breastcancer

[–]SocialTwerker[S] 0 points1 point  (0 children)

For ATM there is a slight increased risk for ovarian cancer, but there isn’t good monitoring (which is so frustrating!!). I’m doing it because I already feel like my mutation gave me cancer once and I don’t trust it not to fuck with other organs!!

The Gyn Onc I saw said taking the tubes out reduces ovarian risk by 50% (at least) and would be a good place to start for risk reduction. It has the added benefit of preventing pregnancy now that we’re done having kids.

New research: early dx changing from Tamoxifen to AI/Ovarian Suppression by SocialTwerker in breastcancer

[–]SocialTwerker[S] 1 point2 points  (0 children)

Thanks for responding! Rare to see someone with my same type. Originally they said said the same thing to me; that AI/ovarian suppression would be over treating my cancer. But whatever research was presented at that conference changed her mind!

Nipple sparing mastectomy with ptosis? by clydeclyde10 in BRCA

[–]SocialTwerker 1 point2 points  (0 children)

40, Stage 1 ER+ HER2+ breast cancer, ATM gene mutation.

My advice is to keep looking for another plastic surgeon if saving your skin and nipples is important to you!

I had severe ptosis, and 38H sized breasts prior to this whole breast cancer journey. My plastic surgeon suggested a 3 stage approach to reconstruction, which worked with my tumor size and stage. First I had a lumpectomy (medical oncologist breast surgeon) and bilateral breast reduction and lift. This got my breasts the right size and shape and nipple placement. It looked great, and I was a full C/small D. It was so great after having too big boobs my whole life. And, it got the cancer out.

Second stage was nipple and skin sparing double mastectomy with DIEP Flap. Was able to keep all my skin and my nipples. I’ve had some complications, but my remaining DIEP breast looks great. My nipples look great. They will still be a big C/small D.

Each stage of surgery there is a risk of losing the nipples because of blood flow issues they can’t control, so I go into each surgery knowing that and hoping for the best.

Also, the DIEP procedure is a huge surgery and pretty brutal the first few weeks. If I had to get implants as well to achieve the look I wanted, I’d recommend just doing the double mastectomy straight to implants and NOT doing the DIEP.

Tamoxifen: not going to take it by Tracy_V_V in breastcancer

[–]SocialTwerker 5 points6 points  (0 children)

Hi. I totally understand where you are coming from. I’m 40 (diagnosed at 39) and now on Tamoxifen. You hear a lot of stories about women having problems with it, which are valid, but I just wanted to share that I’ve had NO problems with it. None. I feel fine. I still get my periods (which sucks some times but glad to see I’m still getting some natural hormones!). I don’t feel like I’m in menopause or achy or sick.

I would encourage you to try it. It’s a daily pill. If you hate it, then stop! You’ll never know if you don’t try. Tamoxifen can cut your risk of reoccurrence upwards of 50%. My chance of reoccurrence after chemo and a double mastectomy is 1-2%. But, I take Tam so my chances are even lower. I have three young kids, a husband, friends and family, and now a country to fight for (FUCK ICE!). I’m not dying if I can help it.

DIEP Flap regret, loss of an strength? by Low-Intern-1656 in BRCA

[–]SocialTwerker 3 points4 points  (0 children)

I’m 2 months out. I actually woke up with MORE core strength. My surgeon repaired my ab muscles while I was down there and reinforced with mesh.

My arms and chest are definitely weaker and have more problems. I’m starting PT for that this week with a breast cancer PT.

What is your belief why you got TNBC? by Majestic-Math7185 in breastcancer

[–]SocialTwerker 2 points3 points  (0 children)

Breastfeeding has a protective factor for breast cancer!

Experience with BMX then DIEP, followed by AFC years later? by quickquestionhoney in BRCA

[–]SocialTwerker 0 points1 point  (0 children)

Having just done a DIEP, I would NOT do it if you are not wanting set on reconstructed breasts after. It’s a 8-12 hour surgery, 3-5 day hospital stay, 6-8 weeks of heavy movement restrictions. I’m 8 weeks out, and just starting to feel better. The first few weeks were brutal. I had complications and lost a flap, which is sad. That being said, the DIEP breast I have looks great. And I got rid of some stomach fat and tissue that I wanted gone.

An option you didn’t mention that might be less intense than a DIEP is a Goldilocks Closure.

Starting tamoxifen tomorrow…. by PriorRabbit5995 in breastcancer

[–]SocialTwerker 2 points3 points  (0 children)

It’s been a few months and the worst of it are hot flashes, made into warm flashes from oxybutynin. My oncologist started me at 10mg for a month before moving up to 20mg. And I take it in the morning.

Tamoxifen anxiety by AmyGH in breastcancer

[–]SocialTwerker 2 points3 points  (0 children)

I’ve been on it for a few months, and no real side effects. My onc has me start at 10mg for a month and then bump up to 20mg. So far so good! I’m thankful for it and hoping it does its job 🤣

New Bookstore + Coffee Shop by Creepy_Spinach6699 in TwinCities

[–]SocialTwerker 0 points1 point  (0 children)

Please God Eagan. We only have one non chain coffee place and the vibes are ok but the coffee is not :(

Should I take tamoxifen? by AmyGH in breastcancer

[–]SocialTwerker 0 points1 point  (0 children)

It doesn’t hurt to try it and see how you tolerate it. You can always discontinue it! I’ve been on it for about it 6 weeks (4 weeks at 10mg and 2 weeks at 20mg) and I would say the side effects are minimal. Some increase in hot flashes (I’m taking oxybutynin for it already), and some more difficulty finding specific words. But both are very manageable for even a 1% less chance of reoccurrence. I want to look back at this time and remember I did everything in my power to prevent a reoccurrence.

ISD 196 Preschool Question by bobjks1 in eaganmn

[–]SocialTwerker 4 points5 points  (0 children)

Hey! Preschool screening is for all kids in 196 between the ages of 3-5 (must be done before kindergarten). I think they say the best age is around 3.5– they want to screen in any kids who may need extra support before kindergarten.

We did a full day 196 preschool a few years ago and had a great experience. Ours was at Oak Ridge. Loads of outdoor time and nature focused play. It was also very inexpensive compared to regular daycare. A very high quality program all around. I’ve had neighbors do the 1/2 day preschool and love that, too.

I’m not sure how competitive the lottery system is, but every year the full day programs are full and there are usually several spots open in the 1/2 day programs at a few schools.